Post Reply 
I'm a loaner..
Author Message
Yveylise Offline

Members

Posts: 11
Joined: May 2014

Machine: Fisher & Paykel Icon Novo
Mask Type: Nasal mask
Mask Make & Model: Zest Q
Humidifier: unsure
CPAP Pressure: 13
CPAP Software: SleepyHead

Other Comments: Currently using loaner machine: REMstar Auto A-flex with F&P Pilario Mask

Sex: Female
Location: Alabama, USA

Post: #1
I'm a loaner..
My appointment yesterday resulted in me going home with a loaner machine and mask which I'm to use for 2 weeks.

The machine is a REMstar Auto A-flex with a System One humidifier.
The mask is a Fisher and Paykel Pilairo.

I go back on June 3rd for them to read the data and then they will reset my original machine to match the pressure on the A-flex. My original machine does not have an auto setting apparently. Sad

It took me about 2 hours to fall asleep last night, in part because we watch tv in bed but also getting used to a new mask wasn't easy. Once I did go to sleep, I slept fairly comfortably and only woke to turn over. This means, I had my first full night sleep with a cpap machine ever (and I got my original in Feb 2013)!

I'm not sold on this mask. I still think it's too big. It was chosen for me because I'm on such a high pressure and apparently nose pillows aren't great for people with high pressure so the little air cushions on the side are supposed to inflate at higher pressures to help keep the mask in position. I think it just made my face sweaty.

I'm going to link to my read out from my first night with the loaner machine. Please tell me what you think. I'm still new to this.

tinyurl.com/qfou5cz

(Sorry, I can't post clickable links yet.)
05-21-2014 06:27 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: I'm a loaner..
(05-21-2014 06:27 AM)Yveylise Wrote:  I'm not sold on this mask. I still think it's too big. It was chosen for me because I'm on such a high pressure and apparently nose pillows aren't great for people with high pressure so the little air cushions on the side are supposed to inflate at higher pressures to help keep the mask in position.
Isn't Pilairo a nasal pillows mask?
Use whatever feel most comfortable for you and don,t let anyone to tell you otherwise Coffee
05-21-2014 06:50 AM
Find all posts by this user Post Reply Quote this message in a reply
Yveylise Offline

Members

Posts: 11
Joined: May 2014

Machine: Fisher & Paykel Icon Novo
Mask Type: Nasal mask
Mask Make & Model: Zest Q
Humidifier: unsure
CPAP Pressure: 13
CPAP Software: SleepyHead

Other Comments: Currently using loaner machine: REMstar Auto A-flex with F&P Pilario Mask

Sex: Female
Location: Alabama, USA

Post: #3
RE: I'm a loaner..
(05-21-2014 06:50 AM)zonk Wrote:  Isn't Pilairo a nasal pillows mask?
Use whatever feel most comfortable for you and don,t let anyone to tell you otherwise Coffee

It is but I was told "it's made for high pressures". It still covers my top lip and lays out across my cheeks as well.
05-21-2014 06:55 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
herbm Offline

Preferred Members-2

Posts: 852
Joined: Jan 2014

Machine: ResMed AutoSet S9
Mask Type: Oral
Mask Make & Model: ResMed Airfit P10 Nasal Pillow
Humidifier: ResMed H5i
CPAP Pressure: 11-16
CPAP Software: ResScan SleepyHead

Other Comments: Backup Mask: Innomed Hybrid FFM -- Oral+Nasal Pillows

Sex: Male
Location: Austin, TX

Post: #4
RE: I'm a loaner..
13 is NOT a "high pressure".

Pretty much any pillow mask should or could work at that pressure.

The Airfit P10 for certain does for me.

BUT THE BIG NEWS, and you buried the lead: FIRST FULL NIGHT OF SLEEP despite having a machine for over a year (Feb 2013)!!!!

Congratulations!

That is great news.

Sweet Dreams,

HerbM
Sleep study AHI: 49 RDI: 60 -- APAP 10-11 w/AHI: 1.5 avg for 7-days (up due likely to hip replacement recovery)

"We can all breathe together or we will all suffocate alone."
05-21-2014 08:45 AM
Find all posts by this user Post Reply Quote this message in a reply
retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #5
RE: I'm a loaner..
Yes, that is good news! ..and I'll second what Herb said about the P10. But if you can happily (more or less) coexist with the mask you have for awhile let's see what your pressure does. I would certainly like it if they could trade you the new machine for your old one. There is so much greater capability. But since you've had your old one since 2013 I doubt they can do that. That does not mean I would not encourage you to nag for that very thing however...........

Keep us posted as to how you're doing!
05-21-2014 11:35 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
CHanlon Offline

Advisory Members

Posts: 292
Joined: Mar 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: ResMed Activa LT
Humidifier: ResMed Hi5
CPAP Pressure: 12 -20
CPAP Software: ResScan SleepyHead

Other Comments: Mirage Activa LT nasal mask

Sex: Male
Location: Ontario, Canada

Post: #6
RE: I'm a loaner..
I second retired_guy. The answer to your issue of not getting a full night is obvious: you more have an APAP. I had the same experience when I stated therapy. I was given a repironics apap as a loaner to avoid a 6 month wait for titration. Then they gave me a ResMed cpap set at 18 for my "permanent" solution. First night on any machine at all, I went a full 9 hours, never moved, felt great in the morning, etc. First night, 3 weeks later, on cpap I couldn't sleep, suffered aerophagia, kept having air leaks into my eyes... Next night I flung the mask across the room and took the works back and demanded my nice shiny ResMed s9 autoset.
05-21-2014 12:09 PM
Find all posts by this user Post Reply Quote this message in a reply
becker44a Offline

Advisory Members

Posts: 181
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus Lg
Humidifier: ResMed H5i
CPAP Pressure: Rx 10 - 20cm, Usually 10-14cm
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: NE Ohio, USA

Post: #7
RE: I'm a loaner..
(05-21-2014 06:27 AM)Yveylise Wrote:  My appointment yesterday resulted in me going home with a loaner machine and mask which I'm to use for 2 weeks.

