Post Reply 
I am 'anemic'. Any tips or ideas, thoughts?
Author Message
Peter_C Offline

Advisory Members

Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #1
I am 'anemic'. Any tips or ideas, thoughts?
Some of you may be aware of my recent hospital trip - the short version is I am on blood thinners for life, and bout 5-6 weeks ago my blood went too thin (we caught it), and I started bleeding internally - finally caught that, and so now am slowly on the mend. Slowly being the key word it seems.

A few facts;
INR is the blood test to see how 'thin' your blood is, the goal for me is to stay between 2.0 and 3.0 - the too high number was 4.84

I didn't get the name of the test for anemia, but for a person like me, the goal is to be between 11.5 and 12.5 I was found at 8.2 after a pint of blood I went to 9.2, when I left the hospital I was 9.4, and I had blood work done just the other day and I am currently 9.6

Because of the internal bleeding, they have taken me off aspirin and celebrex (both are NSAIDs), so I am left with nothing but pain meds to deal with my OA and other joint issues. They also now have me taking 'iron' on a daily basis to help bring my numbers up.

To be clear, yes I am fully under my Doctor's care, and am following his instructions.

My problem is I feel dead-tired all the time, and am sleeping around 18-20hrs a day right now. Has anyone else had something like this happen, and if so, how long did it take you to get back to somewhat normal? It's sort of a good thing, but I am also not eating at all - no appetite whatsoever, nothing tastes good

Is all of this because of the anemia, or in combo with all my other issues? Any thoughts, feedback, stories, etc would help me a bit here...

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
01-10-2014 10:40 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
DocWils Offline

Members-b

Posts: 1,271
Joined: Jul 2012

Machine: Philips Remstar series 60
Mask Type: Nasal pillows
Mask Make & Model: ResMed P10
Humidifier: same as machine
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Switzerland

Post: #2
RE: I am 'anemic'. Any tips or ideas, thoughts?
This is from the cascade of problems (and the treatments). Give it some adjustment time. Once your blood values have return to norm or near norm, and you have adjusted to your regime, you should feel a bit better and food should taste again. Sorry for your discomfort.
01-11-2014 04:36 AM
Find all posts by this user Post Reply Quote this message in a reply
Peter_C Offline

Advisory Members

Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #3
RE: I am 'anemic'. Any tips or ideas, thoughts?
Heh - losing weight by any method is cool for me Smile

My big concern is the loss of any form of NSAID now. I do what the Doc says, but my hands are really suffering from the loss of the celebrex and aspirin (Celebrex may be a 'weak' NSAID, but it sure is better than nothing). I know there is a lot going on with me (lots of different issues), but any *guess* how long this general malaise will last? A week, or a month or??

It's almost like when I had mono some 30yrs ago...

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
01-11-2014 03:57 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
DocWils Offline

Members-b

Posts: 1,271
Joined: Jul 2012

Machine: Philips Remstar series 60
Mask Type: Nasal pillows
Mask Make & Model: ResMed P10
Humidifier: same as machine
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Switzerland

Post: #4
RE: I am 'anemic'. Any tips or ideas, thoughts?
I can't really guess, but normally the body needs to readjust, rebuild the way it works after some component is added or subtracted - give around two weeks for the old meds to clear your system, around the same again for a new adjustment level to be achieved, if you have had any method of iron enrichment, including transfusion, it takes a few weeks to kick start it fully. More or less you have been through the mill, and in terms of the body's internal workings, you have had the crap beaten out of you first by the meds, the anaemia and the bleeding, then by the transfusion and it will take time for things to get better. Hang in there.

One old wive's remedy for anaemia that in at least in Switzerland we give some credence to is celery and celeriac. Beets are out for you due to the acid, alas.

