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Just diagnosed with apnea, need help buying a CPAP machine
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cpap_user_guy Offline

New Members

Posts: 2
Joined: Jun 2013

Machine: none
Mask Type: Full face mask
Mask Make & Model: none
Humidifier: none
CPAP Pressure: unsure
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #1
Just diagnosed with apnea, need help buying a CPAP machine
Hi folks. New user here, looking for some advice. Here's my situation:

I don't have insurance, and go to a sliding-scale clinic for my medical checkups.

My doctor referred me to the pulmonologist on staff for fatigue issues I was having, and after seeing him I went in to a sleep clinic to have a sleep study done.

I asked to see the results, but was refused. The results only were sent back to my pulmonoogist, who said I had high sleep apnea, which spiked whenever I went into REM sleep.

Unfortunately however, they said I needed to go back into the sleep clinic because they weren't able to get enough data to set the calibration.

So again I go in for the sleep study, and again I go and see the pulmonologist. He said he was going to order a machine, and that he would get me a special deal at $500.

3 weeks go by, and I haven't heard anything. I finally get a hold of him (difficult, because he's only at the sliding-scale clinic for a few hours each week). Well he flat-out forgot about me, and said he would order the machine ASAP.

Well now 3 weeks more have gone by, and I still haven't heard from him!

I need to take matters into my own hands here! Not only am I pissed at this lack of service, it feels like I'm being taken for a sucker, and the docs/clinic guys/machine providers all have some game worked out and they just try to keep people in the dark to extract as much money out of us as possible.

What should I do? I want to buy a cheap machine myself, used is fine. How would I set it up? If I get the info from the sleep clinic, would be that enough for me to go on?

Responses would be greatly appreciated.

Regards
06-15-2013 01:03 AM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: Just diagnosed with apnea, need help buying a CPAP machine
Hi and welcome to the board
Demand copy of the sleep studies reports and prescription, legally they are yours to keep. You need prescription for machine and masks
Prescription have CPAP pressure recommendation which you can use to setup the machine also mask type and size, usually the one used at the sleep clinic. For machines choices and what to avoid, see the link to Archie machines choices
http://www.apneaboard.com/wiki/index.php...ne_Choices

$500 for a machine does not sound much but you need data capable machine. Supplier #1 got "PR System One REMstar Auto CPAP Machine with A-Flex" include heated humidifier $595
Supplier List http://www.apneaboard.com/forums/Thread-CPAP-Supplier-List

Mask is the the hardest part, you need to be able try different types so you can figure which type and size works best for you

On-line suppliers offer "return insurance" allow you to try out masks and return for a refund within 30 days

You can get almost any clinical manual and setup instructions from Apnea Board
06-15-2013 03:30 AM
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trish6hundred Offline

Advisory Members

Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #3
RE: Just diagnosed with apnea, need help buying a CPAP machine
Hi cpap_user_guy,
WELCOME! to the forum.!
What zonk said, check out the links he posted. You'll find great information here on the board.
I'm sorry you have had such difficulty getting going on your CPAP journey.
Best of luck.

trish6hundred
06-15-2013 10:09 AM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #4
RE: Just diagnosed with apnea, need help buying a CPAP machine
Just get the ResMed S9 autoset.
That's what a lot of folks here have.
It does everything you need and gets the job done without costing a sizable fortune.
And best of all. It works!
Anything less will end up costing you more because you'll either stop using it, (that does not help your therapy)
or get an S9 anyway.

Been there, done that.
Smile

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
06-15-2013 06:49 PM
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cpap_user_guy Offline

New Members

Posts: 2
Joined: Jun 2013

Machine: none
Mask Type: Full face mask
Mask Make & Model: none
Humidifier: none
CPAP Pressure: unsure
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #5
RE: Just diagnosed with apnea, need help buying a CPAP machine
Thanks guys, I'll insist on getting the script, and look into that S9!

I feel much better now, way less confused.

Many thanks!
06-17-2013 06:32 AM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #6
RE: Just diagnosed with apnea, need help buying a CPAP machine
keep in mind there is more than one model of S9.
The "Elite", "Escape" and "AutoSet"

You want to insist on the S9 AutoSet. Wink

Escape collects no data. (worthless for your application)
Elite collects data but is only good for a set pressure. (limited usefulness)
AutoSet collects data AND floats the pressure up and down as needed during the night.
It it therefore able to react to ad-hoc situations.. (if you start to get into trouble and are having more obstructive apneas it will
automatically increase the pressure as needed and back down when not required)
(Get the AutoSet one. It's only $50 more than the Elite)

Don't let them give you any wooden nickles!

Wink

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
06-17-2013 10:06 AM
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archangle Offline
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Advisory Members

Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #7
RE: Just diagnosed with apnea, need help buying a CPAP machine
(06-17-2013 10:06 AM)Shastzi Wrote:  keep in mind there is more than one model of S9.
The "Elite", "Escape" and "AutoSet"

There's also an S9 Escape Auto that you should avoid.

If someone says "S9 Auto", be sure you get "AutoSet," not Escape Auto.

The word AutoSet appears next to the power button.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
06-17-2013 02:20 PM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #8
RE: Just diagnosed with apnea, need help buying a CPAP machine
Thanks Archangle.
That's a new one on me. Wink

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
06-17-2013 04:20 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #9
RE: Just diagnosed with apnea, need help buying a CPAP machine
(06-17-2013 02:20 PM)archangle Wrote:  
(06-17-2013 10:06 AM)Shastzi Wrote:  keep in mind there is more than one model of S9.
The "Elite", "Escape" and "AutoSet"

There's also an S9 Escape Auto that you should avoid.

If someone says "S9 Auto", be sure you get "AutoSet," not Escape Auto.

The word AutoSet appears next to the power button.
S9 series specifications guide and comparison chart
http://www.resmed.com/us/products/s9_ser...nc=dealers
06-17-2013 04:37 PM
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