(10-11-2014 10:16 AM)Doc J Wrote: Welcome back to nose breathing, I too had not been there for a long time. The nasal mask is great if you can keep your mouth shut. I like most would over tighten my full faced mask and have great pain from it. On the whole pressure range thing, if you find the average pressure it is going to is say 11 then you don't really want it trying to go down to 4. So once you find the average you could bring the lower setting up to 2 or 3 below. It will work that way it is but some people find 4 very low like your not getting any air.
The DME said that I wouldn't be able to change the pressures myself. They had to adjust it. Is that true? Or, is there a work-around so that I can go in and make those changes?
The first night it said that I average 9.5 pressure. Last night it averaged 12.5.
(10-11-2014 04:20 PM)Galactus Wrote: Glad to hear you are progressing, the getting started is the hardest part, it is all downhill from there.
Just for the next time you see him and he doesn't believe you just tell him respironics system one 200 60 series unit, a brick. The only data it records is compliance data. Unfortunately for me I did not find any help like this board till I was almost 2 months in and could not get them to exchange the unit. Not only a brick but straight CPAP at 18 pressure was my initial setting. When I called after 6 months and told the Dr (or his nurse I should say) that I wasn't feeling better and had bloating headaches etc., they sent through an order to lower my pressure by 4. They had no efficacy data, they had no real information just my complaint and they were just going to lower it...... I smelled something funny and I had just taken a shower. And no it wasn't retired guy either, he's too far away to smell him. So I started asking if anyone thought this was odd, and that was my turning point. I bought a BiPAP and now I know it is working 13/20 and I can see the data and I can see some nights IPAP is even at 19, so the hell with this "They don't give out bricks", talk to the hand, lol.
Good you found this site before hand, I wish I knew then what I know now.
I suspect that the guy has just been at that one company for many years and doesn't know what other companies are doing.
Their company is Apria Healthcare. They sound like a huge operation with facilities all over the US. Apparently they are placing over a thousand APAP machines a day across the company. So, they buy these units by the "palette load".
(10-11-2014 06:32 PM)archangle Wrote:
(10-10-2014 07:30 PM)wheaton4prez Wrote: I ended up with a Philips Remstar Auto AFlex Model DS560S. It collects data and is auto. That's a decent unit, right?
The guy who showed me how to use it was really helpful and detailed. I told him that I read that I should be concerned about being given a sub-par unit. He said that those old units without data aren't given out by any company any more. So, where is that concern coming from? He didn't know.
The PRS1 560 is an excellent machine.
Your DME is either really stupid, or is being willfully ignorant, but you did get a good machine. If your doctor hadn't prescribed an auto machine, you would probably have gotten screwed with a brick.
Philips Respironics makes a PRS1 DS160, a PRS1 Plus (DS260), and a PRS1 SE model. They all collect "compliance data," i.e. the time you turn the machine off and on. They only tell whether you're using the machine or not. Most insurance will refuse to pay if you don't meet "compliance" requirements, usually 4 hours a night.
Lots of DME's are still selling these "brick" CPAP machines.
You could still have extremely severe apnea even on CPAP, and the machine would give and your doctor absolutely no clue this is happening. As long as you breathe one a minute or so, the machine makes no indication of problems at all. Neither you nor your doctor will have any clue that your treatment is not working.
It's like treating high blood pressure without bothering to keep checking the blood pressure on an ongoing basis.
Your PRS1 Auto, and the PRS1 Pro, are like having a mini sleep test every night. It records every breath you take all night long. It detects and records apneas. It tells whether you have leaks. It also tells you a whole lot more information.
You can download the free SleepyHead program and look at the data yourself. There are some pictures of what kind of data it gives you here:
ResMed's newest machines, the AirSense 10 series, have one model that isn't quite a full brick, but it only records nightly averages, not the minute by minute information that the fully data capable machines record. The better ResMed A10 models are just as data capable as the good PRS1 models.
I don't think the doctor specified an auto machine. It sounded like this unit is the only model that this company gives out. The schedules got messed up. So, they did the mini-class for another guy at the same time as me. He got the same unit. But, his doctor added the humidifier so he got that while I did not.
I believe that other DMEs are selling the bricks. But, maybe this DME doesn't and I just lucked out.
Night 2 of using the machine went a little better than night 1. I still took it off for the last few hours of the night because my nose ached. But, I tried sleeping on my back which helped a lot. Before the machine, it was impossible to sleep on my back. I would just immediately choke and wake up once I fell asleep.
It looks like the machine worked harder with 12.5 instead of 9.5 from the night before. I wonder if that's because of sleeping on my back and the gravity is different?
I'm going to download the sleepyhead software now. Can I just pull the data card out of the machine? Or, do I need to have the software "eject" it first like USB on a computer?