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I'll have some cheese with my whine!
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Starrbelie Offline

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Posts: 44
Joined: Jun 2015

Machine: Fisher&Paykel Icon+ Premo
Mask Type: Nasal mask
Mask Make & Model: Respironics Wisp
Humidifier: F&P Icon+ integrated
CPAP Pressure: 7
CPAP Software: SleepyHead

Other Comments: Using ResMed AirFit F10 while recovering from Septoplasty & Turbinate reduction

Sex: Female
Location: North Alabama

Post: #1
Angry I'll have some cheese with my whine!
I. FREAKING. HATE. CPAP!!! After laying in bed fiddling with my mask and hose for an hour I finally threw my mask across the room, well, as across the room as the hose would allow, and turned off the machine. Sleeping should not be this complicated!! I can not get my mask adjusted where I can't feel a tiny breeze blowing from it, except when I am laying on my back and I absolutely can not sleep on my back. That tiny breeze may be acceptable in relation to therapy and the machine working correctly but I can not ignore it enough to fall asleep!
Anyone ever heard of misophonia? It literally translates as "the hatred of sounds". Certain sounds, most commonly chewing or BREATHING noises, can cause the person to panic or fly into a rage. My own breathing noises have never triggered me before but on CPAP, they do!! Especially, tonight when I am already annoyed with my mask!! Ugh!!!
I really don't expect anyone to have any advise, I just needed to vent to folks who have an idea how frustrating getting used to CPAP can be. I'm gonna sit here and do some deep breathing for a few more minutes and then give it another try. If you've made it this far in my rant without writing me off as a complete lunitic, thanks for listening!!

Good night!
Starr, the chick with the strangest quirks ever
06-22-2015 12:51 AM
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me50 Offline

Advisory Members

Posts: 2,559
Joined: Aug 2013

Machine: resmed S9 VPAP Auto
Mask Type: Nasal mask
Mask Make & Model: Wisp and Silicone Head gear
Humidifier: resmed H5i
CPAP Pressure: 18/8
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location: USA

Post: #2
RE: I'll have some cheese with my whine!
This won't help you tonight but if you can, take the mask back and try a different kind. A lot of people swear by the P10 and I think wisp is a great mask but it is not pillows, it is a nasal mask.
06-22-2015 01:04 AM
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DeepBreathing Offline
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Moderators

Posts: 2,297
Joined: Sep 2013

Machine: Resmed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Resmed H5i
CPAP Pressure: EPAP: 9 - 15 PS: 3 - 10
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Perth, Western Australia

Post: #3
RE: I'll have some cheese with my whine!
(06-22-2015 12:51 AM)Starrbelie Wrote:  I. FREAKING. HATE. CPAP!!! After laying in bed fiddling with my mask and hose for an hour I finally threw my mask across the room, well, as across the room as the hose would allow, and turned off the machine.

Been there, done that - many times. Still do occasionally. It does get better but some for some people that happens sooner than for others.

Getting a comfortable mask which doesn't leak is the hardest part, and probably the reason many people give up. The general view is that a pillows type (eg P10) is the most forgiving for most people - I can't stand them! But it might be better for you. You might also try a mask liner such as Remzz or Pad-a-cheek. I use a Pad-a-cheek and find it stops most of the leaks on my Quattro Air.

Be prepared to try out several masks (and different types such as pillows, nasal and full-face) until you find the right one for you.

DeepBreathing
Apnea Board Moderator
www.ApneaBoard.com


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06-22-2015 04:10 AM
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quiescence at last Offline

Advisory Members

Posts: 753
Joined: Nov 2014

Machine: REMstar System One with Autoflex
Mask Type: Full face mask
Mask Make & Model: Quattro AirFit F10
Humidifier: yes typical setting = 4
CPAP Pressure: 5-13 Autotritrating CPAP
CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

Sex: Male
Location: US

Post: #4
RE: I'll have some cheese with my whine!
HI Starrbelie.
welcome.

Your misophonemia would make the "stop copying me" game a really hoot! It usually took a while to spin up my bro, but you'd be a cinch.

I really hope you can relax and think of the noises your machine makes as harmony in the great battle for best wellness.

good luck.

