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Hope for the newbies
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,824
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #11
RE: Hope for the newbies
Welcome

and great job getting started!!!

IMO, unless there are comfort issues with the current pressures that are causing you not to sleep, you should leave things alone for a bit. AHI can fall more as you accustom to the therapy, and re: air swallowing, if you swallow on exhale a couple of times awake it will feel so much better you will do it naturally and swallow much less air.

If your AHI remains ~5 there is a good chance that using data the therapy can be "dialed-in" to better treat your individual needs. You should download the free/donation Sleepyhead software and review your data with help from the very educated folk here --- be aware that changing EPR can affect the therapy -- for the better or the worse depending on your individual needs.

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
06-20-2016 01:20 PM
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Dramagal27 Offline

Members

Posts: 13
Joined: Jun 2016

Machine: F&P ICON
Mask Type: Nasal mask
Mask Make & Model: DreamWear by Philips
Humidifier: Included with ICON
CPAP Pressure: 12
CPAP Software: ResScan

Other Comments:

Sex: Female
Location: Canada

Post: #12
RE: Hope for the newbies
Thank you for the welcome. You all know what it's like, and that's just what I need.

I am still using a device that's on loan. Luckily, when I am ready to buy, most of the cost will be covered by our provincial and private health plans. Currently, there is a Sleep Apnea technician monitoring my progress and making suggestions every few days. One of the counselors (?) is very encouraging. The other one makes me feel like a failure. Guess which one I like speaking to?

I still have much to learn and appreciate any and all advice.

Current questions:

Why is EPR important?
Do you travel a lot with your machine? What has been your experience?
When you have a short nap (less than 2 hours), do you always use your CPAP?

Thanks
06-20-2016 03:54 PM
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Rcgop Offline

Advisory Members

Posts: 214
Joined: May 2016

Machine: Resmed AirSense 10 autoset
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: installed
CPAP Pressure: 6.0 - 10.0 / EPR 2
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Orlando Fl

Post: #13
RE: Hope for the newbies
Went on a cruise with mine. Needed an extension cord and distilled water. Cruise was eager to supply both. Worked out the extension cord but had to supply distilled water. Cruise line had distilled water for $4 a gallon. Less than a beer. As for security at the airport, it passes the same as a computer. Case and unit are separate. Also does not count as either carry on or personal item. Free passage.

Yes, my naps are on therapy. The get better quality sleep than a whole night on therapy.

HuhDont-knowI am an accountant so any advice given here is not medical. If I give any financial advice, you can take it to the bank. However, you will have a hard time cashing it in. Okay
06-20-2016 04:05 PM
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OpalRose Offline

Monitors

Posts: 3,176
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #14
RE: Hope for the newbies
Dramagal27,
EPR is a comfort setting. Some folk like it and some don't.
EPR will lower the pressure a bit when exhaling. If you have a problem with breathing out against pressure, then this will help.
If you decide to use this feature, you should try a setting of 2 to start.

I seldom take naps, but when I do, I use my CPAP even if it's just an hour.

OpalRose
(This post was last modified: 06-20-2016 04:43 PM by OpalRose.)
06-20-2016 04:41 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,824
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #15
RE: Hope for the newbies
EPR makes the CPAP or APAP function in a limited way like a bilevel. limited, because the amount of pressure support available is much less than a bilevel.

Downside:
The pressure relief can make your pressure needs higher depending on the type of incident's you are having. Changing pressures and higher pressures can both (variably) cause central/clear airway apnea events, which is why I would only do that if reviewing results.

Upside:
A benefit of EPR is that like bi-level it can lower pap induced intra-thoracic pressure thereby relieving load on heart and kidneys, and reducing pap induced water retention (yup, that is a thing)


Regarding naps... I rarely nap, but if I do, it is with my machine. No desire whatsoever to strangle every couple of minutes for even 10 min Smile much less an hour! Actually, the one time I slept for an hour without the machine (by accident) I woke with a stunningly bad headache!

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
(This post was last modified: 06-20-2016 06:17 PM by DariaVader.)
06-20-2016 06:16 PM
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chill Online

Advisory Members

Posts: 856
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: Walk-in Mask Closet
Humidifier: DreamStation
CPAP Pressure: 13-16
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #16
RE: Hope for the newbies
You will probably also find that you can reduce the EPR/Flex over time. I started with 3 and am at one now and this reminded me to turn it off. You have to allow time for your body and mind to acclimate to this new way of sleeping. The changes can be very gradual.
06-20-2016 08:59 PM
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holden4th Online

Advisory Members

Posts: 239
Joined: Dec 2015

Machine: PR System One REMStar 60 Series Auto with Bluetooth
Mask Type: Nasal mask
Mask Make & Model: Respironics Dreamwear
Humidifier: Remstar Heated Humidifier
CPAP Pressure: 11- 15 APAP
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Gold Coast Australia

Post: #17
RE: Hope for the newbies
Hello DramaGirl and welcome to the forum. The Dreamwear mask is great, it greatly enhanced my therapy.

Based on a comment you made can I suggest an alternative to a chinstrap. I, and many other mouth breathers, use a soft cervical collar to control this issue. While a chinstrap worked OK for me the collar was far more effective and also more comfortable. It does one thing a chin strap doesn't and that is prevent chin droop which will start to close your airway. The higher your chin the more your airway is open.

Best wishes for your continuing therapy
06-21-2016 04:20 AM
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brianwood619 Offline

Advisory Members

Posts: 171
Joined: Jan 2014

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 16-22cm/h2o
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Peaceful Acres

Post: #18
RE: Hope for the newbies
Don't give up...it gets way better once things start to jive.
06-21-2016 05:16 AM
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