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Just started my CPAP trial and struggling.
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slujones Offline

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Post: #1
Just started my CPAP trial and struggling.
Hello, everyone. I've just started my CPAP trial. I have severe sleep apnoea, I stop breathing 47 times an hour and have 27 hypopnoeas an hour so needless to say I feel pretty tired all the time and I need to do something about it.

I started my trial a few days ago and have had no success. The full face mask seemed to leak badly and woke me every time I drifted off (I even shaved off my beard that I've had for six years to try to help the seal). The nose mask caused air to blow out my mouth every time I fell asleep.

Basically I'm on here to get some encouragement. Did everyone have a really hard time to start? I know it's very early days for me but right now I feel worse than ever and I usually feel pretty bad.

Hope you guys can help me to get through this because I have heard a lot of positive things about CPAPs.
08-13-2012 12:07 AM
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JJJ Offline

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Posts: 751
Joined: Apr 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: Most recent: Wisp, Pilairo, Mirage Vista
Humidifier: ResMed S9 Autoset
CPAP Pressure: 17-20
CPAP Software: SleepyHead

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Sex: Male
Location: USA 97217

Post: #2
RE: Just started my CPAP trial and struggling.
(08-13-2012 12:07 AM)slujones Wrote:  Hello, everyone. I've just started my CPAP trial. I have severe sleep apnoea, I stop breathing 47 times an hour and have 27 hypopnoeas an hour so needless to say I feel pretty tired all the time and I need to do something about it.
I started my trial a few days ago and have had no success. The full face mask seemed to leak badly and woke me every time I drifted off (I even shaved off my beard that I've had for six years to try to help the seal). The nose mask caused air to blow out my mouth every time I fell asleep.
Basically I'm on here to get some encouragement. Did everyone have a really hard time to start? I know it's very early days for me but right now I feel worse than ever and I usually feel pretty bad.

Hang in there. It takes a LOT of patience. I started April 3 and I'm currently in my sixth mask and still tweaking things. Not only does it take a long time and a lot of patience to get things working for you, but the benefits can also be slow to arrive. Plan on a couple of months of fiddling with masks and figuring out how your machine works. But once the benefits start to appear you will bless the day you found CPAP. It has changed my life and given me an extra ten years of lifespan.
08-13-2012 12:44 AM
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zonk Offline

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Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #3
RE: Just started my CPAP trial and struggling.
Welcome slujones
Sorry to hear that you,re having problems. It can be overwhelming at first sleeping hooked up to a blower but over time it can get better and become a nightly routine just like brushing teeth or wearing pyjamas to bed. It took nearly a year to figure it and sleeping right through the night with the mask. Over tightening the straps can cause more leaks, Its best to wear the mask a bit loose and let the cushion fill with air to fully inflate and create a seal against the face. Have you thought what machine are you getting?
(This post was last modified: 08-13-2012 01:19 AM by zonk.)
08-13-2012 12:53 AM
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slujones Offline

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Post: #4
RE: Just started my CPAP trial and struggling.
Thanks for the encouragement. i haven't thought as far ahead as what machine I'll get just yet. I've just got to stick to it.
08-13-2012 01:17 AM
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F4tC4t Offline

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Posts: 9
Joined: Jul 2012

Machine: Resmed S9 VPAP S
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed H5i
CPAP Pressure: 10 -16.4
CPAP Software: ResScan SleepyHead

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Sex: Male
Location: Cape Town - South Africa

Post: #5
RE: Just started my CPAP trial and struggling.
(08-13-2012 01:17 AM)slujones Wrote:  Thanks for the encouragement. i haven't thought as far ahead as what machine I'll get just yet. I've just got to stick to it.

As everyone will say, just persevere with it, it pays off. I am just starting my 5th week on my machine and I am still fighting with my mask and waiting to have a full nights sleep, but I already feel the benefit as I am now getting sound sleep.

I no longer nod off at work and this last weekend we went away to a hotel and for the first time I have been able to feel really refreshed after sleeping in a strange place.

Even if I never get that elusive full nights sleep, i am not giving up using my VPAP. So hang in there Wink
08-13-2012 02:46 AM
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312capri Offline

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Joined: Jun 2012

Machine: Respironics BiPAP Pro
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro FX
Humidifier: Respironics System One Heated Humidifier
CPAP Pressure: 18/14
CPAP Software: SleepyHead

Other Comments: Quattro FX

Sex: Male
Location: New Mexico

Post: #6
RE: Just started my CPAP trial and struggling.
It took me several months to adjust. I started in March and have a bi-flex pressure of 18/14 so I know what a pain leaks can be... I stayed with it and feel so much better...
08-13-2012 07:47 AM
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Dreamcatcher Offline

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Machine: Resmed Autoset Spirit II with Quattro F/F & FX Masks
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Humidifier: H4i
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Post: #7
RE: Just started my CPAP trial and struggling.
Welcome

The crucial time with cpap is when you first start out. Some wear it the first night and then throw the mask across the room with a bugger that for a game, then you have the ones that try and usually succeed.

When you get your equipment, give yourself an hour during the day and take yourself up to bed. Set your machine up, put on your mask and adjust. Dont be scared of the mask, check it out or even take it to bits if you feel confident enough to do this but most of all get to know it and get to know what feels right then when your first night comes you will be ready and set up for hopefully a care free night.

DC
08-13-2012 07:59 AM
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PaulaO2 Offline
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Machine: S9 Autoset
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Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

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Location: western NC, USA

Post: #8
RE: Just started my CPAP trial and struggling.
Try wearing the mask and turning the machine on several times a day for a while. Wear it while reading or watching television.

Keep trying different masks. There's a lot out there of each kind and each one, even of the same type, fits a little differently.

If you are to succeed, you must keep trying. Even medications take a while to adjust and many times you have to try a different one before you find one that works. xPAP treatment is no different.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-13-2012 12:39 PM
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trish6hundred Offline

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Machine: Resmed S9 AutoSet for Her
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Post: #9
RE: Just started my CPAP trial and struggling.
Hi slujones, First of all, WELCOME! to the forum.! I'm sure sorry you are getting off to a rough start but hang in there; CPAP therapy can take LOTS OF PATIENCE and possibly several masks but don't give up on it, you've just begun. Best of luck and keep us posted.

trish6hundred
08-13-2012 12:39 PM
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lonnieb Offline

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Post: #10
RE: Just started my CPAP trial and struggling.
Hi slujones, WELCOME! to the forum.!
hang in there it all get's better ,you may have to try different mask but you will win in the long run.
08-13-2012 12:56 PM
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