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Just started my CPAP trial and struggling.
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zimlich Offline

Preferred Members-2

Posts: 392
Joined: Feb 2012

Machine: Respironics PR System One BiPap Auto SV Advanced
Mask Type: Nasal mask
Mask Make & Model: ResMed gel Nasal Mask
Humidifier: System One
CPAP Pressure: 8-20 ASV, 8 EPAP,PS 12
CPAP Software: Not using software

Other Comments: I use the Quattro FFM when necessary

Sex: Female
Location: Norfolk, VA

Post: #11
RE: Just started my CPAP trial and struggling.
Slujones, you've gotten a lot of good recommendations. The mask was the hardest part for me and I tried many. One old tried and true method of sealing you mask is very simple. Buy some silicone earplugs (usually Macks) take a few of them and roll them in your palms until soft, Fashion into a string the size of a pencil and place around the perimeter of your mask where it meet your face. It can last up to three days- lightly score the silicone the second and third days. If it seems not to be sealing, remove the silicone, roll into a ball, put in an airtight container and begin the next night.
Many of us had one problem or another when getting started. It's good you wrote for help.
Best of luck to you, with your attitude I'm sure you'll be successful.
08-14-2012 07:33 AM
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slujones Offline

Members

Posts: 6
Joined: Aug 2012

Machine: undure
Mask Type: Other
Mask Make & Model:
Humidifier: unsure
CPAP Pressure: unsure
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #12
RE: Just started my CPAP trial and struggling.
After two more nights I'm still not having much luck. Last night after a bit less than three hours without falling asleep for more than a minute or so at a time I ended up hyperventilating and had to get up and breath into a bag for a while.
08-14-2012 05:04 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #13
RE: Just started my CPAP trial and struggling.
My advice is to contact your doctor ASAP.
You may want to adjust the comfort feature on your machine exhale pressure relief (EPR, C-Flex) setting or turn it right off..see if it make any difference to your breathing.
08-14-2012 06:10 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #14
RE: Just started my CPAP trial and struggling.
Hi again slujones, What type of mask and machine do you have? Sorry to hear that you are still strugling with it but hang in there, it can take LOTS OF TIME & PATIENCE.

trish6hundred
08-14-2012 06:58 PM
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archangle Offline
Wiki Editor
Advisory Members

Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #15
RE: Just started my CPAP trial and struggling.
You need to figure out what particular CPAP machine you have. What does it say on the machine?

Why did you end up with a full face mask (FFM) ? In my opinion, a FFM should always be a last resort for people who can't breathe through the nose, or who leak air out their mouth. Unfortunately, a lot of lazy DMEs simply give them to everyone so they don't have to deal with finding the right mask.

You usually have 30 days to change masks for free if the one you have doesn't work.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
08-14-2012 07:31 PM
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slujones Offline

Members

Posts: 6
Joined: Aug 2012

Machine: undure
Mask Type: Other
Mask Make & Model:
Humidifier: unsure
CPAP Pressure: unsure
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #16
RE: Just started my CPAP trial and struggling.
I'm on a trial so I'm just using the apparatus they supplied me with. I've tried the nose mask and I leak air out my mouth very badly. I go back to my specialist tomorrow so I'm going to ask for a chin strap to try and explain what's going on. I'm not going to use either mask tonight, I'll try again after I speak to her.
08-15-2012 04:40 AM
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Podd Offline

Preferred Members

Posts: 41
Joined: Aug 2012

Machine: Resmed S9 Escape
Mask Type: Full face mask
Mask Make & Model:
Humidifier: Specific to Resmed S9
CPAP Pressure: Reduced to 13.5cmh2o
CPAP Software: ResScan

Other Comments: Glad i'm mad, it stopped me from going insane?

Sex: Male
Location: Abingdon-on-Thames (UK)

Post: #17
RE: Just started my CPAP trial and struggling.
Well, we have all been there so understand the problems, the right type of mask make's things a lot easier.
I was quite embarassed of mine at first and tended to sleep under the cover's (Something you can do in winter!)
Just hang in there it will get better.
08-15-2012 05:26 AM
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Moriarty Offline

Advisory Members

Posts: 270
Joined: Jul 2012

Machine: Respironics REMStar 50 Series Auto
Mask Type: Nasal pillows
Mask Make & Model: Fisher & Pakel Pilairo Q
Humidifier: Respironics System One
CPAP Pressure: 8.5-20 (average 9.4)
CPAP Software: SleepyHead

Other Comments: Image above is my CPAP machine...

Sex: Male
Location: Toowoomba - Qld - Australia

Post: #18
RE: Just started my CPAP trial and struggling.
(08-13-2012 12:07 AM)slujones Wrote:  ..... The full face mask seemed to leak badly and woke me every time I drifted off (I even shaved off my beard that I've had for six years to try to help the seal). The nose mask caused air to blow out my mouth every time I fell asleep.


Hi slujones...

I am also new to this business and I am still learning.

I could not find a full face mask that did not leak across the bridge of my nose.

I have always been a mouth breather so when I tried the nasal pillows with a chin strap I felt as though I could not get enough air.

In the end I have had good success with the ResMed Mirage Liberty which is a Mouth mask with nasal pillows built in. Unfortunately they seem to not be available any more but I got mine but buying the bits as spare parts.

I also found the Mirage Quattro FX reasonable. That is a small full face mask that goes across the nose much lower down than many full face masks.

The thing is that mask fit is a very individual thing and the mask that I swear by will be the mask that others will swear at....

I found that I was well served by my sleep tech provider who was prepared to lend me 4 different masks and two different machines in my quest for success - not all seem to be so lucky.
(This post was last modified: 08-15-2012 08:44 AM by Moriarty.)
08-15-2012 08:44 AM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,988
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #19
RE: Just started my CPAP trial and struggling.
(08-15-2012 08:44 AM)Moriarty Wrote:  In the end I have had good success with the ResMed Mirage Liberty which is a Mouth mask with nasal pillows built in. Unfortunately they seem to not be available any more but I got mine but buying the bits as spare parts.

These are called hybrid masks. There are lots of others available. Check the Suppliers List.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-15-2012 03:45 PM
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eaglett1111 Offline

Preferred Members

Posts: 52
Joined: Aug 2012

Machine: Phillips Remstar Pro C Flex
Mask Type: Nasal mask
Mask Make & Model:
Humidifier: System one
CPAP Pressure: 9
CPAP Software: Other Software

Other Comments: Software is Encore Basic

Sex: Female
Location: Northern California

Post: #20
RE: Just started my CPAP trial and struggling.
Hi slujones. Everyone here with more experience than we have has great advice. I was just noticing last night that I have adjusted in a new way to the nasal mask. When I first used it the pressure was nuts and I felt as if I was not able to catch a breath. I could not even open my mouth, and when I coughed it was scary. Now I seem to have gotten used to the pressure and can cough just fine. So the reason I mention this is that I am more and more realizing that it really does take time, and we will all go through stages, even when we have found the right mask. (or at least think we have found it!)
08-18-2012 10:20 AM
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