Post Reply 
I am so angry at "the system" right now.
Author Message
Want2SleepInMT Offline

Preferred Members

Posts: 47
Joined: Dec 2015

Machine: DreamStaion Auto
Mask Type: Nasal mask
Mask Make & Model: Wisp (S/M) Or DreamWear (M frame/S pillow)
Humidifier: DreamStation
CPAP Pressure: 7-18 (auto)
CPAP Software: EncorePro

Other Comments:

Sex: Female
Location: Big Sky Country

Post: #1
I am so angry at "the system" right now.
I just had another pointless follow up with the PA at our sleep clinic. She has known since the morning after I changed my settings, the exact same time that my DME found out. Now, today, she wanted to force me back to straight pressure, which, works for some, but leaves me waking up feeling good some days, and like a mac truck hit me on others. There is no point in continuing if the "treatment" I am forced into makes me feel worse than I ever did before starting on this road. She was mad that I "didn't call her" to get the issues worked out. Now, part of me is afraid I'll be marked "non compliant" and be screwrd.

"I am not a Doctor, but I DID stay at a Holiday Inn Express last night.Coffee
04-07-2016 09:57 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
FrankNichols Offline

Advisory Members

Posts: 714
Joined: Mar 2016

Machine: AirSense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed F10 and/or P10
Humidifier: Builtin
CPAP Pressure: 17-19
CPAP Software: ResScan SleepyHead Other Software

Other Comments: I've figured out how to get my AHI down to 5, I quit sleeping!

Sex: Male
Location: Live Oak, Florida

Post: #2
RE: I am so angry at "the system" right now.
I am sorry for the difficulty you are having. I would suggest that it might be in your best interest to bite your tongue and play nice with your doctor until after the compliance test is completed. I would discuss with her why you were concerned with the original settings not working and how the two of you can get back on track. Playing by the rules most often results in getting what you want in the long run, being right is not always the best policy when going up against the system.

I am not a Medical professional and I don't play one on the internet.
Started CPAP Therapy April 5, 2016
I'd Rather Be Sleeping
04-07-2016 10:02 AM
Find all posts by this user Post Reply Quote this message in a reply
AlanE Online

Advisory Members

Posts: 1,496
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #3
RE: I am so angry at "the system" right now.
She can mark you non-compliant but she would be lying since your machine says you have been using it >4 hours a night for more than 70% of the time during the compliance period. They can't change that on your machine.



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
04-07-2016 10:21 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #4
RE: I am so angry at "the system" right now.
(04-07-2016 09:57 AM)Want2SleepInMT Wrote:  I just had another pointless follow up with the PA at our sleep clinic. She has known since the morning after I changed my settings, the exact same time that my DME found out. Now, today, she wanted to force me back to straight pressure, which, works for some, but leaves me waking up feeling good some days, and like a mac truck hit me on others. There is no point in continuing if the "treatment" I am forced into makes me feel worse than I ever did before starting on this road. She was mad that I "didn't call her" to get the issues worked out. Now, part of me is afraid I'll be marked "non compliant" and be screwrd.


How long have you been on Cpap therapy? Compliance must be met within the first 90 days.

To meet compliance rules, you must show that you have used the device at least 4 hours per night on 70% of nights for a 30 day consecutive period during the first 90 days after starting treatment. You must also have a face to face doctor appointment anytime after the first 31 days, but before the 90 days is up.

Nowhere does compliance have anything to do with changing pressure settings. Your insurance could care less.

You are being bullied by your doctor/PA/sleep clinic. Sad

Now if you haven't met compliance, and if insurance is paying, they can take your machine back. So you do have to play their game (to some extent) untill the compliance period is over.

OpalRose
04-07-2016 10:22 AM
Find all posts by this user Post Reply Quote this message in a reply
bwexler Offline

Advisory Members

Posts: 563
Joined: Mar 2012

Machine: PRS 1 BiPAP autoSV Advanced, with Heated Tube humidifier
Mask Type: Nasal mask
Mask Make & Model: Sleepweaver Élan
Humidifier: Resperonics Heated Tube humidifier
CPAP Pressure: Max pressure 25.0 cm H20, Max
CPAP Software: SleepyHead EncorePro

Other Comments: CMS 50i with Software for SpO2

Sex: Male
Location: San Marcos, CA, USA

Post: #5
RE: I am so angry at "the system" right now.
My wife would advise me to play nice with the PA.
My wife would be too late with that advice because I would have already put that PA in her place. I always start out polite and gentle. But, if she didn't come around to my way of thinking, she might leave the room in tears. When I know I am right and it is important to get what I want, I won't take no for an answer
04-07-2016 10:43 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PoolQ Offline

Advisory Members

Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Sillicon Valley

Post: #6
RE: I am so angry at "the system" right now.
It's an iffy thing, working with medical "professionals". I went the same route and changed my prescription pressure, it was explained kind of like this:
1. This is the same as changing the dose for a prescribed medicine
2. It makes it very difficult for me (the Doctor) to treat you if I have no idea what your settings have been
3. There is a reason I chose those settings

Part of it is a matter of professional curiosity on MY part. What I started doing was sending the office an email about what was going on and to my surprise, after the long waits for most things, got an appointment the same week to go over my treatment.

All Doctors are different and take a different interest in our treatment. I decided that if I am going to ask my Doctor to treatment then I should do what they ask, give feedback, and ask before I change something-or change Doctors.

My father in law changes his dose and even has been known to stop some medications based on how he is feeling at the time. This totally drives me nuts and he does not tell his Doctor. So I decided that if this drives me nuts, then I should not change my prescription settings without at least telling my Doctor, in advance what I wanted to do and why. My Doctor is a good one and I want to keep him.