Without non steroidal anti-inflammatories, the body needs to manufacture components that do the same job, unfortunately, here is where it gets tricky, and the clue for you, if you haven't done it yet, is to get rid of any strong acids or bases in your diet, especially red meats (white meats are fine). If your body can't reduce the inflammation that way, then you would have to go on low dose steroids. Osteoarthritis is a bitch, I know, because I have it, and it is getting worse in my hands and feet (thank goodness I no longer operate!) and spine and the best counter attack, besides diet, is exercise, not only general cardio stimulation, but direct to the muscles and joints affected,so in the hands that means finger and hand exercises and hand magic - I knew one person who became quite adept at sleight of hand and coin rolling (passing the coin over and under the knuckles) for his arthritis, and it worked quite well, actually - the work builds up the muscles that then keep the joints more separated, and help to stimulate lubrication of the joint. My auntie Bertha was crippled with it in her hands in her 60's until she went macrobiotic, and then she was relieved of the suffering until her death at 91.

So, diet and exercise will be your best recourse, but of course, your doc is advising you of the same thing and getting you the appropriate guidance, I am sure.
01-11-2014 06:27 PM
Find all posts by this user Post Reply Quote this message in a reply
Peter_C Offline

Advisory Members

Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #5
RE: I am 'anemic'. Any tips or ideas, thoughts?
Actually did not bring up diet mods in relation to losing the NSAIDs (his focus is on weight loss for me by almost any means - LOL) - I may have mentioned this before, but for three years now I have been riding a recumbent trike, and the results have really surprised the heck out of me! I got the trike just after my knee replacement, and was actually riding 3 miles a day 3-4 weeks after my hip replacement. Am bouncing between 1500-2500 miles a year - just not much in the current cold weather - but yes, the riding itself got me off three different meds, and my heart DR waved good-bye to me too Smile

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
01-11-2014 09:27 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
DocWils Offline

Members-b

Posts: 1,271
Joined: Jul 2012

Machine: Philips Remstar series 60
Mask Type: Nasal pillows
Mask Make & Model: ResMed P10
Humidifier: same as machine
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Switzerland

Post: #6
RE: I am 'anemic'. Any tips or ideas, thoughts?
See, weight loss and exercise DO work! So glad to hear it having an effect on someone - I nudge my patients about this and get "yeah, yeah, yeah" ("Ja, Ja, Ja" actually). In this case, though, diet refers not just to how little you eat, but what mix of foods you use, and here it gets more tricky - I cannot say how it works in the US, here we have specialists for such things, but you might need to get advice on how to do low acid and low base diets, with the goal of reducing internal triggers to inflammation via your diet (remember my aunti Bertha?). Sometimes it is one trigger, a base or a carb, like in colon based disorders, often for osteo arthritis you need to reduce the acid load heavily, sometimes, as in your case, you need both sides dealt with, in order to remove as many inflammatory factors as possible - it makes things rather bland, but it works and need not be permanent. Again, marcrobiotic diets sometimes seem to work, but everybody is quite individual, so you really need to experiment a bit to find the right combo for you.

We have magic clubs here that people go to to learn finger magic, and magicians can earn a living teaching it to patients with arthritis in the hands - the other thing if course is heat, and here you have a few choices, ranging from wax wraps to Absobine Athritis preparation, although I find it way too hot and burny, but on an affected area it can provide real warmth for a long time (just be careful about touching it to any other part of your body - it BURNS!). I have a few bottles of it I brought back from a trip to Canada a while back, they don't sell it here, but then again, here we use something called Sportusal Gel, which contains DMSO, which in North America is not licensed for human use (you rub it on race horses there), and it really works well, although you start to smell of garlic after a while, and Viperosal, which contains viper poison, again not allowed in your country but very effective (actually I get it from Hungary, since they don't stock it here, but you would be surprised at the number of people who go to Hungary for dental work and the like, so shopping trips there are pretty common). We use a lot of herbal medicine here, and wallwurz (comphrey) creams and compresses are common for arthritic joints Hot mustard honey wax wraps are also popular and effective.
01-12-2014 05:55 AM
Find all posts by this user Post Reply Quote this message in a reply
Peter_C Offline

Advisory Members

Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #7
RE: I am 'anemic'. Any tips or ideas, thoughts?
Because of all the meds I am on, I was told flat-out that I am not allowed to use *any* over-the-counter stuff without clearing with my PCP first - due to risk of interactions. He is a "DO", yet frankly said I have too much going on that he's gonna tell me no to anything at this point for at least 90 days. Sadly, my fingers are cramping, locking, massive red swelling that is gone overnight - so I am whining and crying. I've lost 19lbs since the beginning of the year and am back to last summer's low of 311 pounds. Lousy way to lose it, but will take what I get.

