Post Reply 
It happened again
Author Message
LolaBelle Offline

Preferred Members

Posts: 56
Joined: May 2013

Machine: Resmed Autoset S9
Mask Type: Nasal mask
Mask Make & Model: Wisp
Humidifier: H5i Climate Line
CPAP Pressure: 7
CPAP Software: ResScan

Other Comments:

Sex: Female
Location: Pennsylvania

Post: #1
Sad It happened again
So this is the third time this has happened im still currently waiting to see the doctor to get my cpap but all the same symptoms happened I felt fine the day before I just healed from the last episode it took a month and a half almost to feel normal again. That's what happened the first time. I woke up at 9 this morning and I was fine but tired so I went back to sleep and I woke up at 1:30 roughly I was on my side cause I remember looking at the table and my mouth was super dry and I had like...dried spit in the corners of both of my mouth which is unusual for the most part, numb feeling, blood sugar is 101-109 (I took it twice just out of curiosity) I was sweating and I have extreme muscle weakness and a headache, the sweating and the headache are new those didn't happen last time and neither did the dried spit in the corners of my mouth (sorry to be graphic)..

So from experience (the last two times this happened) the muscle weakness goes away mostly the first day and is there a small amount the second day but is pretty much gone but the mental impairment lasts for a while getting slowly better each day till im back to normal for the most part. This time the muscle weakness is stronger at least I think so from what I remember, first time I went to the docs for this they didn't find anything they said I was pre diabetic even tho my ac1 was 5.6 and my blood sugar was normal, the second time I went in and that's how I got diagnosed with sleep apnea and iw as praying this wouldn't happen again before I got my machine but it did, and I have to wait till the 31st to see the doc to get my cpap, what I need to know to ease my anxiety and fear is if anyone has ever experienced this, I know a lot of my symptoms are normal for sleep apnea but why would it happen so suddenly.... did I kill some brain cells from oxygen deprivation that need to heal? That's the only thing I can think of? I desperately need to know if this has happened to anyone else before because its making me wonder if its something else even tho ive seen two doctors now and had a blood panel and everything.... any experience or inside would help greatly I just don't know why it would happen so suddenly... Thank you

Sarah
(This post was last modified: 05-11-2013 03:13 PM by LolaBelle.)
05-11-2013 03:11 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
TBlizz Offline

Preferred Members

Posts: 46
Joined: May 2013

Machine: Resmed S9 Auto
Mask Type: Full face mask
Mask Make & Model: Quatro
Humidifier: Resmed
CPAP Pressure: 14 - 20
CPAP Software: Not using software Other Software

Other Comments: I am new to sleep apnea & looking for answers & hope aupport

Sex: Female
Location: Richmond, VA

Post: #2
RE: It happened again
Hi, I know your pain, I went to the ER because I woke up feeling my heart beating very fast & they said it was anxiety. I had to be admitted because it was happening everytime I went to sleep. The Dr from the hospital had to call the Sleep Specialist & have them get me a earlier appt because it was medically necessary. The only thing that's going to take those symptoms away is the C Pap machine. I've been on mine since last Thursday & my symptoms are fading. Good luck on getting an emergency appointment
05-11-2013 03:48 PM
Find all posts by this user Post Reply Quote this message in a reply
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #3
RE: It happened again
My suggestion is to learn some breathing exercises. It will help you to calm down and teach you some meditation exercises as well. Start taking yoga classes or Tai Chi.

I know it is hard for you to hear it but, really (in regards to sleep apnea), you will be okay. The idea now is for you to keep saying that to yourself and to just patiently wait. Try to not worry about it (ha! right?) but to instead get excited about it. Anticipation feels better than worry. Soon you'll have the mask, the machine, the works. Until then, you're going to be fine.

As long as there is not something else going on, it sounds as if it was "just" a panic attack. They can be frightening!

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-11-2013 07:10 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
LolaBelle Offline

Preferred Members

Posts: 56
Joined: May 2013

Machine: Resmed Autoset S9
Mask Type: Nasal mask
Mask Make & Model: Wisp
Humidifier: H5i Climate Line
CPAP Pressure: 7
CPAP Software: ResScan

Other Comments:

Sex: Female
Location: Pennsylvania

Post: #4
RE: It happened again
(05-11-2013 03:48 PM)TBlizz Wrote:  Hi, I know your pain, I went to the ER because I woke up feeling my heart beating very fast & they said it was anxiety. I had to be admitted because it was happening everytime I went to sleep. The Dr from the hospital had to call the Sleep Specialist & have them get me a earlier appt because it was medically necessary. The only thing that's going to take those symptoms away is the C Pap machine. I've been on mine since last Thursday & my symptoms are fading. Good luck on getting an emergency appointment

