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Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
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Mark Douglas Offline

Advisory Members

Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #1
Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
Hi folks been a while which is great news inasmuch as what I have learned here has made my life so much better and I am out and about actually doing things Thanks

On to the subject.

After obsessing the subject of OSA for months, mostly here, I bought a machine and began self treatment. Best thing I ever did. If I look at my first posts I'm surprised my crabby donkey wasn't ran off Too-funny Out of curiosity I went to a sleep doc to see if he had anything to offer. He insists my self treatment is going to damage my lungs with too high a pressure. Being respectful of his many years of experience I agreed to try it his way at lower pressure and straight CPAP (and I have three times) and have each felt worse. Return of GERD, sinus pain and coughing, tired and crabby in the morning. (so sayeth my wife anyway :oh-jeezSmile He also blows smoke telling me I am very intelligent and impressed with my research and understanding of the subject but I am at risk from the high pressures I am using. However when I ask how high a pressure is too high I cannot get a straight answer. So I come here to research how high is too high and I find this thread; http://www.apneaboard.com/forums/Thread-...h+pressure
Making a long story I have concluded he is just yanking my chain to show this smart ass who thinks he can manage his own therapy without a high priest of sleep medicine. Needless to say I won't be returning.

Thanks for listening Sleep-well

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
10-16-2015 09:06 PM
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Stumbonie Offline

Members

Posts: 8
Joined: Oct 2015

Machine: Resmed AirSense 10 Elite
Mask Type: Full face mask
Mask Make & Model: Respironics Fitlife Full Face
Humidifier: None
CPAP Pressure: 19.5
CPAP Software: Not using software

Other Comments: CPAP since 1999

Sex: Undisclosed
Location: USA

Post: #2
RE: Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
Did the Doc suggest a sleep study to confirm settings?
10-16-2015 10:18 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #3
RE: Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
You have a bilevel, not a ventilator. As long as you stay under 20, you can't hurt your lungs. What drugs does this doctor take??

Anything else we can do to help, just let us know. And if you blow up like a balloon, just tie a rope to your foot and anchor yourself to a cinder block or something until it wears off.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
10-16-2015 10:18 PM
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big_dave Online

Advisory Members

Posts: 411
Joined: Apr 2012

Machine: PR System One DS560
Mask Type: Nasal pillows
Mask Make & Model: F&P Pilairo Q or ResMed Mirage Activa
Humidifier: PR System One
CPAP Pressure: 14 - 20
CPAP Software: SleepyHead

Other Comments: Former ResMed S8 Autoset II user

Sex: Male
Location: Eugene, Oregon

Post: #4
RE: Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
As long as you're reasonably healthy, a CPAP or bilevel machine cannot damage your lungs. You get 18 cmH2O of pressure while diving at snorkel depth
A SCUBA diver gets far more pressure.
10-16-2015 10:26 PM
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WakeUpTime Offline

Advisory Members

Posts: 156
Joined: Jan 2014

Machine: PR System One BiPAP S60 Auto 760
Mask Type: Nasal pillows
Mask Make & Model: P10 pillows
Humidifier: PR S1 w Heated Tube+Hose
CPAP Pressure: Auto / Inhale 11-12.5 / Exh 9
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location:

Post: #5
RE: Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
Our 760 PR S1 that we both use is pretty advanced technology. So too is Sleepyhead. That combination should give us the ongoing summaries of which pressures are working out the best. Add to that this absolutely powerful resource forum that improves lives (probably even saved some), and we'll have an improved quality of life. Of course there's no substitute for an on-call personal expert, but you and me both don't have that luxury.

I've been away from the board for a bit perhaps a result of becoming more stable and routine with my daily cpap use. I now realize how important it is to stay connected, both researching and advising others.

I'm continually impressed and excited to see how the resources, aids and tools continue to grow from this board. Wow. It's feels like my secret team behind me cheering me on to survive another week with this darned curse called sleep apnea.

Keep on going strong! ...and please share your tips and tricks that might inspire and help others.

Sleep Apnea has given me a terrible memory. Please forgive me if I've repeated myself.
(This post was last modified: 10-17-2015 01:10 AM by WakeUpTime.)
10-17-2015 12:59 AM
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AlanE Offline

Advisory Members

Posts: 1,496
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #6
RE: Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
Mark! good to see you are well sir. Trust your instincts.



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
10-17-2015 07:42 AM
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speedy Offline

New Members

Posts: 3
Joined: Sep 2015

Machine: ResMed AirCurve 10 VAuto
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: Integral to machine
CPAP Pressure: 16 - 20
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #7
RE: Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
Just to provide another data point, I did the full in hospital sleep lab about a month ago and was diagnosed with OSA (over 100 events/hour). They have my machine set to 16.0 EPAP 20.0 IPAP. Has not caused me any problems, events < 5/hour most nights.
I feel like I am waking up from a coma.
10-17-2015 08:09 AM
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GrammaBear Offline

Advisory Members

Posts: 381
Joined: May 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Air Fit P10
Humidifier: ResMed H5i heated humidifier
CPAP Pressure: 12.2 - 16.2
CPAP Software: SleepyHead

Other Comments: Type 1 diabetes - using Tandem T-slim insulin pump, Dexcom G4 CGM

Sex: Female
Location: northern Illinois

Post: #8
RE: Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
(10-17-2015 08:09 AM)speedy Wrote:  Just to provide another data point, I did the full in hospital sleep lab about a month ago and was diagnosed with OSA (over 100 events/hour). They have my machine set to 16.0 EPAP 20.0 IPAP. Has not caused me any problems, events < 5/hour most nights.
I feel like I am waking up from a coma.

Speedy - I like the description off your last sentence. That is exactly how I felt when I first started cpap therapy back in 2009. Prior to therapy and during my initial sleep study I had 139 events per hour and I guess the doctor thought that was too many, so he ordered a 2nd sleep study several nights later. During the 2nd study I had 169 events so they cut the study short, sent me home and ordered a machine for me to be delivered to my home. Glad you are doing well.
10-17-2015 09:19 AM
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Mark Douglas Offline

Advisory Members

Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #9
RE: Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
(10-16-2015 10:18 PM)Stumbonie Wrote:  Did the Doc suggest a sleep study to confirm settings?

Had one yrs ago but too stubborn too to want to wear a mask. Yes totally stupid and I caused myself a lot of hurt! In fact it is now obvious I suffered from OSA at least since my teenage years some 45 yrs ago. Finally I just went out and bought a machine out of pocket after my total collapse. GP was quite willing to write me a newer Rx even though the old ones were still valid.

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
10-17-2015 10:00 AM
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Mark Douglas Offline

Advisory Members

Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #10
RE: Mark's excellent adventure with a sleep doc or how I am going to kill myself ...
(10-17-2015 07:42 AM)AlanE Wrote:  Mark! good to see you are well sir. Trust your instincts.

Old (well ancient) motor house is being rehabbed parallel to house house rehab and should be moved to PG area next month if it makes the 1000 mi trip.

Must get ourselves to the Celtic Ray and raise a pint :grin: Cool CPAP night at the Celtic Ray? I wonder how many would attend Big Grin

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
(This post was last modified: 10-17-2015 10:14 AM by Mark Douglas.)
10-17-2015 10:13 AM
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