Hello AuntElizabeth and welcome to Apnea Board.
I agree with you that attitudes like thou-must-submit-and-keep-your-mouth-shut are ridiculus. All the research shows that the number one problem with CPAP therapy is that many patients find compliance difficult, so you are by no means in the minority. That same research shows that counseling and support are critical to success. Some health providers understand this and attempt to provide that support, others just want to sell you the equipment so they can collect their money.
This is where Apnea Board comes in. We try to fill in that gap and provide that support network for people like you and me who hit CPAP therapy like a brick wall. We can help you navigate the medical system and figure out ways to help make your therapy successful.
When it comes right down to it, CPAP therapy is a fight for your life. Without it we'll live miserable sleep-deprived lives and die early of a heart attack or stroke. Before I got diagnosed I was going insane with anxiety and headaches. Therapy helped with the anxiety but CPAP therapy was the real cure. I'd had the headaches for 30 years and CPAP therapy appears to be curing them, too. I've been at it for 15 months. The first six weeks was the hardest part. I started to notice some improvement within the first week, but it was miniscule. Since then things have continued to improve at a very slow rate. Those improvements have accumulated, though, and I would never want to go back to the way things were before I started CPAP therapy.
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Hi AuntElizabeth and WELCOME! to the forum.
What Sleepster said.
I know how difficult CPAP therapy can be as I watched my mom deal with it. She rebelled against her machine for quite a while, but, to be fair to mom, she had a "brick," (a machine that is not data capable,) and the technology wasn't as good as it is today either. She had a "Respironics DS100S."
Hang in there and best of luck to you with your CPAP therapy.
A tip on the tasks needed before going to bed... I clean the mask and set it up in the morning after I get up. All I need to do tip a bit of water in the humidifier if I think I will need to use humidification. That means I can just drop into bed and go to sleep without mucking around.
Thanks for the advise on washing mask first thing. Trying to wrangle mask cushions from the DME is complicated. For instance, I got the new cushion on 1/18 and she's making me wait until 2/20 before I can get another one. But, that's another story.