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Just Diagnosed - Starting Treatment
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SleepySleeps Offline

Members

Posts: 18
Joined: Sep 2016

Machine: Resmed AirSense 10 AutoSet
Mask Type: Full face mask
Mask Make & Model: Simplus
Humidifier: Integrated set to Auto
CPAP Pressure: 8-15
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Southeast, United States

Post: #1
Just Diagnosed - Starting Treatment
I did a split sleep study on 8-4-16, and I just recieved the results today. 52 AHI, most of which were hyponeas while on my back.

Fortunately the sleep study was able to reduce the AHI to 13. My starting pressure was 5, then moved to 7, 9, and then 11. My new prescribed pressure range is 8-15.

I have an appointment to pick up an APAP, as perscribed by my doctor, tomorrow.

I have been reading this forum for the past month trying to get as prepared as I can. I think I am going to try to get a Resmed APAP. I wil make sure to check it against the recommended units on this site before accepting at my DME. I believe that I like the features of the Resmed the best, based on the forum posts that I have been seeing.

I had to use a full face mask at my sleep study, which they let me keep. I was not able to adjust to the nasal mask, I had to switch to the Quattro Air mask within about 30 seconds. Although in hindsight, they didn't give me any indication of what to expect with the mask, or how to breathe with it on. This was also before finding this forum.

I may try the dream wear mask with a chin strap. I like what I am hearing from some of the other forum posts.

Also, I know I need to get Sleepy Head setup. I will do this soon, so that I can post results to get feedback from this awesome forum.

A few questions that I have:
1. I had 77 hyponeas at one point. Is there anything different from obstructive apnea, as far as treatment is concerned?
2. Is my intended machine and mask choices good, or should I be considering something else initially? My DME has 30 day trial periods. Thankfully my insurance will cover 100%.
3. Would a new pillow or mattress assist? If so, does anyone have any specific recommendations?
4. During the study my oxygen desaturation only dropped to 85%. Is it worth investing in an oxygen monitor? I was eyeing a CMS 50F, based on previous forum posts here.
5. I have also been unofficially diagnosed with low testosterone. Is there any concern with treating Low T and sleep apnea at the same time?

Thank you in advance for this forum. You guys are awesome, based on all of the previous forum posts I have been reading.

I cannot say I am excited about sleeping with a mask, but I am ready to do, almost, whatever it takes to get better.

Thanks
09-07-2016 07:10 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #2
RE: Just Diagnosed - Starting Treatment
My recommendation for a pillow is the Papillow, or its Amazon knock off.

As to the rest of your questions, just wait and see how it goes with the therapy.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-07-2016 07:45 PM
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SleepySleeps Offline

Members

Posts: 18
Joined: Sep 2016

Machine: Resmed AirSense 10 AutoSet
Mask Type: Full face mask
Mask Make & Model: Simplus
Humidifier: Integrated set to Auto
CPAP Pressure: 8-15
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Southeast, United States

Post: #3
RE: Just Diagnosed - Starting Treatment
Thanks, Sleepster. I will look into that pillow.
09-07-2016 07:54 PM
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pupcamper Offline

Advisory Members

Posts: 400
Joined: Nov 2015

Machine: PR DreamStation CPAP Pro
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 Pillows; Quatro Air FFM
Humidifier: DreamStation Heated Humidifier
CPAP Pressure: 10.5 cmH2O; no ramp; no C-Flex
CPAP Software: SleepyHead EncorePro

Other Comments: Lung cancer survivor since 11/2004; CPAP since 11/2015

Sex: Male
Location: Van Buren, Arkansas, USA.

Post: #4
RE: Just Diagnosed - Starting Treatment
Welcome to the forum,SleepySleeps. Good luck with your treatment.

"....respiration,—a troublesome practice, but one which custom has rendered necessary to our easy existence...." Oliver Twist, Charles Dickens- 1837

I use FlashPAP to load data from a FlashAir III wifi sd card in my machine to my computer and display it with SleepyHead .
robysue's Beginner's Guide to SleepyHead
09-07-2016 08:05 PM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,376
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #5
RE: Just Diagnosed - Starting Treatment
Well we share the low T issue. I use T-cypionate injected weekly at 80 mg. While testosterone supplements can aggravate sleep apnea in untreated individuals, it should not have any affect on your CPAP treatment. Between treating obstructive apnea and normalizing your T levels, you should feel a significant improvement in energy, concentration and libido.