The machine is a REMstar Auto A-flex with a System One humidifier.
The mask is a Fisher and Paykel Pilairo.
. . .
I go back on June 3rd for them to read the data and then they will reset my original machine to match the pressure on the A-flex. My original machine does not have an auto setting apparently. Sad
. . .
I'm going to link to my read out from my first night with the loaner machine. Please tell me what you think. I'm still new to this.

Hi Yveylise,
Welcome to this forum - it is a great place to learn a lot of things you need to know.

The advice you have received so far is all correct, in that you need to address your mask issues, and get comfortable. Most agree that the mask is the most difficult part of PAP therapy.

However, if I were in your shoes, I would also be addressing the issue of your machine. I saw a reply from Zonk indicating that your machine is not data-capable, nor is it an Auto type. This has you at a serious disadvantage in correcting your issues, or even identifying what they are. The usual term for machines of the type you have is a "brick": tells you nothing about what is going on during your sleep, and has no auto function to adjust to changing conditions.

Isn't it interesting that the sleep clinic gave you a loaner data-capable auto-type machine, to get some data so they can better address your issues. In my mind, it would obviously be better if you had a machine by your bedside every night that would do the same.

I don't know your insurance or financial situation, but if you can get a copy of your prescription (which you should have for a number of reasons), you could think about getting an open-box or gently-used data-capable machine from Supplier #2 (or wherever), and retire your brick to backup duty. If your present machine is a "rental" rather than purchase, perhaps there is still some chance of upgrading. In any case, if it were me, I would be looking at the options.

Good luck with whatever you decide.
A.Becker
05-21-2014 01:40 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
herbm Offline

Preferred Members-2

Posts: 852
Joined: Jan 2014

Machine: ResMed AutoSet S9
Mask Type: Oral
Mask Make & Model: ResMed Airfit P10 Nasal Pillow
Humidifier: ResMed H5i
CPAP Pressure: 11-16
CPAP Software: ResScan SleepyHead

Other Comments: Backup Mask: Innomed Hybrid FFM -- Oral+Nasal Pillows

Sex: Male
Location: Austin, TX

Post: #8
RE: I'm a loaner..
FYI:

If you can convince, cajole, beg, etc. you doc into writing the prescrition as "APAP" then you are pretty much good to go -- they (DME and Insurance) will need to provide that type of machine.

Also, there is nothing particularly wrong with a Pilairo -- a very RARE few people like it better than the Airfit P10, but most people find it a not TOO distant 2nd to the P10.

It's a good mask. Might be the BEST mask (for those who can use pillows) other than the P10.

Sweet Dreams,

HerbM
Sleep study AHI: 49 RDI: 60 -- APAP 10-11 w/AHI: 1.5 avg for 7-days (up due likely to hip replacement recovery)

"We can all breathe together or we will all suffocate alone."
05-21-2014 02:07 PM
Find all posts by this user Post Reply Quote this message in a reply
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #9
RE: I'm a loaner..
Sigh. Herb is so taken with the P10 he forgets there are others out there. "They" say nasal pillows aren't good for high pressures but most of them do just fine. My Swift LT did well and at that point I think I was up to 16, maybe 18. When I tried the P10, I was at 18 and 20. And my Nuance is doing just fine at 20. So go with a mask that fits you well and your sleep pattern. And ignore Herb. Unless your head is shaped just like his or you are willing to modify the headgear, the P10 may not be worth it. Bigwink

Your numbers look good. Congrats on the night's sleep!

In the future, you can do an attachment:
http://www.apneaboard.com/forums/Thread-How-to-Attachments

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-21-2014 09:50 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #10
RE: I'm a loaner..
(05-21-2014 09:50 PM)PaulaO2 Wrote:  Sigh. Herb is so taken with the P10 he forgets there are others out there. "They" say nasal pillows aren't good for high pressures but most of them do just fine. My Swift LT did well and at that point I think I was up to 16, maybe 18. When I tried the P10, I was at 18 and 20. And my Nuance is doing just fine at 20. So go with a mask that fits you well and your sleep pattern. And ignore Herb. Unless your head is shaped just like his or you are willing to modify the headgear, the P10 may not be worth it. Bigwink

Your numbers look good. Congrats on the night's sleep!

In the future, you can do an attachment:
http://www.apneaboard.com/forums/Thread-How-to-Attachments

Isn't everyone's head just like Herb's? Actually Herb and I may not agree on one or two things, but we agree on the P10. Actually, actually, it was Herb that convinced me to try one.

I like the P10 a lot. I did modify the headgear a little. I was using it with a chinstrap and decided to try going without a chinstrap. By then the straps were a little more stretched out than I liked. So out come the scissors, chop chop, on go the safety pins and I was all set. I still have the safety pins in place and have gone back to the chinstrap as well. They work fine, and it makes me look like I have two small bows in my hair. I would be all the rage at my sleep clinic.
05-21-2014 11:53 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
Smile Help with S8 loaner TheManseHen 4 401 03-07-2016 08:40 PM
Last Post: OMyMyOHellYes
  Stuck with a brick during loaner... cate1898 17 1,689 09-12-2015 09:05 PM
Last Post: cate1898
  Got my own machine today..no more loaner kitley 12 4,295 06-01-2012 12:58 AM
Last Post: zonk

Forum Jump:

Who's Online (Complete List)