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I'm new. Dying of exhaustion. Just got a machine - here's my story.
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michaelba72 Offline

Preferred Members

Posts: 20
Joined: Aug 2016

Machine: Respironics dreamstation
Mask Type: Full face mask
Mask Make & Model: respironics amara view
Humidifier: respironics dreamstation
CPAP Pressure: 12.5 - 16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: los angeles

Post: #11
RE: I'm new. Dying of exhaustion. Just got a machine - here's my story.
Sleeprider - yeah it's looking more like central sleep apnea but I will keep collecting data, thanks for your wisdom.

cate - Thank you, that is encouraging.

kw - The reason I don't think I have bad obstructive sleep apnea is because I don't snore, and my machine says I have 4-5 obstruction events during the night, and 90 clear and hypopnea events a night, and also I have recorded myself with audio throughout the night many times and listened back (visually looking at the waveform) and I hear about 4-5 choking/wheezing events indicative of obstructive sleep apnea which matches up with what the machine says.

So maybe I have central sleep apnea. Which would mean I have the wrong machine as I understand it. Last night my pressure went from 7-15 throughout the night, yielding 29 clear apneas, 4 obstr, and 57 Hypopneas. AHI of 12. So Hypopneas increased and clears went down as I raised the pressure the second night. Which is weird. Anyway, will keep collecting data until I can see the specialist.
08-29-2016 01:48 PM
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sonicboom Offline

Advisory Members

Posts: 471
Joined: May 2015

Machine: Airsense 10 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10, Dreamwear
Humidifier: Integrated
CPAP Pressure: 4.6-7.6
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Washington

Post: #12
RE: I'm new. Dying of exhaustion. Just got a machine - here's my story.
You mention the obstructive apneas as closing your airway but you don't mention the fact of 57 partial airway obstructions (hypopneas). These add up too and you would need an oximeter to see what your oxygen level are during these events. If it were me I would ask for a sleep study. You can feel better. Keep at it and welcome to the forum.

Coffee
08-29-2016 02:05 PM
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NorthernGuy Offline

Preferred Members

Posts: 49
Joined: May 2016

Machine: Philips Dreamstation Auto CPAP
Mask Type: Full face mask
Mask Make & Model: F&S Full face
Humidifier: Dreamstation integrated
CPAP Pressure: 8-14
CPAP Software: SleepyHead

Other Comments: New (couple months) APAP user.

Sex: Male
Location: New York State, USA

Post: #13
RE: I'm new. Dying of exhaustion. Just got a machine - here's my story.
My experience is that CAs got better after a couple weeks (or a month) of treatment, then I raised my starting pressure and my hypopneas got better.

One thing to check is if the CAs are real (I mean - while actually sleeping). I was having (and still have) a lot of trouble of "junk" recorded if I tossed and turned at night due to sleeping issues unrelated to apnea (room uncomfortable, bed uncomfortable, anxious about work). The machine records these awake events as CAs and sometimes hypopneas.

People naturally hold their breath several seconds while rolling over and adjusting to get comfortable - Ding! The machine records a clear airway event (or hypopnea if you breath just a little). Try it sometime.

(Not medical advice - just relaying my experience).
08-29-2016 09:19 PM
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michaelba72 Offline

Preferred Members

Posts: 20
Joined: Aug 2016

Machine: Respironics dreamstation
Mask Type: Full face mask
Mask Make & Model: respironics amara view
Humidifier: respironics dreamstation
CPAP Pressure: 12.5 - 16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: los angeles

Post: #14
RE: I'm new. Dying of exhaustion. Just got a machine - here's my story.
Sonic - Yes that is a good point and I may have to get another sleep study. The one I had in January before I got better did show that I had some events that took my pulse ox under 90% but not a lot.

Northern - That is good to know. I will experiment and I'm definitely in this for the long term because I can't live like this.

My overall confusion is mainly wondering why my exhaustion went away within 2 days of getting off of sleeping pills BOTH times I did it. Now I'm on no pills and it came back so there's nothing to get off of. I know pills can sometimes make apnea worse but this was a major difference.
08-29-2016 11:28 PM
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