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Long road of suffering
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Jimmy D Offline

Members

Posts: 9
Joined: Jun 2016

Machine: Respironics BiPAP auto sv
Mask Type: Nasal mask
Mask Make & Model: Resmed P10 nasel
Humidifier: Respironics
CPAP Pressure: unsure
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: San Diego CA USA

Post: #1
Long road of suffering
I was diagnosed with severe apnea in 2006. Insurance would only allow for an in home study and the result concluded that I needed a cpap machine with a pressure of 16cm. For the past 10 years I begged 3 different Doctors to have an overnight sleep study because I was feeling terrible. I was told that cpap was the solution and that I would just have to deal with it. I finally talked a VA Doctor to give me an overnight study and she agreed. My overnight study was inconclusive so my Doctor decided to change my machine to an ASV. I am feeling so much better! I have included an example of 1 night of cpap results from before I changed to ASV as well as last night's result from my new ASV machine. I would love to here some input as to whether or not I should adjust my settings at all. Thanks for your help!

1.) CPAP

http://i.imgur.com/LNcMRV7.jpg

2.) ASV

http://i.imgur.com/U8hWv1e.jpg

http://i.imgur.com/jXFSAx7.jpg
06-17-2016 08:36 PM
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kwhenrykerr Offline
Wiki Editor
Advisory Members

Posts: 242
Joined: May 2016

Machine: DreamStation Auto, AirSense 10 Auto
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Philips, AirSense 10
CPAP Pressure: 12-20
CPAP Software: SleepyHead

Other Comments: 2L added oxygen with CMS50F to check usage

Sex: Male
Location: Florida

Post: #2
RE: Long road of suffering
My experience has been that I have twice raised the low pressure and each time improved.Sleep-well

Just my personal opinion. My posts are not medical advice or a statement of fact. Please consult a qualified physician or other qualified medical personnel. Please comply with all applicable laws, codes, regulations, and protocols.
06-17-2016 08:53 PM
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richb Offline

Advisory Members

Posts: 534
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #3
RE: Long road of suffering
You have some pretty good numbers there. Are you able to sleep on your side? That might help with your snore numbers.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
06-17-2016 08:54 PM
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Jimmy D Offline

Members

Posts: 9
Joined: Jun 2016

Machine: Respironics BiPAP auto sv
Mask Type: Nasal mask
Mask Make & Model: Resmed P10 nasel
Humidifier: Respironics
CPAP Pressure: unsure
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: San Diego CA USA

Post: #4
RE: Long road of suffering
I'll try but I will need to tape a bowling ball to my back!
06-17-2016 09:28 PM
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Sleeeppp Offline

Preferred Members

Posts: 40
Joined: Oct 2015

Machine: ResMed S9 ASV Adapt
Mask Type: Full face mask
Mask Make & Model: Amara View/ Wisp Nasal mask
Humidifier: heated humidifier -climate control hose
CPAP Pressure: AutoASV (default setting)
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Aust

Post: #5
RE: Long road of suffering
what a difference the ASV has made!!
06-18-2016 02:28 AM
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pupcamper Online

Advisory Members

Posts: 400
Joined: Nov 2015

Machine: PR DreamStation CPAP Pro
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 Pillows; Quatro Air FFM
Humidifier: DreamStation Heated Humidifier
CPAP Pressure: 10.5 cmH2O; no ramp; no C-Flex
CPAP Software: SleepyHead EncorePro

Other Comments: Lung cancer survivor since 11/2004; CPAP since 11/2015

Sex: Male
Location: Van Buren, Arkansas, USA.

Post: #6
RE: Long road of suffering
(06-17-2016 09:28 PM)Jimmy D Wrote:  I'll try but I will need to tape a bowling ball to my back!

Hello, Jimmy.

Years ago, when I first started trying to learn to sleep on my side, I found that something as simple as putting a large, firm pillow on either side would help limit how far I could roll over. That and my wife's elbow in the ribs when the snoring got too bad helped me train myself to sleep on my side.

Congratulations on getting a machine that is finally giving you the treatment you need.

"....respiration,—a troublesome practice, but one which custom has rendered necessary to our easy existence...." Oliver Twist, Charles Dickens- 1837

I use FlashPAP to load data from a FlashAir III wifi sd card in my machine to my computer and display it with SleepyHead .
robysue's Beginner's Guide to SleepyHead
(This post was last modified: 06-18-2016 07:09 AM by pupcamper.)
06-18-2016 07:07 AM
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DeepBreathing Offline
Wiki Editor
Moderators

Posts: 2,296
Joined: Sep 2013

Machine: Resmed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Resmed H5i
CPAP Pressure: EPAP: 9 - 15 PS: 3 - 10
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Perth, Western Australia

Post: #7
RE: Long road of suffering
Congratulations on finally getting the right machine - your numbers look excellent.

It's a sad indictment of the medical profession that it took ten years to get there. If the night of CPAP you posted is typical, then I think your previous doctors are guilty of incompetence verging on malpractice.

DeepBreathing
Apnea Board Moderator
www.ApneaBoard.com


Bed

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
06-18-2016 08:55 AM
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chill Online

Advisory Members

Posts: 859
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: Walk-in Mask Closet
Humidifier: DreamStation
CPAP Pressure: 13-16
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #8
RE: Long road of suffering
What an improvement! I have a similar story with some low back pain. Two+ years of seeing this doctor and that before one took it seriously enough to order an MRI. Two weeks later I was in the OR! Sometimes it is hard to make doctors take you seriously.
06-18-2016 10:42 AM
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