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I have the cpap model...not the elite
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quiescence at last Offline

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Posts: 753
Joined: Nov 2014

Machine: REMstar System One with Autoflex
Mask Type: Full face mask
Mask Make & Model: Quattro AirFit F10
Humidifier: yes typical setting = 4
CPAP Pressure: 5-13 Autotritrating CPAP
CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

Sex: Male
Location: US

Post: #41
RE: I have the cpap model...not the elite
OP is indeed struggling, and primary is help getting more sleep. Now that we know that leak and AHI being reported is within band, her current machine is clearly helping her. More sleep is needed. Ideas for more sleep can either be via consult with her physician/care team, or family and friends.

[by the way, OP probably has decided what the next step will be.]

One more bit of friendly advice - use the machine every time you sleep, take sick days or portions to make up sleep. just keep getting up when you are not comfortable sleeping (i.e. can't seem to breathe or sore body somehow) take a break, then go back to sleep. Taking showers or baths, meditating, listening to cool music, taking medications that seem necessary. This is job one!

Feeling satisfied with the results, feelings, etc. is downstream. Trust the process. Satisfaction will come. For some, it takes a while.

mzzy d, what did the sleep study say your AHI or RDI was?

btw. usually progression is slow (measured in months versus weeks or days) in severe cases of sleep deprivation. keep connected with physician and a good friend.

QAL

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
07-11-2015 06:05 PM
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bwexler Offline

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Posts: 563
Joined: Mar 2012

Machine: PRS 1 BiPAP autoSV Advanced, with Heated Tube humidifier
Mask Type: Nasal mask
Mask Make & Model: Sleepweaver √Član
Humidifier: Resperonics Heated Tube humidifier
CPAP Pressure: Max pressure 25.0 cm H20, Max
CPAP Software: SleepyHead EncorePro

Other Comments: CMS 50i with Software for SpO2

Sex: Male
Location: San Marcos, CA, USA

Post: #42
RE: I have the cpap model...not the elite
If it were me I would demand the Airsense 10 Autoset for Her and nothing less.
You should print out this entire thread and take it and your current Brick to the DME on Monday.

Without a full data capable machine NO ONE will have any idea of how well your therapy is working, or not working.

vShailine provided the clearest explanation, as he often does.
07-11-2015 06:11 PM
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mzdawn74 Offline

Preferred Members

Posts: 92
Joined: Jul 2015

Machine: Resmed Airsense 10 Cpap
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Intergrated
CPAP Pressure: 8cm
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: San Diego, Ca

Post: #43
RE: I have the cpap model...not the elite
(07-11-2015 06:05 PM)quiescence at last Wrote:  OP is indeed struggling, and primary is help getting more sleep. Now that we know that leak and AHI being reported is within band, her current machine is clearly helping her. More sleep is needed. Ideas for more sleep can either be via consult with her physician/care team, or family and friends.

[by the way, OP probably has decided what the next step will be.]

One more bit of friendly advice - use the machine every time you sleep, take sick days or portions to make up sleep. just keep getting up when you are not comfortable sleeping (i.e. can't seem to breathe or sore body somehow) take a break, then go back to sleep. Taking showers or baths, meditating, listening to cool music, taking medications that seem necessary. This is job one!

Feeling satisfied with the results, feelings, etc. is downstream. Trust the process. Satisfaction will come. For some, it takes a while.

mzzy d, what did the sleep study say your AHI or RDI was?

btw. usually progression is slow (measured in months versus weeks or days) in severe cases of sleep deprivation. keep connected with physician and a good friend.

QAL

Thank you for your responce. My AHI was 10.5 and 34 during REM. My RDI was 11.4
(07-11-2015 06:11 PM)bwexler Wrote:  If it were me I would demand the Airsense 10 Autoset for Her and nothing less.
You should print out this entire thread and take it and your current Brick to the DME on Monday.

Without a full data capable machine NO ONE will have any idea of how well your therapy is working, or not working.

vShailine provided the clearest explanation, as he often does.

