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Information about CSA...
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Pete Offline

Members

Posts: 18
Joined: Mar 2012

Machine: ResMed S9 VPAP Adapt SV
Mask Type: Nasal mask
Mask Make & Model: Respironics - Opti Life
Humidifier: H5i & Climateline
CPAP Pressure: EPAP 5-15 PS 2-15
CPAP Software: ResScan SleepyHead

Other Comments: Sleep-on

Sex: Male
Location: USA Georgia

Post: #1
Information about CSA...
I have complex (or mixed) Sleep Apnea and recently started using a new ResMed S9 VPAP Adapt SV machine. The Central Apnea events have completely disappeared as well as the OSA events. However, this comes at a cost of greatly increasing my Hypopneas and to a lesser degree, mixed apneas as well. In 24 nights of use so far hypopneas account for more than 90% of all events, with mixed apneas accounting for the other 9-10 %.

Overall my AHI is down a lot. (about 1.75 per night on average) I had one night with an AHI of 0 (Zero). I use the machine 7-8 hours or more each night; and tolerate it much better than the ResMed S9 Autoset I used about the same number of hours each night, so that seems odd.

I still have excessive daytime sleepiness each day even though I am certain I'm getting better sleep. That was one of the justifications for my sleep specialist prescribing the SV Adapt - hoping to reduce or eliminate daytime sleepiness.

Does anyone with sleep apnea (or Complex/Mixed Apnea) have any information on a drug called Modafinil which is the generic name for Provigil? I don't take it but I am considering asking my Dr. about it next visit. It apparently is very effective at dealing with excessive daytime sleepiness.

It seems it's used by quite a few "yuppies," students and other Gen X brainiacs and techies as a drug of choice to help them focus during the day. It's even used by the military as a way to stay awake in combat situations. That's not me at all, but I would gladly use it if it would help my EDS.

I use SleepyHead and ResScan to track my data. SleepyHead is much, much easier and faster to use than ResScan. ResScan does generate nice reports but it takes forever to get them. I export SH data to an Excel spreadsheet where I can study it from many different perspectives.

Thanks
Ratt Huhsign
03-29-2013 10:49 AM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #2
RE: Information about CSA...
Pete, I have CSA and only use a Auto CPAP rather than a VPAP, the auto seems to fix my obstructive and in turn my centrals are way down, if your AHI average is 1.75 and you sometimes have zero, you are doing very well, not sure what your AHI was at your sleep study. The small AHI's that you have can still be casued by other things like movement or mask leaks if you have any. I asume you have been on CPAP for a while so the daytime sleepiness should have lifted, have they checked for Narcolepsy, my sister has OSA and is still tired and now they are checking for it. Lots of people take Provigil but think you should find out what is causing the daytime sleepiness first.
03-29-2013 04:23 PM
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Pete Offline

Members

Posts: 18
Joined: Mar 2012

Machine: ResMed S9 VPAP Adapt SV
Mask Type: Nasal mask
Mask Make & Model: Respironics - Opti Life
Humidifier: H5i & Climateline
CPAP Pressure: EPAP 5-15 PS 2-15
CPAP Software: ResScan SleepyHead

Other Comments: Sleep-on

Sex: Male
Location: USA Georgia

Post: #3
RE: Information about CSA...
Those AHI numbers are using the new machine. They were often much higher on CPAP. About 75% of all events on CPAP were centrals on the old machine. i think my EDS may be hereditary; my mother would fall asleep in 1/4 mile in a car and before the first commercial on a TV program she liked. Hopefully I'll find out soon...
Ratt
03-29-2013 04:38 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #4
RE: Information about CSA...
It could also just be your body catching up. Give it some more time. How long have you been using the ASV?

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-29-2013 04:46 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #5
RE: Information about CSA...
Hopefully you will find out soon, the waiting is the hardest part, lots of these illness's are hereditary, may sister and I have OSA and it wouldn't surprise me if my father has it as well.
(This post was last modified: 03-29-2013 04:48 PM by Tez62.)
03-29-2013 04:47 PM
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trish6hundred Offline

Advisory Members

Posts: 6,449
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: Information about CSA...
My mom had it and after having a stroke, she went in for two sleep studies and obviously, they found that she had severe OSA. My dad has it and "WON'T" get treated for it and, voila, I'm a shoein. After my husband kept moving the bed to get me to quit wrattling the walls, (Ha-Ha-Ha,), I thought it was time in 2008 to get mine treated and haven't regretted it a bit.

trish6hundred
03-29-2013 09:06 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #7
RE: Information about CSA...
trish6hundred, I moved out of our bedroom before I was diagnosed because I used to kick and toss and turn and would jump 6 inches off the bed, when I was diagnosed with SA, they found I also have PLMD (Periodic Limb Movement Disorder) which was probably caused by the lack of oxygen to my brain from the SA. I was given meds but decided not to take them and my CPAP has started to correct that illness as well. I still sleep in a different room as my wife hates my CPAP, but who cares, my life is more important and has cured my depression and I now can live life.
03-30-2013 01:28 AM
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trish6hundred Offline

Advisory Members

Posts: 6,449
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #8
RE: Information about CSA...
I moved out of our bedroom for a short time so that my husband could get some sleep.
Its too bad that your wife hates your CPAP but you need to take care of yourself, that's for sure.

trish6hundred
03-30-2013 03:00 PM
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terp1984 Offline

Preferred Members

Posts: 45
Joined: Apr 2012

Machine: ResMed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro FX
Humidifier: ResMed S9 H5i
CPAP Pressure: EPAP 5 to 15, IPAP 10 to 35
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: South Carolina

Post: #9
RE: Information about CSA...
Hello Pete,
Regarding your question about Provigil, I was prescribed this medication after using Nuvigil (150 mg) and complaining to my doctor that it was TOO effective (it kept me wide awake for about 20 hours). The Provigil "only" lasted about 18 hours but the side effects were killing me (uneasy feelings, headache, etc.), so I stopped using it. I only take the Nuvigil when I need to drive a long distance (more than eight hours). To ensure complete alertness for short driving distances (less than eight hours), I take Ritalin (5 mg). It is very effective for me and I have never had a problem with side effects of this drug.
I hope this helps.
10-06-2013 08:24 AM
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skyler Offline

Preferred Members

Posts: 75
Joined: May 2013

Machine: Respironics ASV
Mask Type: Nasal mask
Mask Make & Model: Respironics Wisp
Humidifier: System One Respironics
CPAP Pressure: 8-12-20
CPAP Software: Not using software SleepyHead

Other Comments: Diagnosed February 2008

Sex: Undisclosed
Location: Norfolk, Virginia

Post: #10
RE: Information about CSA...
I used Provigil and Nuvigil for about three years, my idiopathic hypersomnia still comes and goes, but neither of those drugs work for me now. I had no side effects on doses up to 400 mg Provigil or 300 mg Nuvigil.
(This post was last modified: 10-06-2013 09:09 AM by skyler.)
10-06-2013 09:07 AM
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