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Hosed up for 6 weeks now
#1
Hosed up for 6 weeks now
Hi all,

Well I have been on my machine for six weeks and I will be honest and say its been a lot more difficult to use than I thought but I am determined to use the machine and get this therapy down. I am using a full face mask and I must admit I didn't like the feeling of this monster on my face but I am getting used to it. I tried pillows but my mouth kept dropping open so I bought a chin strap to try (last night) with better results but switched back to the full mask as my lips were fluttering and woke me. I will persevere with the pillows as its certainly easier to find a position to sleep with them although now I am used to the mask I don't particularly find them super comfy like some do. Everyone is different but for me if I need to wear a chin strap, collar and tape lips I would rather just use a full face mask as all that paraphernalia seems pointless if there is one thing that works for me.

Below are my last two nights, Monday felt like it was my best day since I started and felt rested. Tuesday was with the pillow try and I had a more restless night but still not bad if I go back to the start. One thing I have noticed is my 95% over the last three weeks has increased and I am wondering if I should look at raising my minimum up and my max? For those that have read my previous thread the centrals are still the majority of events but they seem to be less than before. I am still taking the advice of the forum members as I believe that the ASV may still be the best therapy for me but as always I welcome your thoughts.

Apologies for the long post but I hope it helps other new users to stick with it as for me its been difficult but the implications of not using the therapy are certainty not worth the limited discomfort of getting used to being hosed up!

[Image: pwmkQYv.png]

[Image: KouFgCP.png]
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#2
RE: Hosed up for 6 weeks now
Make adjustments slowly so you cansee which works. I see constant leaks you need to address.
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#3
RE: Hosed up for 6 weeks now
I agree with Sleeprider you need a ASV machine. If it were me I'd just stick the machine on a fixed pressure of 9cm or 10cm and leave it alone. The best thing you can do now is push the Doctor to get you on a ASV machine!
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#4
RE: Hosed up for 6 weeks now
One glance and I said you need an ASV machine may be in your feature.

Usually the best we can do with a CPAP machine is to eliminate pressure fluctuation.  This means constant pressure with no EPR.

I suggest your mean as a good place to try so set a range of 10-10 cmH2O

Fred
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#5
RE: Hosed up for 6 weeks now
(09-13-2017, 08:55 AM)bonjour Wrote: One glance and I said you need an ASV machine may be in your feature.

Usually the best we can do with a CPAP machine is to eliminate pressure fluctuation.  This means constant pressure with no EPR.

I suggest your mean as a good place to try so set a range of 10-10 cmH2O

Fred

Fred...what stuck out at you when you glanced at the charts to see an ASV is likely the next step? Is it the CA's or are there specific patterns you see?

Thanks!
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#6
RE: Hosed up for 6 weeks now
I agree with the above assessments. Practically all of your events are CA events and you are getting a lot of them.

I would also suggest an ASV machine may be in your future. Failing that, Fred's advice about using one constant setting and eliminating EPR is also spot on as a stopgap measure.
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#7
RE: Hosed up for 6 weeks now
What I saw was a lot of CA events that were not in an awake period (and thus ignore).  The fact that 6 weeks of this were part of the stated history.  Thus less likely to clear in time (Generally a 3 month period, part of the MAY need determination).



What remains determining if the CA is considered bad enough to warrant an ASV  (CA index is under 5)

Fred
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#8
RE: Hosed up for 6 weeks now
I suspect since his AHI is under 5, they will fight him on getting an ASV...
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#9
RE: Hosed up for 6 weeks now
(09-13-2017, 04:29 PM)Marillion Wrote: I suspect since his AHI is under 5, they will fight him on getting an ASV...
agreed
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#10
RE: Hosed up for 6 weeks now
Interesting reading the responses, as the very good advice I have had previously ASV may be needed. The events have come way down though so this 3 month bedding in period actually has some traction as I just thought it was a fob off. I have tried fixed pressure for a week but it made no difference to the events and I also turned EPR off but I didn't feel comfortable so I put it back on.

I have an appointment in 3 weeks with the doctor and I will see what he says, I am quite happy to purchase a machine if its the correct therapy for me but with ASV I presume this is slightly more difficult because of the potential health implications?

One quick mention, early on I suffered with leaks and did the newbie mistake of strapping the mask so tight to my face that it could have featured in playing a part in an alien film! The mask primer in Bonjours link is invaluable in making the mask comfortable so if you are new and reading this take some time to digest the article.
Thanks

Thanks again to all and this forum for the valuable advice.
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