Thank you for your story it makes me feel better and less alone im really glad to hear your feeling better. I cant afford to go into the er I have great insurance because of my husband but its still 40 dollars to go into the er and as sad as this sound im broke right now lol but I am going to call the place and ask to be put on a list to get in sooner if someone cancels and let them know that im having some problems that are making it hard to function and I need to get in sooner, Im in Delaware staying with my mom right now but I live in Pennsylvania and I was going home Monday but I had my sleep studies done down here and there is a sleep doctor down here im going to call Monday and see if I can get in sooner than the place in Pennsylvania and I will have to stay down here a little longer if they get me in sooner I wanted to do it back home in PA but right now I just need to get in and start my therapy

(05-11-2013 07:10 PM)PaulaO2 Wrote:  My suggestion is to learn some breathing exercises. It will help you to calm down and teach you some meditation exercises as well. Start taking yoga classes or Tai Chi.

I know it is hard for you to hear it but, really (in regards to sleep apnea), you will be okay. The idea now is for you to keep saying that to yourself and to just patiently wait. Try to not worry about it (ha! right?) but to instead get excited about it. Anticipation feels better than worry. Soon you'll have the mask, the machine, the works. Until then, you're going to be fine.

As long as there is not something else going on, it sounds as if it was "just" a panic attack. They can be frightening!

Thank you for the suggestions and the kind words Im not anxious anymore and I still have all the symptoms this is the third time its happened now in the last 8 months and im the opposite from being anxious im so tired I feel like gravity is 10x what it normally is im just really weak and exhausted but now im worried to fall asleep Sad but either way im trying to just accept it
05-11-2013 07:26 PM
Find all posts by this user Post Reply Quote this message in a reply
TBlizz Offline

Preferred Members

Posts: 46
Joined: May 2013

Machine: Resmed S9 Auto
Mask Type: Full face mask
Mask Make & Model: Quatro
Humidifier: Resmed
CPAP Pressure: 14 - 20
CPAP Software: Not using software Other Software

Other Comments: I am new to sleep apnea & looking for answers & hope aupport

Sex: Female
Location: Richmond, VA

Post: #5
RE: It happened again
You hang in there, most Dr offices will take you if they know you are having other health issues. I know the feeling of being exhausted & scared to go to sleep cause the incident would happen. I'm going to pray for you that God touch the minds of the people working in the Dr office so, they will feel your urgent need & get you in ASAP & that you will have peace until you get your machine & start treating your condition
05-11-2013 09:03 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
LolaBelle Offline

Preferred Members

Posts: 56
Joined: May 2013

Machine: Resmed Autoset S9
Mask Type: Nasal mask
Mask Make & Model: Wisp
Humidifier: H5i Climate Line
CPAP Pressure: 7
CPAP Software: ResScan

Other Comments:

Sex: Female
Location: Pennsylvania

Post: #6
RE: It happened again
(05-11-2013 09:03 PM)TBlizz Wrote:  You hang in there, most Dr offices will take you if they know you are having other health issues. I know the feeling of being exhausted & scared to go to sleep cause the incident would happen. I'm going to pray for you that God touch the minds of the people working in the Dr office so, they will feel your urgent need & get you in ASAP & that you will have peace until you get your machine & start treating your condition

Honestly Thank you <3 You have no idea what that means to me believe me im feeling vulnerable and insecure right now because of this but having support and amazing people like you who will say prayers for me definitely relieves my anxiety and makes this a LOT easier to deal with and just accept the way I feel and just wait till I feel better once im on my cpap, The place in PA was the place I made my appointment with im going to call them and see if they can move me up and im going to call the place down here and ask what the soonest I could get in here in Delaware is I will call them Monday until than im down with my mom I came down here because of it happening a little while ago and I was feeling better so iw as gonna head home and than it happened again... I will just trust in the lord and try to relax until than which I think is going to be easy this time because even tho I was anxious earlier and it did send me into a panic im not nervous at all now im just exhausted and feeling weak and mentally slow, Thank you for your prayers and kind words <3

Sarah
05-11-2013 09:12 PM
Find all posts by this user Post Reply Quote this message in a reply
TBlizz Offline

Preferred Members

Posts: 46
Joined: May 2013

Machine: Resmed S9 Auto
Mask Type: Full face mask
Mask Make & Model: Quatro
Humidifier: Resmed
CPAP Pressure: 14 - 20
CPAP Software: Not using software Other Software

