Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

Looking for some help - almost 5 years and not feeling a lot better
RE: Looking for some help - almost 5 years and not feeling a lot better
Knowing that you have flow limitations, is the reason that it is going to the limit in pressure. Until you can get your PS high enough to reduce them below .2 (I think) the pressure will always go up to the limit.
Crimson Nape
Apnea Board Moderator
www.ApneaBoard.com
___________________________________
Useful Links -or- When All Else Fails:
OSCAR Chart Organization
Attaching Images and Files on Apnea Board
Beginner's Guide to Sleepyhead and OSCAR
Apnea Helpful Tips

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply






Donate to Apnea Board  
RE: Looking for some help - almost 5 years and not feeling a lot better
Agreed.  Around PS=4.4 is when the flow limits seemed to be capped at 0.25.  But at 10-15.4 I had a lot of aerophagia.  It was uncomfortable, and my lungs/chest became sore.  Actually, my lungs still are sore.  So it may take a while for them to calm down.

So the idea is to slowly creep up on PS from the current value of 3.4 to 4.4 over many days or weeks.  And to stay comfortable while doing it...  Seems like a plan?
Post Reply Post Reply
RE: Looking for some help - almost 5 years and not feeling a lot better
They are probably not accustomed to all the exercise. Big Grin
Crimson Nape
Apnea Board Moderator
www.ApneaBoard.com
___________________________________
Useful Links -or- When All Else Fails:
OSCAR Chart Organization
Attaching Images and Files on Apnea Board
Beginner's Guide to Sleepyhead and OSCAR
Apnea Helpful Tips

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
RE: Looking for some help - almost 5 years and not feeling a lot better
A gradual increase in PS is very likely a good idea for you so you can do the increase and get used to slight adjustments over time. As for FL, I think it seems most of the forum users tend to get sleep disturbances if we see OSCAR data on the FL chart at .25 and higher. I have it in mind that the FL .25 is the threshold of OK vs disturbed sleeping.

On the aerophagia, it should diminish with the more treatment time you put in. This isn't on a daily period of time, but rather you've been on PAP X weeks or months as in a bit more long term time scope, it that makes sense. I don't recall making adjustments to my therapy pressures to get the aerophagia resolved, but I chose positional changes that minimized the negative effects, and they seemed effective for me. This diminished after week 1 and seemed to be very minimal at around 2 weeks for me.
Dave

OSCAR
Standard OSCAR Chart Order
Mask Primer
Dealing With A DME
Soft Cervical Collar Wiki
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply






Donate to Apnea Board  
RE: Looking for some help - almost 5 years and not feeling a lot better
You might try using an elevated PS while awake. That way you are aware of swallowing air and can try overcoming it.

A big downside to having aerophagia/flatulence is you can't sneak up on your wife. Big Grin
Crimson Nape
Apnea Board Moderator
www.ApneaBoard.com
___________________________________
Useful Links -or- When All Else Fails:
OSCAR Chart Organization
Attaching Images and Files on Apnea Board
Beginner's Guide to Sleepyhead and OSCAR
Apnea Helpful Tips

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
RE: Looking for some help - almost 5 years and not feeling a lot better
it's worth a try but from what I've read, pressure won't relieve palatal prolapse. I'll be he contrarian here: I'd keep max ps and ipap as low as you can for comfort and to avoid aerophagia. while there's no harm in trying different settings, I'd stay with what's working for you until/unless the wheels fall off at these settings.
Post Reply Post Reply
RE: Looking for some help - almost 5 years and not feeling a lot better
@sheepless, at the moment, I fully agree.  I'm going to park these settings and let them continue with their magic.  Hopefully I don't need to change anything for quite some time.  Rather liking how it feels now, so let me dwell here a while. Smile
Post Reply Post Reply






Donate to Apnea Board  
RE: Looking for some help - almost 5 years and not feeling a lot better
You have permission to "dwell here for a while".

I'll fax the "script" to do so. Keep a copy in your personal file that hopefully is not file 13. Coffee
Dave

OSCAR
Standard OSCAR Chart Order
Mask Primer
Dealing With A DME
Soft Cervical Collar Wiki
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
RE: Looking for some help - almost 5 years and not feeling a lot better
There is so much talent and desire to help on Apnea Board, and every problem has a mentor with experience that can help. This is the reason I "nudged" you back onto the forum. I don't pretend to be the best source for every problem and you have found what you needed among our many talented contributors. I have learned not to consult privately, because everything works better when you get the collective thoughts of the forum. I'm really glad that you got the help you needed...but 25 pages, wow!
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files
Mask Primer
How To Deal With Equipment Supplier


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
RE: Looking for some help - almost 5 years and not feeling a lot better
Most of it has been dogged persistence on my part.  Just wanting to get better.  Not giving up, although the urge was strong.  It's been a struggle.  I can say things are a lot better now.  Really grateful for the help.

Hope in some small way that I can give back and help others get further along in their apnea journey.
Post Reply Post Reply






Donate to Apnea Board  


Possibly Related Threads...
Thread Author Replies Views Last Post
  Five years with cpap and just found this board kc5tty 7 262 12-27-2020, 03:49 PM
Last Post: Sleeprider
  [UPDATE] Improvment thanks to you, but feeling "sleepy" rafaaa 1 169 11-17-2020, 02:58 PM
Last Post: deity999
  Feeling Bad Over Good Scores: Help Please TiredOne789 26 892 11-11-2020, 05:57 PM
Last Post: OpalRose
  [Symptoms] 1 year into therapy feeling tired again novanoe 2 179 11-09-2020, 02:17 PM
Last Post: staceyburke
  Raw, dry feeling in Nose and sinuses kshansen 4 228 10-29-2020, 10:40 AM
Last Post: happydreams
  Any thoughts on problem with gap between teeth since using CPAP for a few years? green wings 17 555 10-21-2020, 12:23 PM
Last Post: Hydrangea
  5 years on cpap, no improvement. getting desperate for some help. kc210 38 1,048 09-20-2020, 06:24 PM
Last Post: sheepless


New Posts   Today's Posts






About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.