QAL

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
06-22-2015 06:14 AM
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Mark Douglas Offline

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Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #5
RE: I'll have some cheese with my whine!
Fit your mask during the day!
Trying to fit it right s bed time when you are tired and your GIS quotient is used up is only gonna go wrong-at least for the high strung.
As for noise can you explain to my wife why I hate her fn WIND CHIMES? !

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
06-22-2015 06:43 AM
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Mosquitobait Offline

Advisory Members

Posts: 749
Joined: Apr 2015

Machine: Resmed AirSense 10 For Her
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10
Humidifier: integrated, Climate line tube
CPAP Pressure: 9-12
CPAP Software: ResScan SleepyHead

Other Comments: RLS and Bradycardia

Sex: Female
Location: Minneapolis

Post: #6
RE: I'll have some cheese with my whine!
So sorry you have such quirks. Have a family member with Aspergers who is sensitive with sound. He got used to the sound of a fan (white noise) and that helped a lot. No other sound worked for him and that drowns out the utter quiet that makes you react to other sounds. For my Mom, it's ocean waves. I gave her my clock radio with nature sounds after getting an I touch and that is how she discovered that. My other relative with autism sleeps to wind sounds. I use forest sounds to distract from tinnitus. My point is, if you have a smartphone, experiment with sound generating apps to find the right one. Then set it up to play all night.

Can't help you with the blowing. It bugged me too (and my cat), but unless RLS is troublesome, I fall asleep in less than half an hour with the cpap.
06-22-2015 07:35 AM
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AlanE Offline

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Posts: 1,499
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #7
RE: I'll have some cheese with my whine!
Sorry you're having trouble. Happen to me too. I think everyone has a "toss the mask across the room" night. Remember that pulling the mask to tight is just as bad as not tight enough. Hang in there!



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
06-22-2015 07:50 AM
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under pressure Offline

Preferred Members-2

Posts: 139
Joined: Feb 2014

Machine: ResMed Airsense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Integrated
CPAP Pressure: 11 - 14
CPAP Software: ResScan SleepyHead

Other Comments: Also use F&P Icon Auto and Z1 Auto for travel and Backup

Sex: Male
Location: Colorado

Post: #8
RE: I'll have some cheese with my whine!
I use an oxygen concentrator with my cpap, it makes a constant thumping noise as its working and the noise bugged me, so instead of moving it into another room, as many people do, I just started using those little yellow 3M foam ear plugs and it made a huge difference! When I travel and don't use the oxygen concentrator on the road I still use the foam ear plugs and it's made a big difference and I get considerably more sleep now with the ear plugs than I ever used to without. I think I've always been on the hyper sensitive side of things as far as noises go, wish I had started wearing the ear plugs a lot sooner!

Stick with it, the major key to sleeping well with CPAP is finding the right mask, I went through about ten different masks before I found the right one for me.
06-22-2015 08:22 AM
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Ailu Offline

Preferred Members-2

Posts: 159
Joined: Oct 2013

Machine: Philips Respironics System One (60 Series) RemStar Auto with A-Flex
Mask Type: Nasal pillows
Mask Make & Model: Fisher Paykel Pilairo Q
Humidifier: System One Heated
CPAP Pressure: Auto-CPAP: 8-9
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Female
Location: Sierra Nevada Mountains

Post: #9
RE: I'll have some cheese with my whine!
You said you didn't want advice, but I have to at least inform you about one of my best friends. She suffered with insomnia for years before she realized she has the same problem with sounds as you do. Another friend had suggested earplugs. So she experimented with all types, until she found the ones that worked well for her. Insomnia cured. She just told me the other day, that it's been life changing, it's helped that much.

-Ailu
Reformed CPAP Outlaw
06-22-2015 08:42 AM
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trish6hundred Offline

Advisory Members

Posts: 6,453
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #10
RE: I'll have some cheese with my whine!
Hi Starrbelie,
I'm sorry you are having trouble getting used to CPAP therapy. I know it can take time to get used to and the mask is the hardest part of the whole thing.
Just hang in there and try as many mask as you need to, 'till you find the one that will work for you.
Good luck to you.

trish6hundred
06-22-2015 08:46 AM
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