Other Comments: I am new to sleep apnea & looking for answers & hope aupport

Sex: Female
Location: Richmond, VA

Post: #7
RE: It happened again
No problem, the power of prayer is awesome & it keeps your mind off of the condition & more on the promise of God. I constantly read Psalms 23 & 39 to keep me encouraged. I hope it helps you<3
05-11-2013 09:46 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
LolaBelle Offline

Preferred Members

Posts: 56
Joined: May 2013

Machine: Resmed Autoset S9
Mask Type: Nasal mask
Mask Make & Model: Wisp
Humidifier: H5i Climate Line
CPAP Pressure: 7
CPAP Software: ResScan

Other Comments:

Sex: Female
Location: Pennsylvania

Post: #8
RE: It happened again
(05-11-2013 09:46 PM)TBlizz Wrote:  No problem, the power of prayer is awesome & it keeps your mind off of the condition & more on the promise of God. I constantly read Psalms 23 & 39 to keep me encouraged. I hope it helps you<3
I will read those psalms tonight Smile Thank you <3

Sarah
05-11-2013 11:09 PM
Find all posts by this user Post Reply Quote this message in a reply
TBlizz Offline

Preferred Members

Posts: 46
Joined: May 2013

Machine: Resmed S9 Auto
Mask Type: Full face mask
Mask Make & Model: Quatro
Humidifier: Resmed
CPAP Pressure: 14 - 20
CPAP Software: Not using software Other Software

Other Comments: I am new to sleep apnea & looking for answers & hope aupport

Sex: Female
Location: Richmond, VA

Post: #9
RE: It happened again
No problem <3
05-11-2013 11:20 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
ret-doc Offline

Members

Posts: 8
Joined: May 2013

Machine: DeVilbiss Standard Intellipap
Mask Type: Nasal mask
Mask Make & Model: Respironic Comfort Classic
Humidifier: Unsure-In storage now
CPAP Pressure: 8.0
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #10
RE: It happened again
Lola,

I know you are scared. There is no fear like what we experience when our body changes, and starts doing something different... especially in the night. We seem to experience our own mortality, more vividly, when we are most vulnerable.

I am a retired counselor.

I can not give you medical advice, diagnose, or even prescribe. I can talk as a friend (or family member) and perhaps help with, not what is causing the problem, but what to do to help yourself. Make sense?

One of the first things that caught my attention was you said you had been to your MD and they "didn't find anything wrong." Often, that means a Psychology issue, that they either give you a drug for or quietly send you home without any relief. The latter is most common when you don't exactly fit into the diagnostic criteria.

Secondly, the matted spit (sorry about being so graphic too) indicates you were in REM sleep after exhaustion. If you are correct that you are having sleep apnea... the thought explains a world of medical incidents. My own apnea can imitate a Disneyland of signs and symptoms. Sometimes it seems I am the only one hurting with aches and pains that go on for hours or days. (Last week, I was in a foreign city without my power cord. A CPAP without a power cord is a disaster in my life. I have slept with my machine for years and it is necessary).

See? You are talking my language. There are many of us who live the same terrors and anxieties. You just never know what others have to live with because most people won't talk about it.

When I was in grad school (a long time ago), I told a professor I was having panic attacks over school. She said, "Maybe you are not having panic attacks. Maybe you misidentified being excited." Someone else said something similar to you and I believe she is correct. Anticipation. Heavens, will the time never pass? <insert smiley face here>

Until you get your CPAP and get accustomed to a good nights sleep, you can help yourself with a couple of well-placed positive affirmations.

If you like, you are welcome to write to me and I will give you a "relaxation technique" that might be helpful.

And remember we all have friends, we have never met.

ret-doc
05-12-2013 03:56 AM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  What happened to Airing? OMyMyOHellYes 7 349 12-05-2016 09:22 AM
Last Post: kwhenrykerr
  Just when I thought you guys were geniuses.....this happened.... Daisylouu 4 457 09-29-2016 01:19 PM
Last Post: Daisylouu
Sad What just happened? Rcgop 12 776 07-30-2016 08:25 PM
Last Post: NorthernGuy
Question What happened? did my cpap failed to respond? ezdrifler 6 721 02-07-2016 12:59 AM
Last Post: Ghost1958
  It happened! My first night of sleep with an AHI under 5! SpeedyD 8 1,185 12-17-2015 03:03 PM
Last Post: DumfriesDik
  So What Happened? 2PAPs 7 1,075 09-29-2015 05:54 PM
Last Post: cate1898
  What happened last night? ISnoreBadly 20 2,799 09-09-2015 08:29 PM
Last Post: ISnoreBadly

Forum Jump:

Who's Online (Complete List)