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Howdy fellow Hose Heads! Doc is tweaking my settings
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MsDixie Offline

Preferred Members

Posts: 37
Joined: Apr 2013

Machine: REMstar Auto A-Flex system One
Mask Type: Nasal pillows
Mask Make & Model: Bella Swiift FX
Humidifier: Respironics System One / heated hose
CPAP Pressure: 9
CPAP Software: EncoreBasic Compliance Manager

Other Comments: Have tried the Swift FX , Wisp Nasal mask, now Bella Swift

Sex: Female
Location: Mississippi

Post: #1
Grin Howdy fellow Hose Heads! Doc is tweaking my settings
I've not posted in a bit but maybe some remember me Smile
I was last still having some issues with my AHI

After 2 weeks of 100% days of no leaks my AHI was swinging from 3.6 to 20
Average of 6 - 9

My compliance is 99% 4>

I have not rested well with exception of a few days since starting therapy close to 2 months.

I wake numerous times throughout the night, often to use bathroom - I am waking more since on therapy than I was before Oh-jeez

Sleep doc is having my machine set to auto at a setting of 5 - 15 and revisit in 30 days.

The med supply people/ RT lost my last card ! Yes they LOST it! They came up with one brief sheet to give my Dr and honestly I'm not even sure it was my info as it did not line up with mine on hand.

Doc and I discussed this and I told him about the soft wear I am using and ask his thoughts. He was very happy that I am participating in my therapy and even ask for me to bring copies for him to look at my next visit, rather than us depending on the med supply people. All they seem to focus on is compliance anyway, and the software as y'all know is much more detail that can help my Doc.
I told him I was happy he was not upset with me doing this and he smiled and said hey, it's the future! He is such a great guy I'm blessed to have him!

Ill update at my progress - wish me well and sound sleep!!

Sleep-well

Your hose head buddy :-)
06-06-2013 10:08 AM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: Howdy fellow Hose Heads! Doc is tweaking my settings
Hi MsDixie,
Sounds like you have a GREAT Dr.
Maybe with his help, you can find pressure settings that will work for you.
Thanks for posting your update, good to hear from you.

trish6hundred
06-06-2013 10:17 AM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #3
RE: Howdy fellow Hose Heads! Doc is tweaking my settings
Welcome back MsDixie!

Med supply lost your card hmm?
It's hard to find good help, isn't it?
*nods*
I would lean on them hard though. It's not like you can get with Sherman & Mr. Peabody, take the Wayback machine back in time
to re-acquire all that data.
...Boneheads...

Hope it all works out ok for you though, glad the Doc is working with you on this project.


Cheers & Good Luck as always!

Smile

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
06-06-2013 10:17 AM
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MsDixie Offline

Preferred Members

Posts: 37
Joined: Apr 2013

Machine: REMstar Auto A-Flex system One
Mask Type: Nasal pillows
Mask Make & Model: Bella Swiift FX
Humidifier: Respironics System One / heated hose
CPAP Pressure: 9
CPAP Software: EncoreBasic Compliance Manager

Other Comments: Have tried the Swift FX , Wisp Nasal mask, now Bella Swift

Sex: Female
Location: Mississippi

Post: #4
RE: Howdy fellow Hose Heads! Doc is tweaking my settings
Thanks good to hear from y'all

They did pull the last week on my current card and had the first 14 days of my use but lost a critical month of data from in between. Their one sheet report repressed entire period..
I have encore software it shows day by day and charts doc is more interested in this info and me too.
I think it is so incompetent #1 for them to have lost my card! And #2 the only report they provide is a one sheet summery of over all average. I'm not satisfied with that as if I have AHI of 20 one night and 3 the next I want to know why and how to fix it!

Med supply and the RT is totally unimportant to me from here on,I only need to hear from them when my Doc has changed something or I need supply's. from what I've read it's hard to find a good one so since my Doc will treat by my reports, I'm not wasting my time with them, in regards to my therapy they go on the back shelf ;-)
06-06-2013 10:37 AM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #5
RE: Howdy fellow Hose Heads! Doc is tweaking my settings
I think that if you put a new card in the machine, it will re-write all that lost data from the other card.

And yes, all most docs and suppliers are interested in is compliance. You have a good doc! Keep him!

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
06-06-2013 03:42 PM
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Homerec130 Offline

Advisory Members

Posts: 444
Joined: Mar 2012

Machine: Philips/Resperonics BiPAP auto SV Advanced System One (950P)
Mask Type: Full face mask
Mask Make & Model: ResMed Quatro FX
Humidifier: Philips Respironics System 1
CPAP Pressure: 6-16
CPAP Software: SleepyHead

Other Comments: But it is a dry heat.

Sex: Male
Location: Tucson, AZ

Post: #6
RE: Howdy fellow Hose Heads! Doc is tweaking my settings
My last machine when I put the card in, it fell between the slot and the case of the machine. The DME folks said they would send me a new card - never did. Instead, they went bankrupt. New machine works great with the card.
06-06-2013 09:45 PM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #7
RE: Howdy fellow Hose Heads! Doc is tweaking my settings
You can buy the SD cards from drug stores, office depot, staples & Wal-smarts for a few dollars.
There is nothing special about them.
Just get the 2gb size ones. Larger size is not needed.

Wink

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
06-07-2013 09:17 AM
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