Agreed!
(This post was last modified: 07-11-2015 06:33 PM by mzdawn74.)
07-11-2015 06:32 PM
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kaiasgram Offline

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Posts: 242
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #44
RE: I have the cpap model...not the elite
Hi Dawn,

I was trying to help you on the other forum. I hope this will help you and clarify some things for others here:

I reviewed the product information for the CPAP model and the Elite model in the Healthcare Professionals section of the ResMed website. Please, Dawn, take your time to read this and take it in:

In terms of data, both models show the AHI. The difference is that the Elite breaks down the AHI event types (obstructive, hypopnea and central), while the CPAP model only shows the total AHI. This would certainly be a handicap if your AHI was too high but right now that is not the case. Your AHI is below 1.0 every night so far. So even if all your events so far have been centrals, it would not be a clinical concern because the total is well below 5.0.

The second difference is that the CPAP model does not record data in such a way that you could use software (like SleepyHead) to generate graphs of night-long activity. So you have an AHI and a leak number, but you can't see what happened at what point(s) during the night. This would be a bigger disadvantage if you were on an APAP machine with changing pressures and you needed to see if the pressure fluctuations were associated with apneas, leaks or wakes. With a single fixed pressure there's less to examine since your pressure doesn't change -- though it could prove helpful to get a closer look at your leak graph -- your leaks are in the acceptable range but it might be helpful to see if your leaks are mostly running low, or if they're jumping around a lot during the night and potentially disrupting your sleep.

To be clear (and obvious) -- there's no doubt that a full data machine (Elite or Autoset) is the best choice under any circumstances, and less than two weeks into your therapy I agree that it is worth trying to obtain a full data machine now. But in the meantime and while you're working this out you should know that your apnea is effectively under control and you are not getting suboptimal treatment. Your CPAP model blowing at 8cm pressure is delivering the exact same therapy as an Elite blowing at 8cm pressure or an Autoset blowing at 8cm pressure.

The biggest concern is the fact that you're feeling worse and not better. This is really not unusual. It's hard for most people to get used to all the strange sensations of using a CPAP machine and that often means things get worse before they get better. Unfortunately you were already feeling terrible before you even started treatment. You will likely be someone who needs to give this a lot more time, and to go well above and beyond just having effective apnea control before you start to feel consistently better. For example, the depression may have been brought about by untreated sleep apnea, but it is real and it still may need attention now. Doesn't necessarily mean medication, but some kind of real attention while you're waiting to get adjusted to CPAP and to start turning the sleep deprivation around. Stress management is another important priority.

I hope your doctor is agreeable to writing a new RX next week because in the long term there are many reasons to have access to the advanced data reporting. In the meantime I hope you can rest assured that currently your machine is treating your apnea as well as the top-of-the-line machine. Bottom line: The fact that you're feeling worse right now is not because of the machine you're currently using. In terms of the more advanced data reporting features it definitely falls short, but in terms of delivering PAP (positive airway pressure) it is doing its job.

Hang in there.
(This post was last modified: 07-11-2015 08:06 PM by kaiasgram.)
07-11-2015 08:04 PM
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mzdawn74 Offline

Preferred Members

Posts: 92
Joined: Jul 2015

Machine: Resmed Airsense 10 Cpap
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Intergrated
CPAP Pressure: 8cm
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: San Diego, Ca

Post: #45
RE: I have the cpap model...not the elite
(07-11-2015 08:04 PM)kaiasgram Wrote:  Hi Dawn,

I was trying to help you on the other forum. I hope this will help you and clarify some things for others here:

I reviewed the product information for the CPAP model and the Elite model in the Healthcare Professionals section of the ResMed website. Please, Dawn, take your time to read this and take it in:

In terms of data, both models show the AHI. The difference is that the Elite breaks down the AHI event types (obstructive, hypopnea and central), while the CPAP model only shows the total AHI. This would certainly be a handicap if your AHI was too high but right now that is not the case. Your AHI is below 1.0 every night so far. So even if all your events so far have been centrals, it would not be a clinical concern because the total is well below 5.0.

The second difference is that the CPAP model does not record data in such a way that you could use software (like SleepyHead) to generate graphs of night-long activity. So you have an AHI and a leak number, but you can't see what happened at what point(s) during the night. This would be a bigger disadvantage if you were on an APAP machine with changing pressures and you needed to see if the pressure fluctuations were associated with apneas, leaks or wakes. With a single fixed pressure there's less to examine since your pressure doesn't change -- though it could prove helpful to get a closer look at your leak graph -- your leaks are in the acceptable range but it might be helpful to see if your leaks are mostly running low, or if they're jumping around a lot during the night and potentially disrupting your sleep.

