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Just starting out
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S10wanderer Offline

New Members

Posts: 1
Joined: Jan 2016

Machine: Resmed aircurve 10 asv
Mask Type: Full face mask
Mask Make & Model: Resmed f10
Humidifier: Resmed
CPAP Pressure: Unsure
CPAP Software: Not using software

Other Comments:

Sex: Female
Location:

Post: #1
Just starting out
Hi all,

For the new year (2016) I finally got to start ASV treatment. in 2014 I was woken by a terrorized (now) fiance because I don't breathe when I sleep. In the spring of the next year I had my first sleep study where the tech basically looked at me very confused when I arrived because she wasn't use to seeing a mid-twenty year old female in her sleep lab. She woke me up the next morning with another confused look saying that I have complex sleep apnea, and cpap didn't do anything (cpap had been put on in the middle of the night). I'm not told much but somehow get my next sleep study half a year later and ASV works and I again try to figure out what to do next-- I do a follow up at the local clinic where they do at least give me a copy of my sleep study-- and a lecture about how losing weight is what I really need to do (until I ask if that is really the cure for the central sleep apneas--then the doc admits to having not read the report). It takes another few months to actually get all the paperwork together for getting the machine -- luckily I started a new job and new insurance kicked in this January, which made the process much quicker (in two days after they got my info I had the machine... it was exciting!)

Of course, with the actual sleep study report I did get to see my actual numbers, while my O2 didn't go below 88% in the first study... they did measure an ahi of 150, mostly central events.

I guess my question is now, what do I expect? I'm a few weeks in and mostly just feel tired, but not the crashing type of tired I was before where I would get home and just am done for the day. Mostly it feels like I just need more sleep and if I don't get enough I get very cranky. It actually seems very weird to just feel tired all day. I use to get up early and have energy until early evening and then I would just crash and nothing could get done.

It just feels weird to be tired I guess?
01-22-2016 11:07 AM
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OpalRose Offline

Monitors

Posts: 3,168
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: Just starting out
Welcome to the forum, S10wanderer,

It's a good thing that your fiance discovered your breathing problem, or you may not have been aware.

First thing, order the Clinicans manual for your machine, link at top of page (CPAP Setup Manuals). This will tell you how to get into the providers menu and learn how to adjust settings if needed.

For now, fill out your profile with exact machine, mask name and the pressure ranges your machine is set to.

Then download the free Sleepyhead software (link also top of page).
This will help you to track your progress and learn more about your apnea.

Don't hesitate to ask questions here if you need help with pressure settings, or anything else. Also, at top of page is a Help link, with many good "how to" articles.

OpalRose
(This post was last modified: 01-22-2016 11:30 AM by OpalRose.)
01-22-2016 11:29 AM
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membus Offline

Members

Posts: 17
Joined: Dec 2015

Machine: ResMed S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: F&P Eson Nasal Mask
Humidifier: ResMed H5i
CPAP Pressure: 6-10 (EPR 3)
CPAP Software: SleepyHead

Other Comments: Therapy started on December 31st, 2015.

Sex: Male
Location: Istanbul

Post: #3
RE: Just starting out
(01-22-2016 11:07 AM)S10wanderer Wrote:  I guess my question is now, what do I expect? I'm a few weeks in and mostly just feel tired, but not the crashing type of tired I was before where I would get home and just am done for the day.

Same with me, 3 weeks in and don't feel any better than before xPAP therapy. Hope things will get better in time, as some point out.

http://www.fleksidea.com
01-22-2016 12:13 PM
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PoolQ Offline

Advisory Members

Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Sillicon Valley

Post: #4
RE: Just starting out
There are two things to remember about CPAP, there is the therapy settings and then there are the comfort settings. Chances are that they therapy will not work as well as it could if you are uncomfortable using it. 99.9% of the people are not going to be comfortable with all the comfort settings left at default. Only you can find your sweet spot for the comfort settings, go hunting and find them.
01-22-2016 01:26 PM
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trish6hundred Offline

Advisory Members

Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: Just starting out
Hi S10wanderer,
WELCOME! to the forum.!
Much success to you with your CPAP therapy and hang in there for more responses to your post.

trish6hundred
01-22-2016 08:57 PM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,342
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #6
RE: Just starting out
We have a number of members using ASV therapy, and it really helps to download the Sleepyhead software to see the effectiveness of the treatment, and if there is anything you need to consider to optimize it. Interesting story, and especially the "lose weight" lecture.

Be sure to keep a copy of your sleep study(s) in your personal files, as well as your prescription. Good luck, and welcome to the forums.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
01-22-2016 09:25 PM
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cate1898 Offline

Advisory Members

Posts: 784
Joined: Aug 2015

Machine: PR System One 560BT Auto
Mask Type: Nasal pillows
Mask Make & Model: P10's/backup-DreamWear
Humidifier: PR attached
CPAP Pressure: 8.5 - 13. A-Flex 3
CPAP Software: SleepyHead

Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #7
RE: Just starting out
Welcome S10wanderer and membus to the forum! Hope you both find all the answers you need and are successful in your SA therapy!

APNEABOARD - A great place to be if you're a hosehead!! Rolleyes

-------------------------------------------------------------------------------------------------
EVERY ACCOMPLISHMENT BEGINS WITH THE DECISION TO TRY!
01-23-2016 06:51 AM
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