As for compliance, see above- they have posted the rules.
04-07-2016 12:00 PM
Find all posts by this user Post Reply Quote this message in a reply
FrankNichols Offline

Advisory Members

Posts: 714
Joined: Mar 2016

Machine: AirSense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed F10 and/or P10
Humidifier: Builtin
CPAP Pressure: 17-19
CPAP Software: ResScan SleepyHead Other Software

Other Comments: I've figured out how to get my AHI down to 5, I quit sleeping!

Sex: Male
Location: Live Oak, Florida

Post: #7
RE: I am so angry at "the system" right now.
(04-07-2016 12:00 PM)PoolQ Wrote:  It's an iffy thing, working with medical "professionals". I went the same route and changed my prescription pressure, it was explained kind of like this:
1. This is the same as changing the dose for a prescribed medicine
2. It makes it very difficult for me (the Doctor) to treat you if I have no idea what your settings have been
3. There is a reason I chose those settings

Part of it is a matter of professional curiosity on MY part. What I started doing was sending the office an email about what was going on and to my surprise, after the long waits for most things, got an appointment the same week to go over my treatment.

All Doctors are different and take a different interest in our treatment. I decided that if I am going to ask my Doctor to treatment then I should do what they ask, give feedback, and ask before I change something-or change Doctors.

My father in law changes his dose and even has been known to stop some medications based on how he is feeling at the time. This totally drives me nuts and he does not tell his Doctor. So I decided that if this drives me nuts, then I should not change my prescription settings without at least telling my Doctor, in advance what I wanted to do and why. My Doctor is a good one and I want to keep him.

As for compliance, see above- they have posted the rules.

I totally agree with this approach. Also, my experience is that getting up in people's face is not often conducive to a good working relationship.

As a consultant my entire career it always drove me crazy when people would pay me to study a problem and make recommendations and then ignore those recommendations. The way I see it is I pay an expert (the doctor) for their knowledge. If I disagree with their conclusion then I discuss it with them and try to understand why they are prescribing what they are. If they do not want to discuss it, I find a new doctor.

Oh, and I thought part of compliance test was that the treatment has to be effective? At least I am pretty sure, Medicare will not continue paying after the first 3 months if the treatment is not working.

I am not a Medical professional and I don't play one on the internet.
Started CPAP Therapy April 5, 2016
I'd Rather Be Sleeping
04-07-2016 12:26 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
justMongo Offline

Monitors

Posts: 3,853
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #8
RE: I am so angry at "the system" right now.
After 6.5 years on PAP, not once have I been asked for data from my machine.
They cannot see it remotely like on some of the newer machines.

I see my doc on a 6 month schedule to keep my Rx current so I can order supplies.
My usual visit is: How do you feel? - Do you need any supplies? - See you in 6 months.
If it wasn't for a mask requiring an Rx, I'd not visit the doc at all.

As for interaction with medical people, a patent has a right to be spoken to in a polite manner; not brow-beat into submission.
(That works both ways.)

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
04-07-2016 12:40 PM
Find all posts by this user Post Reply Quote this message in a reply
FrankNichols Offline

Advisory Members

Posts: 714
Joined: Mar 2016

Machine: AirSense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed F10 and/or P10
Humidifier: Builtin
CPAP Pressure: 17-19
CPAP Software: ResScan SleepyHead Other Software

Other Comments: I've figured out how to get my AHI down to 5, I quit sleeping!

Sex: Male
Location: Live Oak, Florida

Post: #9
RE: I am so angry at "the system" right now.
(04-07-2016 12:40 PM)justMongo Wrote:  As for interaction with medical people, a patent has a right to be spoken to in a polite manner; not brow-beat into submission.
(That works both ways.)

Absolutely agree.

I am not a Medical professional and I don't play one on the internet.
Started CPAP Therapy April 5, 2016
I'd Rather Be Sleeping
04-07-2016 12:44 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
sdb7802 Offline

Advisory Members

Posts: 199
Joined: Jan 2016

Machine: PR DreamStation Auto
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: built-in with heated hose
CPAP Pressure: 9.5-14 C-Flex 3
CPAP Software: SleepyHead

Other Comments: Retired Electrical Engineer; began using cpap in 2001; FlashAir wifi card and FlashPAP app

Sex: Male
Location: Georgia, USA (The Margravate of Azilia)

Post: #10
RE: I am so angry at "the system" right now.
Some doctors use a cookbook approach and can't cope with deviations. Some are way in over their heads.

Just my personal opinion. My posts are not medical advice or a statement of fact. Please consult a qualified physician or other qualified medical personnel. Please comply with all applicable laws, codes, regulations, and protocols.
04-07-2016 12:57 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  PR System One: C-Check vs Auto? Ailu 8 3,018 11-29-2016 02:04 PM
Last Post: TonyJ
  Philips system one noisy jpsantell 2 266 10-29-2016 10:54 AM
Last Post: robysue
  CPAP cleaning system Tommy C 97 62,866 10-20-2016 05:35 PM
Last Post: PaytonA
  Pilot-24 CPAP Battery System from Medistrom sonicboom 15 4,577 09-16-2016 11:07 AM
Last Post: DSchabel
  Remstar System One Resistance system holden4th 5 442 08-09-2016 10:17 AM
Last Post: green wings
  Advise please - navigating US health system for a sleep study Carbon 16 1,118 07-21-2016 11:49 PM
Last Post: ED OF SO CAL
  System One + Flash Air WiFi + Modem? Will it all work? marc31 4 324 07-18-2016 11:58 PM
Last Post: DariaVader

Forum Jump:

Who's Online (Complete List)