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Long Term CPAP Use
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genes Offline

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Post: #1
Long Term CPAP Use
Robyn Williams: Now what about long term users, because obviously this has been going on for a long time, so have you been able to see whether patients kind of become recidivists-they get their apnoea back again-or does the treatment last indefinitely?

Colin Sullivan: Well first of all it doesn't cure the apnoea it actually controls it, so it's a physical therapy that stops the key event which is obstruction which leads to all the consequences. By and large if people start to use it and accept it early, many of them will actually continue to use it over years. The first patient I put on died only recently, he died of another disorder, malignancy, and he actually used it every night virtually for 30 years until his death a few months ago and that's representative of a very large core of people.

I AGREE with the above quote from Colin Sullivan.
It is important that especially new users understand the long term benefits of CPAP so they will stay on it long term.
I am one of those long term users and will always be indebted to Colin Sullivan for inventing CPAP. The oldest CPAP machine that I can find in my basement is a Respironics Sleep Easy dated 2/8/1985. I have stayed on CPAP ever since and feel that I have avoided the major problems that lack of treatment can cause. I can still play tennis against my grand kids who are on the High School team and I know that without CPAP over the years I would not be able to do that. We need to find a way to get the other 90% or so untreated people with aponea on CPAP.
02-21-2013 11:03 AM
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Ugly Offline

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Post: #2
RE: Long Term CPAP Use
(02-21-2013 11:03 AM)genes Wrote:  Robyn Williams: Now what about long term users, because obviously this has been going on for a long time, so have you been able to see whether patients kind of become recidivists-they get their apnoea back again-or does the treatment last indefinitely?

Of course Robin Williams is known mostly for his comedy, not for being serious. Huhsign

Quote:We need to find a way to get the other 90% or so untreated people with aponea on CPAP.

And speaking of seriousness, when I was having trouble sleeping, and waking up being unable to breathe, my doctor of the time sluffed it off stating it was no big deal. Through some research, even before I had internet access, I learned of the term "sleep apnea" but the doctor ignored me. I had to wait until I started sleeping with someone Rolleyes who could then verify that I stopped breathing at night before the doctor would bother with me. So you see, it's not always the person's fault - sometimes it's the doctors that are so full of carp.
Doctor-no-get-it
02-21-2013 01:22 PM
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SuperSleeper Offline

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Post: #3
RE: Long Term CPAP Use
(02-21-2013 01:22 PM)Ugly Wrote:  Of course Robin Williams is known mostly for his comedy, not for being serious. Huhsign

Wrong Robin (Robyn)...

Robin Williams - Comedian:
http://en.wikipedia.org/wiki/Robin_Williams

Robyn Williams
- Science journalist & broadcaster:
http://en.wikipedia.org/wiki/Robyn_Williams


Coffee

SuperSleeper
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www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

02-21-2013 01:56 PM
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PollCat Offline
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Post: #4
RE: Long Term CPAP Use
(02-21-2013 01:22 PM)Ugly Wrote:  ...... - sometimes it's the doctors that are so full of carp.

Would that be river carp or the fancier, pond carp known as "Koi"? Dielaughing


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.
INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-21-2013 02:43 PM
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zonk Offline

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Post: #5
RE: Long Term CPAP Use
Read the full interview, In conversation with Professor Colin Sullivan; Snoring kills
http://www.apneaboard.com/forums/Thread-...ring-kills
02-21-2013 03:07 PM
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genes Offline

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Post: #6
RE: Long Term CPAP Use
Quote:We need to find a way to get the other 90% or so untreated people with aponea on CPAP.

And speaking of seriousness, when I was having trouble sleeping, and waking up being unable to breathe, my doctor of the time sluffed it off stating it was no big deal. Through some research, even before I had internet access, I learned of the term "sleep apnea" but the doctor ignored me. I had to wait until I started sleeping with someone Rolleyes who could then verify that I stopped breathing at night before the doctor would bother with me. So you see, it's not always the person's fault - sometimes it's the doctors that are so full of carp.
Doctor-no-get-it
[/quote]

The article was great.

I agree that it is not always the person's fault. It was early on when I was diagnosed so the local doctors did not know about apnea. I snored like a freight train and was always tired. My doctor did not have an answer. I then went to Mayo Clinic in Minnesota which is well known and they had no clue and did not test or diagnose me. Similar to you, I was diagnosed during sleep. My wife who read an article in the Chicago Tribune about a new condition - sleep aponea recorded me during sleep with a casset tape recorder and went to my local doctor who then read the article and listened to the tape. He then refered me to a specialist who tested and diagnosed me. I do not know what percent of doctors today are aware of sleep aponea and how many will prescribe testing but I hope that the lower cost initial testing that medicare and the insurance companies are pushing now will help get more people tested and diagnosed. I agree that the main reason that most people with aponea are untreated is that they are never tested or prescribed cpap.
Genes
02-21-2013 04:04 PM
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Ugly Offline

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Mask Make & Model: ResMed Mirage Micro
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Post: #7
RE: Long Term CPAP Use
(02-21-2013 02:43 PM)PollCat Wrote:  
(02-21-2013 01:22 PM)Ugly Wrote:  ...... - sometimes it's the doctors that are so full of carp.

Would that be river carp or the fancier, pond carp known as "Koi"? Dielaughing

Or maybe I'm trying to avoid nasty little words by rearranging a few letters. I don't want to be the one censored.
Rolleyes
02-21-2013 09:51 PM
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