To be clear (and obvious) -- there's no doubt that a full data machine (Elite or Autoset) is the best choice under any circumstances, and less than two weeks into your therapy I agree that it is worth trying to obtain a full data machine now. But in the meantime and while you're working this out you should know that your apnea is effectively under control and you are not getting suboptimal treatment. Your CPAP model blowing at 8cm pressure is delivering the exact same therapy as an Elite blowing at 8cm pressure or an Autoset blowing at 8cm pressure.

The biggest concern is the fact that you're feeling worse and not better. This is really not unusual. It's hard for most people to get used to all the strange sensations of using a CPAP machine and that often means things get worse before they get better. Unfortunately you were already feeling terrible before you even started treatment. You will likely be someone who needs to give this a lot more time, and to go well above and beyond just having effective apnea control before you start to feel consistently better. For example, the depression may have been brought about by untreated sleep apnea, but it is real and it still may need attention now. Doesn't necessarily mean medication, but some kind of real attention while you're waiting to get adjusted to CPAP and to start turning the sleep deprivation around. Stress management is another important priority.

I hope your doctor is agreeable to writing a new RX next week because in the long term there are many reasons to have access to the advanced data reporting. In the meantime I hope you can rest assured that currently your machine is treating your apnea as well as the top-of-the-line machine. Bottom line: The fact that you're feeling worse right now is not because of the machine you're currently using. In terms of the more advanced data reporting features it definitely falls short, but in terms of delivering PAP (positive airway pressure) it is doing its job.

Hang in there.

Hi!!

I'm so happy to see you here. I couldn't handle all of the vindictive nasty people on the other forum. You always had great advice and offered your support and I greatly appreciate that. The people here, like you, are very supportive, understanding as well as being extremely knowledgeable.

Thank you for taking the time out to write that very helpful and informative post. It really changed my outlook on continuing treatment with my brick if all else fails with getting an APAP. I'm hoping my doctor will just do it and not giveeven grief. Worst case scenario I am just going to have to work harder to ensure I get all of the benefits of my current machine and therapy.

Talk to you soon. Smile
07-11-2015 09:36 PM
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kaiasgram Offline

Advisory Members

Posts: 242
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #46
RE: I have the cpap model...not the elite
You're welcome Dawn, glad I could help a little.
07-11-2015 09:57 PM
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Sleeprider Offline
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Posts: 3,381
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

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Sex: Male
Location: Where they make Respironics

Post: #47
RE: I have the cpap model...not the elite
Kaisagram, I hope you will stay and be part of this community as well. You have an exceptional ability to help people, and there is a bit less noise here. Welcome.

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07-11-2015 10:11 PM
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kaiasgram Offline

Advisory Members

Posts: 242
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #48
RE: I have the cpap model...not the elite
(07-11-2015 10:11 PM)Sleeprider Wrote:  Kaisagram, I hope you will stay and be part of this community as well. You have an exceptional ability to help people, and there is a bit less noise here. Welcome.

Thanks for your warm welcome. Smile
(This post was last modified: 07-11-2015 10:23 PM by kaiasgram.)
07-11-2015 10:22 PM
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mzdawn74 Offline

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Posts: 92
Joined: Jul 2015

Machine: Resmed Airsense 10 Cpap
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Intergrated
CPAP Pressure: 8cm
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: San Diego, Ca

Post: #49
RE: I have the cpap model...not the elite
(07-11-2015 10:11 PM)Sleeprider Wrote:  Kaisagram, I hope you will stay and be part of this community as well. You have an exceptional ability to help people, and there is a bit less noise here. Welcome.

Very true! Please stay!!:grin:
(This post was last modified: 07-11-2015 10:26 PM by mzdawn74.)
07-11-2015 10:25 PM
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kaiasgram Offline

Advisory Members

Posts: 242
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #50
RE: I have the cpap model...not the elite
(07-11-2015 10:25 PM)mzdawn74 Wrote:  
(07-11-2015 10:11 PM)Sleeprider Wrote:  Kaisagram, I hope you will stay and be part of this community as well. You have an exceptional ability to help people, and there is a bit less noise here. Welcome.

Very true! Please stay!!:grin:

Thank you Dawn. Smile
07-11-2015 10:28 PM
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