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Long time cpap user having problems
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RedX Offline

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Posts: 4
Joined: Aug 2012

Machine: REMstar auto
Mask Type: Full face mask
Mask Make & Model:
Humidifier: unsure
CPAP Pressure: auto
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #1
Long time cpap user having problems
I've had sleep apnea for 5 years and I have been having so many problems lately. My mask seems to never stay sealed to my face. I have been sleeping worse that when I didn't use my machine. I have switched to 4 different types of masks and I still have the problem. I make sure the straps aren't too tight or too loose. I wash my mask every night with baby shampoo. I wash my face before bed with a face cleanser for oily skin. I've also tried just water or soap.

My problem is at least half way threw the night my mask starts leaking air and making noise because of it. It wakes me up constantly and makes my sleep horrible. I wake up feeling like crap and I feel very tired all day. I am a side sleeper and considered getting the special pillow, but haven't tried that yet

I've considered calling my doc but what can they really do. I've went to the supply company and tried on 20 masks. Any help???
08-22-2012 06:39 AM
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zimlich Offline

Preferred Members-2

Posts: 392
Joined: Feb 2012

Machine: Respironics PR System One BiPap Auto SV Advanced
Mask Type: Nasal mask
Mask Make & Model: ResMed gel Nasal Mask
Humidifier: System One
CPAP Pressure: 8-20 ASV, 8 EPAP,PS 12
CPAP Software: Not using software

Other Comments: I use the Quattro FFM when necessary

Sex: Female
Location: Norfolk, VA

Post: #2
RE: Long time cpap user having problems
Sometimes I just have to take my mask off once during the night, reseal it and it stays ok.
One solution for the desperate (and this really works) is using macks silicone earplugs to make a seal. Take a few ear plugs, roll and warm in your palms until pliable, fashion into a string the diameter of a pencil and place around the perimeter of the mask where it fits your face. Once you fit it to your face you won't be able to do much adjusting because of the silicone. You can try it as a short term fix. The next day or two lightly score the silicone so it will re-adhere, or take it off, roll into a ball and put into an airtight container and repeat the next night. Good luck.
08-22-2012 07:57 AM
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Dawei Offline

Preferred Members-2

Posts: 342
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Other
Mask Make & Model: Respironics "FitLife"
Humidifier: H5i
CPAP Pressure: 10-20
CPAP Software: ResScan SleepyHead

Other Comments: Began CPAP in 2006; spent the first 6 years with a "brick"

Sex: Male
Location: Western North Carolina

Post: #3
RE: Long time cpap user having problems
Hello, RedX and welcome. I have also been on CPAP for 5 plus years. I can report that the perhaps crazy sounding idea from Zimlich of using some silicone ear plug material shaped into a pencil like rope really does the job of eliminating mask leaks! I have been using the silicone every night since June 7th, and my mask leak problems are history! I'm talking zero leak shown on ResScan software most nights. If there is a leak occasionally it's a single digit number. And notice that right now my top end pressure is 19, high like yours. Zimlich mentioned Macks ear plugs, but it doesn't have to be that brand. Any brand of silicone. Walmart carries it as does CVS, and I'm sure others do too.
I remove the silicone from the mask seal area each morning and re-shape it before bed. I haven't tried Zimlich's idea of leaving it in place and scoring it. For the mask that he and I use, the primary leak area is across the forehead portion of the seal. So, that's where I place the silicone rope. I'm sure you can easily identify the seal area of your mask where leakage usually occurs.
08-22-2012 08:55 AM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #4
RE: Long time cpap user having problems
In terms of not sleeping well, it could be your pressure needs have changed. But you are using an auto so it should adjust for you. Have you looked at the data lately? If you are not sleeping well enough, you may be noticing the leaks more and getting easier-ly irritated by it.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-22-2012 09:55 AM
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trish6hundred Offline

Advisory Members

Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: Long time cpap user having problems
Hi RedX, First of all, WELCOME! to the forum.! I don't know the answer to the problem you are having but it sounds like you have gotten some GREAT suggestions. Best of luck to you on getting this straightened out.

trish6hundred
08-22-2012 10:40 AM
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RedX Offline

Members

Posts: 4
Joined: Aug 2012

Machine: REMstar auto
Mask Type: Full face mask
Mask Make & Model:
Humidifier: unsure
CPAP Pressure: auto
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #6
RE: Long time cpap user having problems
Thanks for the replies. Made a mask liner out of a t-shirt, read online to try. If this doesn't work I'll try the silicone. Do you make it into flat strip around edge or a thin rope. Maybe if you can show a pic on how yours is. Thanks
08-22-2012 09:33 PM
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Dawei Offline

Preferred Members-2

Posts: 342
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Other
Mask Make & Model: Respironics "FitLife"
Humidifier: H5i
CPAP Pressure: 10-20
CPAP Software: ResScan SleepyHead

Other Comments: Began CPAP in 2006; spent the first 6 years with a "brick"

Sex: Male
Location: Western North Carolina

Post: #7
RE: Long time cpap user having problems
RedX, I make the round silicone rope about the diameter of a pen or pencil and gently stick it to the mask seal. I find it easiest to form the rope by using the fingers of both hands together to gently roll the silicone on a smooth countertop surface. In the a.m., the rope has become fairly flattened by the pressure of the mask while the silicone did its job during the night. I hope this description helps.
08-23-2012 06:30 AM
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RedX Offline

Members

Posts: 4
Joined: Aug 2012

Machine: REMstar auto
Mask Type: Full face mask
Mask Make & Model:
Humidifier: unsure
CPAP Pressure: auto
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #8
RE: Long time cpap user having problems
My first night with my homemade mask liner went good. Didn't wake up because of mask leaking. Hope it continues to help out so I can get some much needed sleep
08-23-2012 06:38 AM
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eaglett1111 Offline

Preferred Members

Posts: 52
Joined: Aug 2012

Machine: Phillips Remstar Pro C Flex
Mask Type: Nasal mask
Mask Make & Model:
Humidifier: System one
CPAP Pressure: 9
CPAP Software: Other Software

Other Comments: Software is Encore Basic

Sex: Female
Location: Northern California

Post: #9
RE: Long time cpap user having problems
Welcome RedX, and congratulations! If I'm reading that last post right, you made the liner recommended by other members and it worked.

Love this forum!
08-23-2012 08:24 AM
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mjbearit Offline

Preferred Members-2

Posts: 605
Joined: May 2012

Machine: REMstar Auto AFlex DS550
Mask Type: Nasal pillows
Mask Make & Model: RESMed Swift FX
Humidifier: Heated humidifier - 2
CPAP Pressure: 12.5-20
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: So Cal

Post: #10
RE: Long time cpap user having problems
Maybe someone can explain something to me. I keep hearing about these mask liners and they seem to be made out of cotton or something for the most part. To me, this seems counter-intuitive. It seems to me like it would cause leaks rather than "fixing" them. The silicone thing I can see, but a porous substance doesn't make sense. I use nasal pillows so maybe that is why I don't understand, but it just seems....I don't know...odd, I guess.

As always, YMMV! You do not have to agree or disagree, I am not a professional so my mental meanderings are simply recollections of things from my own life.

PRS1 - Auto - A-Flex x2 - 12.50 - 20 - Humid x2 - Swift FX
08-23-2012 09:24 AM
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