I have never used an oxygen monitor, and would suggest you defer that decision until you see how you feel after starting treatment. It's not likely necessary or useful unless you have problems getting good results. Give it some time with your new Autoset, and track your progress with Sleepyhead. I think you should do just fine.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
09-07-2016 08:07 PM
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SleepySleeps Offline

Members

Posts: 18
Joined: Sep 2016

Machine: Resmed AirSense 10 AutoSet
Mask Type: Full face mask
Mask Make & Model: Simplus
Humidifier: Integrated set to Auto
CPAP Pressure: 8-15
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Southeast, United States

Post: #6
RE: Just Diagnosed - Starting Treatment
(09-07-2016 08:07 PM)Sleeprider Wrote:  Well we share the low T issue. I use T-cypionate injected weekly at 80 mg. While testosterone supplements can aggravate sleep apnea in untreated individuals, it should not have any affect on your CPAP treatment. Between treating obstructive apnea and normalizing your T levels, you should feel a significant improvement in energy, concentration and libido.

I have never used an oxygen monitor, and would suggest you defer that decision until you see how you feel after starting treatment. It's not likely necessary or useful unless you have problems getting good results. Give it some time with your new Autoset, and track your progress with Sleepyhead. I think you should do just fine.

Sleeprider, while I am sorry that you have suffered. However, I am very encouraged to hear that my energy levels are likely to increase. Currently I am only making it to work 60% of the time. It has been this way for about a year and a half now. It will take me anywhere from 2-5 hours to get out of the house, on the days that I am even able to do so.

Thanks for the encouragement everyone.
09-07-2016 08:16 PM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,376
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #7
RE: Just Diagnosed - Starting Treatment
Well, if you decide to do injections instead of absorbent gels, I think after your first dose, you'll feel like you got shot out of a cannon. That subsides pretty quickly, but it can be pretty amazing. The gels for some reason did not work for me, and are stupid expensive compared to injection. I use an untraditional method instead of IM injections with that scary 1.5" needle. It is a 25 ga 5/8" needle in a small barrel syringe, and I self-administer pretty painlessly.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
(This post was last modified: 09-07-2016 08:35 PM by Sleeprider.)
09-07-2016 08:33 PM
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Apneaway Offline

Members

Posts: 18
Joined: Jun 2016

Machine: DreamStation AutoSet CPAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed P10M
Humidifier: DreamStation AutoSet CPAP
CPAP Pressure: 8-14
CPAP Software: Other Software

Other Comments:

Sex: Male
Location: Toronto, Canada

Post: #8
RE: Just Diagnosed - Starting Treatment
Well. You do know that Dreamwear mask is from Philips. To me I'd try to get the Dreamstation instead of Resmed if you like the Dreamwear or else you can get the P10 from Resmed for your Resmed machine. I know you can mismatch all the masks with the machines. Dreamwear has an X1 number you can input to the Dreamstation for pressure compensation or something like that. I myself have a Dreamstation but don't like the Dreamwear after I tried it.
09-07-2016 08:50 PM
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trish6hundred Offline

Advisory Members

Posts: 6,449
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #9
RE: Just Diagnosed - Starting Treatment
Hi SleepySleeps,
WELCOME! to the forum.!
I wish you good luck as you start your CPAP therapy.
Hang in there for more responses to your post.

trish6hundred
09-07-2016 09:14 PM
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SleepySleeps Offline

Members

Posts: 18
Joined: Sep 2016

Machine: Resmed AirSense 10 AutoSet
Mask Type: Full face mask
Mask Make & Model: Simplus
Humidifier: Integrated set to Auto
CPAP Pressure: 8-15
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Southeast, United States

Post: #10
RE: Just Diagnosed - Starting Treatment
(09-07-2016 08:50 PM)Apneaway Wrote:  Well. You do know that Dreamwear mask is from Philips. To me I'd try to get the Dreamstation instead of Resmed if you like the Dreamwear or else you can get the P10 from Resmed for your Resmed machine. I know you can mismatch all the masks with the machines. Dreamwear has an X1 number you can input to the Dreamstation for pressure compensation or something like that. I myself have a Dreamstation but don't like the Dreamwear after I tried it.

Apneaway, thanks. I forgot about the feature that the machines have predefined settings for masks from their same company.

Hopefully I will not be too "annoying" tomorrow at the DME. I definitely want to try several masks. I also intend to take full advantage of the 30 day trial periods.

I was sick and tired, of being sick and tired about 6 months ago. I fully intend to "take control" of my healthcare management instead of leaving it to the half-dozen different doctors that I am seeing.

I will definitely look at the P10. Thanks.
09-07-2016 09:31 PM
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