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How to make the best of it?
#21
RE: How to make the best of it?
(11-12-2019, 09:13 PM)SarcasticDave94 Wrote: Closest to being rested seems like it's missing the mark a bit. AHI still above 5, barely, but it's not actually treated yet.

Exactly. 
In fact the data my Dr had was missing the latest 2-3 weeks - so the average AHI he was reading was 13.5, and I told him clearly that I was not rested, did not feel any better than before the treatment started 10 weeks ago. His prescription was to continue as-is, drop the constant pressure from 6.0 to 5.0, and wait and see.

As discussed in another thread, because the 13.5 average was mostly CA events ~ 10 or so, he does not really count the CA at that level (He says to "ignore CA up to about 10/hr"), despite my concern about higher clusters. As long as OA events are near zero, he was satisfied. He didn't say "you are treated", but he seemed unconcerned and didn't expect I'd need another appointment for a year. Don't get me wrong - he is very friendly and professional, but I'm concerned he doesn't take central apnea as seriously as obstructive.

So anyway, I'm currently left hoping that the CA clusters go away "naturally" with good sleep hygene, because there's no indication I'll be going to a more advanced machine in the near term.

-S-
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#22
RE: How to make the best of it?
Schlaer, I'd like to recommend that we merge your two threads. Both are now discussing the same problem. You need to move forward in your therapy to a titration study for bilevel with an ASV endpoint, and you will probably need a new doctor to get there. Fortunately you have your sleep study results.

Please let me know if you're okay with merging the two threads with the new title "Optimizing CPAP Therapy For Residual Central Apnea"
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#23
RE: How to make the best of it?
(11-13-2019, 08:20 AM)Sleeprider Wrote: Schlaer, I'd like to recommend that we merge your two threads. Both are now discussing the same problem.  You need to move forward in your therapy to a titration study for bilevel with an ASV endpoint, and you will probably need a new doctor to get there. Fortunately you have your sleep study results.

Please let me know if you're okay with merging the two threads with the new title "Optimizing CPAP Therapy For Residual Central Apnea"

Of course, certainly - thanks!

I thought it would be possible to post the generic question without it being specific to my personal history, but in the end people likely want more context anyway.
-S-
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