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How to make the best of it?
#11
RE: How to make the best of it?
There is no certainty but w the EPR set to 3 and w the events scattered across the night some what randomly it is what I have seen that usually indicates treatment-emergent.

If there are pre existing Centrals of number I may not be able reduce them as much as I would like but an EPR if 3 should not be the initial setting for someone with preexisting centrals.
Either way this is the best shot at significantly reducing the Centrals
Fred Bonjour - Project Manager and Lead Tester for OSCAR - Open Source CPAP Analysis Reporter

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#12
RE: How to make the best of it?
Quote:Either way this is the best shot at significantly reducing the Centrals

Agreed.
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#13
RE: How to make the best of it?
(10-07-2019, 09:45 PM)Dormeo Wrote: Schlafer, you can change your settings yourself, even if you are locked out.  How would you feel about doing that?  More information here:

/adjust-cpap-pressure/change-cpap-pressure-settings-adjusting-your-machine-with-a-clinician-setup-manual

Hey yeah - 
I did spot the great tips on how to get at the settings, and will likely use those in the future when I have my own device. Right now, it's being remote controlled by the provider/doctors as part of some regimented treatment process. Even if I changed it, they might just change it back - or say I messed up the routine. I'm pretty sure I need to stick to asking them to make adjustments at their discretion for now. 
Thanks!
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#14
RE: How to make the best of it?
Epr is considered for patient comfort so they should not complain if you turn it off but we are happy with your choice either way
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#15
RE: How to make the best of it?
(10-08-2019, 04:35 PM)jaswilliams Wrote: Epr is considered for patient comfort so they should not complain if you turn it off but we are happy with your choice either way

And just so I'm clear, lowering the EPR from 3 to 1, or even 0 will make it less comfortable (need to exhale against the full pressure)?
I'll update if I can get that changed, or my sleep studies.
Thanks!
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#16
RE: How to make the best of it?
Just to be clear, lowering the EPR from 3 to 1, or even 0 will likely reduce both your overall AHI and your CAI (CentralApnea Index) and therefore interrupt your sleep less through the night.
Fred Bonjour - Project Manager and Lead Tester for OSCAR - Open Source CPAP Analysis Reporter

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#17
RE: How to make the best of it?
Update for the thread:
- I just got and attaching a copy of my original sleep study, prior to any treatment, with an AHI of 69.9, RDI = 74.9 and O2 levels as low as 67%  Thinking-about
- Also attaching some more current stats, after 10 week of CPAP, with AHI closer now to 6 or 7, but still with periodic clusters of CA events as high as 20-40/hr
- I also had a recent titration study, but report is not available yet. Verbally, they said the AHI was 0.3....which is odd since I've never been that low at home.

Thanks!
S

   
   
   

   
   
   
   


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#18
RE: How to make the best of it?
Real simple. In your case central apnea was present at a rate of 10.4 with mixed apnre at 4.4 and hypopnea over 30. Obstructive apnea was 25.4 per hour. You may have obstructive apnea as a component of your sleep disrdered breathing, but this test shows complex sleep apnea before treatment, and the centrals may not or may not respond to CPAP. It is clear that CPAP has resolved all of the obstructive apnea, and most of the hypopnea and central events, but we won't know if CPAP is your solution until you stop using EPR.
Sleeprider
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#19
RE: How to make the best of it?
(11-12-2019, 07:39 PM)Sleeprider Wrote: Real simple. In your case central apnea was present at a rate of 10.4 with mixed apnre at 4.4 and hypopnea over 30. Obstructive apnea was 25.4 per hour.  You may have obstructive apnea as a component of your sleep disrdered breathing, but this test shows complex sleep apnea before treatment, and the centrals may not or may not respond to CPAP.  It is clear that CPAP has resolved all of the obstructive apnea, and most of the hypopnea and central events, but we won't know if CPAP is your solution until you stop using EPR.

Hi Sleeprider,

Thanks to you & all for the quick review and responses - some which I won't fully understand until I read more.
However, I can say that based on advice here, I asked my provider to remove the EPR entirely a couple weeks ago. It's been zero since Oct 31st, with a constant pressure of 6.0. I can't say I see or feel any difference yet, other than this morning which the closest I can recall to being "rested".

Thanks,
-S-
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#20
RE: How to make the best of it?
Closest to being rested seems like it's missing the mark a bit. AHI still above 5, barely, but it's not actually treated yet.
Dave

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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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