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Is this normal
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bwexler Offline

Advisory Members

Posts: 563
Joined: Mar 2012

Machine: PRS 1 BiPAP autoSV Advanced, with Heated Tube humidifier
Mask Type: Nasal mask
Mask Make & Model: Sleepweaver √Član
Humidifier: Resperonics Heated Tube humidifier
CPAP Pressure: Max pressure 25.0 cm H20, Max
CPAP Software: SleepyHead EncorePro

Other Comments: CMS 50i with Software for SpO2

Sex: Male
Location: San Marcos, CA, USA

Post: #11
RE: Is this normal
I don't know where you are or why you have a Breas.
If it were me I'd get with the DME and or the sleep specialist and insist on swapping it for either a Resmed S9 Autoset or a PRS1 560 with heated humidifier, so I could easily monitor my own data whenever I chose.
There are many here who can help you decipher the information while you learn. No one cares more about your outcome than you.
05-29-2014 05:04 PM
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Visitor Offline

Advisory Members

Posts: 164
Joined: Feb 2014

Machine: Resmed Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed P10 nasal pillows
Humidifier: Resmed Airsense 10 and heated hose
CPAP Pressure: 9
CPAP Software: SleepyHead

Other Comments: Started APAP on May 26, 2014. Benefits kicked in on May 31 thanks to forum help (leakage resolved)

Sex: Male
Location:

Post: #12
RE: Is this normal
Thanks Sleepster. I ordered the chin strap this morning (but it will take a few days to arrive). If anything, I woke up worse this morning. My wife commented that she'd never seen me look as bad (terribly swollen eyelids).
I contacted the specialist to flag it. I don't wake up with a dry mouth, so I'm not sure what is going on. Switching machines is not an option, but I'll discuss it when I meet the specialist next month. I'll try out the chin strap. If I feel better after that, it's likely I'm mouth breathing without knowing. But I can hardly imagine I won't wake up from that, as I've had this happen a few times before going to sleep (by yawning) and it's not a pleasant experience. The blasted mask does leak when I turn on my side and though I adjust before sleeping and sometimes at night, I can imagine that I would sleep through that.

Before APAP: [Image: DARTH-VADER_zpsa57946df.png]

After APAP: See avatar: R2D2 for the win!

"Be kind, for everyone you meet is fighting a great battle"
--Ian Maclaren

I don't snore! I just make creepy noises so the aliens know I'm not someone to be messed with.
(This post was last modified: 05-30-2014 05:39 AM by Visitor.)
05-30-2014 05:14 AM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,988
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #13
RE: Is this normal
It's normal to try several different masks before settling on something that works best for you. Your DME and insurance likely have policies in place that allow you to try different masks.

It may be that the mouth-leaking wakes you up in the same way an apnea would, but you don't awaken enough to have a memory of it. The main issue here is that when you're leaking badly, for whatever reason, the machine can no longer maintain the pressure splint and your airway collapses just as it would if you had no CPAP machine at all.

You can easily see these leaks when you view the graph on a computer. Getting your leaks under control is fundamental to CPAP therapy. Nothing is as important.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-30-2014 11:58 PM
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Visitor Offline

Advisory Members

Posts: 164
Joined: Feb 2014

Machine: Resmed Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed P10 nasal pillows
Humidifier: Resmed Airsense 10 and heated hose
CPAP Pressure: 9
CPAP Software: SleepyHead

Other Comments: Started APAP on May 26, 2014. Benefits kicked in on May 31 thanks to forum help (leakage resolved)

Sex: Male
Location:

Post: #14
RE: Is this normal
I tried out the chin strap last night (couldn't get one delivered that fast, but I used a wide elastic band).
I woke at 7 am, fully refreshed and went for a one hour walk. I feel terrific. Thanks so much Sleepster, that did the trick! What an amazing phoenix machine! I'm so grateful to Dr. Sullivan for having invented the cpap.

Masks are not refunded by my insurance, only APAP rental, so I'll need to find the right mask fast but I don't care. APAP is working for me. I'll probably write a contribution to success stories later, after I've enjoyed my new life for a bit. I noticed some changes before, but felt like a train wreck waking up and through most of the morning and early afternoon, before perking up. The chin strap did the trick. You guys are terrific. I'm on CPAP after four nights, fully compliant (I sleep well and through the night now). WONDERFUL! Thanks again Sleepster. Sound advice.

Before APAP: [Image: DARTH-VADER_zpsa57946df.png]

After APAP: See avatar: R2D2 for the win!

"Be kind, for everyone you meet is fighting a great battle"
--Ian Maclaren

I don't snore! I just make creepy noises so the aliens know I'm not someone to be messed with.
05-31-2014 04:20 AM
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Gabby Offline

Preferred Members-2

Posts: 664
Joined: Dec 2013

Machine: ResMed AirSense 10 AutoSet For Her
Mask Type: Nasal pillows
Mask Make & Model: Philips Nuance Nasal Mask
Humidifier: ResMed AirSense 10 For Her
CPAP Pressure: 8-14
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Sunshine Coast, Qld., Australia.

Post: #15
RE: Is this normal
I have been following your story Visitor and Congratulations on having a good nights sleep, great news.
More importantly great news that you felt so good today, that is fantastic, may it long continue.
They give wonderful advice on here, only the best!

