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Help, new diagnosis
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Scared Offline

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Posts: 38
Joined: Apr 2015

Machine: philips Respironics Remstar Auto A-Flex System one
Mask Type: Full face mask
Mask Make & Model: F & P simplus Meduim
Humidifier: None
CPAP Pressure: 9.4
CPAP Software: Not using software

Other Comments: Diabetic Type 2 high bood pressure, Diverticulitis, Arthritis

Sex: Female
Location: French Alps

Post: #1
Help, new diagnosis
hello, I have told I have sleep apnea after my sleep test, I stop breathing 75 times an hour and my stats go down to 68% I don't see anyone until Thursday am
I going to die n my sleep, am so scared...any advice please.
04-04-2015 03:47 PM
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retired_guy Offline

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Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #2
RE: Help, new diagnosis
No Scared, you will not die in your sleep. You'll be fine.

The thing is, you've had sleep apnea for a long time even though you did not know that. So waiting for a little while for the medical stuff to catch up will be ok.

But I do understand your concern.

So, do this: First, when you go to bed, make sure the head of your bed is elevated some. Also do whatever you can to make sure you are sleeping on your side, not your back.

You'll be ok. I promise.
04-04-2015 04:04 PM
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OpalRose Offline

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Posts: 3,167
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #3
RE: Help, new diagnosis
(04-04-2015 03:47 PM)Scared Wrote:  hello, I have told I have sleep apnea after my sleep test, I stop breathing 75 times an hour and my stats go down to 68% I don't see anyone until Thursday am
I going to die n my sleep, am so scared...any advice please.


Scared,

I have been where you are at, and understand the panic feeling that goes with this diagnosis. After my sleep test, I had to wait almost two weeks for a sleep doc. to read results and another three weeks to see him just to get a scrip for my CPAP.
Within that time span, I was scared and panicky. I felt what you describe as feeling like you might die in your sleep. I didn't want to sleep at night, that's how scared I was! I didn't find this forum until I had been on therapy for a few weeks, and got no support from Docs, DME, or sleep clinic.
I did however find articles that told me to sleep on my side and make sure I was elevated. So for all that time between sleep study and getting my machine, I found myself sleeping in my recliner most nights.
It's a shame that we go through such nonsense. There should be more compassion and support.

So until you see your Doc. On Thursday, try to relax....I know...easier said than done! Sleep elevated! You will be fine. Check back when you get your machine,
and please be sure your Doc. writes a scrip for a Fully Data Capable Auto machine.
OpalRose

OpalRose
04-04-2015 04:05 PM
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truetopath Offline

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Posts: 421
Joined: Feb 2015

Machine: PR system one 560p auto with a flex
Mask Type: Full face mask
Mask Make & Model: Resumed F10
Humidifier: PR system one
CPAP Pressure: 11
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Lake View, NY

Post: #4
RE: Help, new diagnosis
Welcome to the board! What R_G said you've had apnea for awhile. So it's a good thing you're taking the steps now to get your apnea treated. Best of luck on your journey.
04-04-2015 04:08 PM
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Joedozer Offline

Members

Posts: 11
Joined: Jan 2015

Machine: resmed air10 autoset
Mask Type: Full face mask
Mask Make & Model: F&P simplus
Humidifier: built in
CPAP Pressure: was 18 now 11-20
CPAP Software: ResScan SleepyHead

Other Comments: 18 Pressure Too much all night.Average about 14 now.

Sex: Male
Location: minnesota usa

Post: #5
RE: Help, new diagnosis
You have been like this for a while I suspect,so don't worry about dying just yet. I would use extra cushions or pillows to prop you up to try to help blocked airway.You will get help very soon so hang in there and the best of luck to you!
04-04-2015 04:09 PM
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trish6hundred Offline

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Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: Help, new diagnosis
Hi Scared,
WELCOME! to the forum.!
Just try to sleep on your side and elivate your head a bit, as others have said, you'll be ok.
Hang in there for more responses to your post and much success to you as you start your sleep apnea journey.

trish6hundred
04-04-2015 04:16 PM
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archangle Offline
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Advisory Members

Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #7
RE: Help, new diagnosis
Welcome.

Relax. Take a deep breath.

Think of not using CPAP as being like smoking a few packs of cigarettes a day, and you've been doing it for years. It's probably not going to kill you tonight, but there's a good chance it will kill you eventually. Stopping smoking today vs. stopping smoking in a few weeks isn't going to make a big difference in the long term odds.

If you're a newly diagnosed apneac, the chance you'll have some sort of new serious problem like a heart attack or stroke in the next few weeks is pretty small.

However, there's good news.

You got here before you got your CPAP machine. Read up on the tricks and tips for new CPAP users here. If you go into your doctor and DME (CPAP salesman) unprepared, there's a really big chance you'll get screwed in various ways.

Read the Useful Links in my signature line at the bottom of this post. It will help you deal with the DME and not get screwed with a bad machine that will make good treatment nearly impossible.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
04-04-2015 04:22 PM
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Scared Offline

Preferred Members

Posts: 38
Joined: Apr 2015

Machine: philips Respironics Remstar Auto A-Flex System one
Mask Type: Full face mask
Mask Make & Model: F & P simplus Meduim
Humidifier: None
CPAP Pressure: 9.4
CPAP Software: Not using software

Other Comments: Diabetic Type 2 high bood pressure, Diverticulitis, Arthritis

Sex: Female
Location: French Alps

Post: #8
RE: Help, new diagnosis
Thank you all so so much, I feel a little better knowing I am not alone, I have an electric bed so have raised it so I am nearly sat up.

Another question sorry... I live in France so do nit know what to expect, but has anyone any advice on what questions to ask and what machine to get, I suffer from a very dry mouth and throat, are they electric. also I am going on holiday do I have to notify the airline and can you carry them on the plane without being in your hand luggage?

No doubt will think of more questions ....Thanks
04-04-2015 06:20 PM
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DariaVader Offline
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Monitors

Posts: 1,820
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #9
RE: Help, new diagnosis
Does Insurance cover any or all of your equipment? If so, you may be more or less bound to use whatever they will pay for. The rules in France may be wildly different than the rules in the US which is what I am familiar with Smile There are people on this board from a variety of countries and with a variety of coverages , maybe one of the others knows more about your situation than I do. If you have choices, go with
  1. data capable (not just compliance data, or ahi - but extended data
  2. auto titrating (bonus, these systems have the data too)
  3. resmed or respironics (that is what most of us have)


Archangle gave you links to tell you this and more. it's a lot of data!

yes they are electric.
they do not count as extra baggage, and can be added to the carryon count. there are several threads on here about traveling with cpap.

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
(This post was last modified: 04-04-2015 07:52 PM by DariaVader.)
04-04-2015 07:45 PM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #10
RE: Help, new diagnosis
Only thing I'll add to Daria's comment is in regard to your dry throat/mouth. That's another symptom of Sleep Apnea, usually caused by mouth breathing and snoring. So that will improve once you get started on your therapy. Usually the machines will come with a humidifier and that will make things nicer for you as well.

So study up a little, and just know that your life is getting ready to get a lot better.
04-04-2015 08:06 PM
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