As for the riding/exercise - to be honestly blunt, in 2009 my heart DR was seeing me weekly and said if I didn't get my knee replaced, and get on my feet I would not see 2010. Left knee replaced 11/09, and I started riding 02/2010 at 378lbs. Shoulder rebuilt 07/10, right hip replaced 06/11. I can't walk 100 yards easily, but I can ride my trike (slowly) all day long, and do a 40 mile ride just enjoying the sights. Some 2200 miles in 2012, but not so good in 2013. I hope to do 2500 miles in 2014.

It's hard to change, to stop the habits of so many years, but I would actually like to be around for a while longer, so I got stuff to do to improve my chances. Thank God I love riding. It's not exercise to me, I ride as a reward for all the crap I have gone through.

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
01-12-2014 08:09 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
me50 Offline

Advisory Members

Posts: 2,559
Joined: Aug 2013

Machine: resmed S9 VPAP Auto
Mask Type: Nasal mask
Mask Make & Model: Wisp and Silicone Head gear
Humidifier: resmed H5i
CPAP Pressure: 18/8
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location: USA

Post: #8
RE: I am 'anemic'. Any tips or ideas, thoughts?
(01-12-2014 08:09 PM)Peter_C Wrote:  Thank God I love riding. It's not exercise to me, I ride as a reward for all the crap I have gone through.
Glad you reward yourself with something you love to do.

We can't safely ride around here as the city streets are not equipped for it and nobody is allowed to ride on the sidewalks.
01-12-2014 08:21 PM
Find all posts by this user Post Reply Quote this message in a reply
DocWils Offline

Members-b

Posts: 1,271
Joined: Jul 2012

Machine: Philips Remstar series 60
Mask Type: Nasal pillows
Mask Make & Model: ResMed P10
Humidifier: same as machine
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Switzerland

Post: #9
RE: I am 'anemic'. Any tips or ideas, thoughts?
I doubt that any topical lotions will interact with any meds you take internally, but you can ask your pharmacist. For the most part, it can't penetrate deep enough to enter your blood stream to do anything that can effect your med routines. Still, always check at the counter with the pharmacist on anything you try.
01-12-2014 08:29 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Peter_C Offline

Advisory Members

Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #10
RE: I am 'anemic'. Any tips or ideas, thoughts?
(01-12-2014 08:21 PM)me50 Wrote:  
(01-12-2014 08:09 PM)Peter_C Wrote:  Thank God I love riding. It's not exercise to me, I ride as a reward for all the crap I have gone through.
Glad you reward yourself with something you love to do.

We can't safely ride around here as the city streets are not equipped for it and nobody is allowed to ride on the sidewalks.

I am blessed with multiple "MUPs" Multi User Trails close by to me. My favorite is almost 80 miles long and is mostly limestone so the zoomies' tend to stay off it.

As much as I hate lotions, etc - it sounds like I need to go chat with my pharmacist (who knows me by name - how sad) and give some stuff a try. I just can't keep my hands this way!


DUMB medical question? Being 'anemic' (9.8 bout 6 days ago) and starting iron pills - very bad dizzy speels 40-50 seconds after standing, with O2 dropping into the 60s (causing open mouth panting, then everything magically becomes normal after 30-40 seconds?? Just life, my changes, etc? OR - call my PCP? (I hate to call and be dumb all the time) If this is crossing a line, I AM sorry, and do not bother to answer DocWils.

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
01-13-2014 12:51 AM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Linux kernel upgrade ideas requested Crimson Nape 8 275 09-14-2016 02:12 PM
Last Post: srlevine1
  My thoughts go to fellow PAPers ... ImaSurvivor 0 496 07-23-2014 08:56 AM
Last Post: ImaSurvivor

Forum Jump:

Who's Online (Complete List)