06-11-2014, 06:05 AM
(This post was last modified: 06-11-2014, 06:07 AM by dduttonnc.)
Only 1.5 LMP right now to start.. the machine can do 10.. but that's 5 over the s9s max.. dunno why they got me that one.... maybe for future resmed devices that can handle more?
and I have a SpO2 sensor on my finger (I have to tape it each night or it falls) off that records my SpO2 all night long and has a micro SD card in it which I just drop in the mail and mail it to my DR every week ( in theory.. hasn't been a full week yet)... I can look at the display and see my min/max SpO2 for the night...
Now that I tweaked my s9 and got my AHI , AI, and Central down to 0.x -2 in the past few days.. my min SPO2 has gone up from 81 to 91.. that's still a bit low so he will probably increase the O2
My sleep apnea got so bad, I starting entering a form of false CHF.. basically at night my heart couldn't handle the load and my lungs fill will fluid and it's already cause a 1mm thickening of my left ventricular wall (cardio doc says thats nothing to worry about as long I correct the apnea, lost 50lbs and keep it off).
Once all the CHF symptons go away in the next few weeks, the O2 will probably be lowered to 0.5 LMP or 1LMP
It was my cardiac issues that actually let me to a sleep Dr.... I was having REALLY erratic beats during the day.. I'd pass out.. my BP would be 240/160 at times and 90/60 at others.. id gain 40lbs in water weight in a week. then id take lasix and in 2 days I'd drop it...
the cardio Dr couldn't figure out what was going on as I exhibited moderate to advanced CHF and other cardiac issues, but all the tests showed my heart fine... I don't even have arterial occlusions (which is fantastic for my age)... then he asked what kind of watch i was wearing.. I said it's not a watch.. It's a FitBit Flex.. it monitors my setps.. track my food, activities and calories to help lose weight and also monitors my sleep.... then he pause and said, can you pull up your sleep data right now? I said sure.. I have an app on my iphone... every night it showed me restless 400-600Xs and awake 50Xs... I had an emergency appt with a sleep Dr the next day.. I had an emergency sleep study at home that night (all the centers were already full), and I had a resmed s9 autoset EPR 2 days later... it helped... but the Central numbers were OFF the chart and I stilll had all the bizzzare cardiac issues....
So I was sent for a FULL sleep study where they found out that sometimes my brain doesn't tell my body to breath.. and doesn't react , in any way to low blood oxygen.. and other times I breath VERY shalllow and my blood o2 drops... my brain does nothing to correct it...
2 days later I had the new res med in my profile... the o2 system came a day later.. My insurance covered EVERYTHING except the s9 itself which I had to pay 3200 for. but the ins co gave me 775 to help with it... I'm appealing the decision and have a neurologist, cardiologist, and a sleep dr saying I NEED this or I could die without it.. So I'm pretty sure I'll win and get paid back...
But I have more tests... neurological to see why my brain is doing this... and once the vpap has been on me for a month, if my cardiac symptoms have not vanished.. then ill wear a holter monitor and have more tests (cuz that would mean what's left is not sleep related)
* diagnosed with OSA in 5/20/2014. 900+ stops per night
* diagnosed with mixed apnea on 6/4/2014 with CSA 800Xs/night & OSA 100Xs/night
* ResMed S9 VPAP ST-A iVAPS 12-25 auto pressure settings
* H5i humidifier - Climate in manual mode: 6.0 humidity & 80F tube temp
* Respironics Millennium M10 O2 concentrator hooked into Climatemax oxy o2 port @ 1.5LPM
* ClimateMax Oxy air tube
* FitLife Total Face CPAP Mask with Headgear extra large
* 2250 VA , 1250 Watt UPS backup - much cheaper than an 8hr resmed 755$ battery and lasts 10Xs longer.
Wow, that's crazy man. Mine is central apnea as well but certainly not on the level that you have it. Just wanted to say best of luck to you.
WELCOME! to the forum.!
Sounds like you have a lot going on.
Hang in there for more responses to your posts and best of luck to you with your CPAP therapy.
A sleep doc once told me that some people with longterm, untreated OSA lose their central ventilator drive.
It may improve with treatment.
Interesting story of how you got an initial diagnosis.
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.