Sleep Tight...
Gabby
05-31-2014 05:59 AM
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Visitor Offline

Advisory Members

Posts: 164
Joined: Feb 2014

Machine: Resmed Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed P10 nasal pillows
Humidifier: Resmed Airsense 10 and heated hose
CPAP Pressure: 9
CPAP Software: SleepyHead

Other Comments: Started APAP on May 26, 2014. Benefits kicked in on May 31 thanks to forum help (leakage resolved)

Sex: Male
Location:

Post: #16
RE: Is this normal
Thanks Gabby, this is a great forum. It is unbelievable how different I feel today. Like a weight has been lifted. Long may it continue indeed, but I'll take it day by day.

Before APAP: [Image: DARTH-VADER_zpsa57946df.png]

After APAP: See avatar: R2D2 for the win!

"Be kind, for everyone you meet is fighting a great battle"
--Ian Maclaren

I don't snore! I just make creepy noises so the aliens know I'm not someone to be messed with.
05-31-2014 06:23 AM
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ShelaghDB Offline

Members-b

Posts: 267
Joined: Sep 2013

Machine: S9 Auto-Set +Resmed H5i
Mask Type: Full face mask
Mask Make & Model: Quattro Air FF Mask
Humidifier: resmed H5i
CPAP Pressure: 13
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Female
Location: Toronto, Ontario, Canada

Post: #17
RE: Is this normal
Hey Visitor, good for you. I am a bit jealous as I am not one of the ones like yourself that had any great "awakening" but I did not feel tired at all beforehand, even with Severe Sleep Apnea..............but glad to hear u got it sorted out so quickly
05-31-2014 07:57 AM
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Visitor Offline

Advisory Members

Posts: 164
Joined: Feb 2014

Machine: Resmed Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed P10 nasal pillows
Humidifier: Resmed Airsense 10 and heated hose
CPAP Pressure: 9
CPAP Software: SleepyHead

Other Comments: Started APAP on May 26, 2014. Benefits kicked in on May 31 thanks to forum help (leakage resolved)

Sex: Male
Location:

Post: #18
RE: Is this normal
Hi Shelagh, considering I was slowly turning into zombie man, very tired, no energy, and pushing on for years as you do to keep things moving regardless, with sports falling by the wayside, chores turning into mountains, etc. I think this may be why I feel great upon things turning around. I expect this may turn into the new "normal", i.e. I don't think I'll keep running around elated as I am now (it would be nice of course). My mind kept functioning well though. Somehow I could be creative and perform at work, despite feeling exhausted, and in spare time too, as long as it was something that did not involve more than writing things down. But physical work became an issue in the end. Now I'm zooming along, as I used to. We're a crazy active family in general, and I love sports. I used to swim 2km, ran a lot before that, and did a number of other sports. I still did some of that in the last years, but never consistent and it sort of petered out in the end. I'm so glad there is light at the end of this tunnel. So yeah, it's a great feeling, but if you're doing well in general, I simply think that's where I'm headed too now Smile Spikes like that don't last (except maybe with Herb and Retired guy who always seem on top of the mountain Wink).

Before APAP: [Image: DARTH-VADER_zpsa57946df.png]

After APAP: See avatar: R2D2 for the win!

"Be kind, for everyone you meet is fighting a great battle"
--Ian Maclaren

I don't snore! I just make creepy noises so the aliens know I'm not someone to be messed with.
(This post was last modified: 05-31-2014 12:59 PM by Visitor.)
05-31-2014 12:54 PM
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Visitor Offline

Advisory Members

Posts: 164
Joined: Feb 2014

Machine: Resmed Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed P10 nasal pillows
Humidifier: Resmed Airsense 10 and heated hose
CPAP Pressure: 9
CPAP Software: SleepyHead

Other Comments: Started APAP on May 26, 2014. Benefits kicked in on May 31 thanks to forum help (leakage resolved)

Sex: Male
Location:

Post: #19
RE: Is this normal
The one thing that surprised me is that before I was told to use the chin strap on this forum, I had a terrible day, feeling exhausted like I had run a marathon and woke up with a severe case of floppy eyelids, worse on one side, so I had trouble seeing. It's a little better now, but I'll have to talk to my sleep doctor about it. During the day, I had trouble breathing normally, and my heart rate felt odd. I just read that floppy eyelids are a symptom of OSA. Strange that it would get worse while being on the APAP. Not wearing the chin strap (I never was told to), seemed to have led to a worsening of that condition, before it got better. Too bad.

Before APAP: [Image: DARTH-VADER_zpsa57946df.png]

After APAP: See avatar: R2D2 for the win!

"Be kind, for everyone you meet is fighting a great battle"
--Ian Maclaren

I don't snore! I just make creepy noises so the aliens know I'm not someone to be messed with.
(This post was last modified: 05-31-2014 03:59 PM by Visitor.)
05-31-2014 03:20 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,988
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #20
RE: Is this normal
(05-31-2014 04:20 AM)Visitor Wrote:  I tried out the chin strap last night (couldn't get one delivered that fast, but I used a wide elastic band).
I woke at 7 am, fully refreshed and went for a one hour walk. I feel terrific. Thanks so much Sleepster, that did the trick! What an amazing phoenix machine! I'm so grateful to Dr. Sullivan for having invented the cpap.

It is a miraculous machine. For many of us the miracle happens much more slowly.

I'm glad you're enjoying your new lease on life. Many of us forget CPAP therapy is all about improving our awake time.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-31-2014 04:15 PM
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