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Is there anyone here who doesn't care?
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Evpraxia Offline

Advisory Members

Posts: 313
Joined: Aug 2014

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift LT for Her - Nasal Pillows System
Humidifier: ResMed H5i
CPAP Pressure: 7-17
CPAP Software: ResScan SleepyHead

Other Comments: Cat Staff, bibliophile, love Classical & Byzantine music

Sex: Female
Location: Pacific Northwest USA

Post: #41
RE: Is there anyone here who doesn't care?
As the daughter of someone who gave himself his own dementia and damaged his own heart enough to require a heart valve replacement...yeah...CPAP use is EXTREMELY important. One does not usually die immediately from sleep apnea, it tends to chip away for years; stealing health, independence, brain function, energy level, enjoyment of life/friends/family, etc. My father was an electrical engineer and I almost cried when it took him 45 minutes to open a yogurt container, which he did by using a knife to cut under the lid. Very, VERY sad.

He was already brain damaged when he received the diagnosis of sleep apnea and periodic limb movement disorder, so he had no real idea just how important it was to use a CPAP and he absolutely REFUSED to use ANY type of mask...we tried; so did the one-on-one staff in the Cardiac ICU when he had his heart valve replaced. He just flat refused to use anything on his face or in his nasal openings.

So, please nightflight, stick with it. Keep trying. Find what works. Please do NOT give up!

Better living through machinery!
Evpraxia in the Pacific Northwest USA

Evpraxia in the Pacific Northwest USA
Diagnosed: 44 AHI when supine, O2 down to 82%
Treated since 20 Sept 2014:: 0.7 AHI, Settings 7-15, EPR on Full Time at Level 3
Better living through CPAP/APAP machines!
08-31-2014 05:54 PM
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Ghost1958 Offline

Advisory Members

Posts: 956
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #42
RE: Is there anyone here who doesn't care?
Nightflight, There are things worse than dieing yes. There are a few things that have happened in my life that I would gladly have given my own life to prevent. One that even now years later if it would change what happened I still would. And Im not a person that takes my life lightly.

Ive got exactly 9 days on the machine so far so Im new to this too. But compared to what could happen. Having a stroke so my wife would get to change my pants for me for the rest of her days. Waking up brain damaged one morning from lack of oxygen for years. A heart attack in my sleep etc etc the machine and the mask is no big deal.

Its not like Im the picture of health anyway but 9 nights on this thing have made a huge difference in my life. I have a memory, energy that I havent had in ten years.

Trust me this is worth the little distraction it presents. It may take longer as Ive read and talked to some folks I didnt even know had apnea until I found out I had it. Some like me got almost instant results. Others it took several months and the change was much more gradual.

Nightflight stick with this. Yeah there are things worst than dieing. Been there done that.

Treating the sleep apnea aint one of em. P.S. Please take this in the spirit in which its posted. Which is with best hopes for you getting better.
09-01-2014 05:26 PM
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Peter_C Offline

Advisory Members

Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #43
RE: Is there anyone here who doesn't care?
Adding another post, both for the OP, and perhaps, for others that might read this thread.

I believe in quality of life. I believe that each person should have the right to decide if/when their life is no longer worth living. I believe each adult should have the right to end their own life early, by their own choice, and that the laws of man should not apply here. And as a believer in God - that too is between that person and God (or whatever they call or think of as a greater power).

That all said, and as a multi-year CPAP user, for me, OSA, and the need to wear my hose, mask, etc every single moment I sleep has actually increased my personal quality of life. I do realize that this is not so for everyone, and rarely so for anyone in the beginning stages of use.

My OSA created a severe heart issue that has taken many years of both CPAP and meds to improve.

As with the post above me, I do not think that OSA, and learning to become a hose-head, in and of itself should become a deal-breaker for anyone. I *could* see it as the icing on the cake, etc to make one think seriously about their overall quality of life.

Speaking strictly for myself, if I took the last 3 years to base a 'quality of life' choice on - I honestly could see myself not wanting to hang around much longer. However - times change, and I still have hope (silly or not) for a brighter personal future - so I am sticking around to see what happens next...

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
09-01-2014 07:00 PM
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