He goes to sleep every night with the mask on.
Every morning it is off
If I am able to I check after about 50 minutes to an hour and put back on, as always off.
At diagnosis his AHI was 22
Had another sleep study.
AHI now 29.9 and he is having significant CSA events. We have been told his pressure band is narrow and if he is out of this he is having the CSA events. (Using CPAP) Longest apnea event was 47 seconds.
They recalibrated his pressure but he is still pulling it off
We have also tried hypnosis, but that does not seem to be helping.
He is repeating year 12 next year as he is not able to handle school at the moment and been diagnosed with Conversion disorder. He is now on anti anxiety meds. The hypnotist said his sleep apnea has been waking him d=for years, and his only anxiety is that he stops breathing in his sleep and that scares him. (which makes a bit of sense)
They are saying if the change in pressure does not work he will have to try an Adaptive servo ventilator.
His conversion disorder diagnosis is due to his balance issues, he goes through periods you would swear he was drunk. He staggers and stumbles and falls.
I still believe until we get his sleep under control he will not get better, as I think the lack of effective sleep is affecting his cognitive ability, his ability to cope and his stress levels.
GP agrees with me on this one
Gp has also asked up to see an allergy specialist to rule out allergies, though the ENT saw no sign of inflammation. Basically we are willing to try anything,
As parents we are very concerned. We had a great young man, with a great sense of humour, big ambitions and a great work ethic. He managed to attend 3 classes in term 3, and school 2 times a week but was sent home on all but the 3 occasions as he was not safe to be there. (due to chance of falling)
Frankly any insight would be great,