Post Reply 
More than sleep apnea
Author Message
storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #1
More than sleep apnea
I am realizing that there must be more wrong with my sleep than sleep apnea. Yes the forced air is stopping my gasping for air at night and no or few night time bathroom breaks are good. But I just cannot get a good sleep. I had thought I had found a mask that worked for me, but now it is not...its been an awful...seeing my regular doc next week to see what my options are...

I am so sleepy, going for a nap.....

Story
08-07-2014 12:05 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
BillPedley Offline

Members

Posts: 4
Joined: Jul 2014

Machine: Remstar 1 auto
Mask Type: Full face mask
Mask Make & Model: Quatro FX med
Humidifier: Remstar series 1
CPAP Pressure: 8-18
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #2
RE: More than sleep apnea
I am in the exact situation here. I'm trying everything. At the point now to just throw everything in the trash!!!. I think I'm better but still feel tired sometimes .
08-07-2014 12:17 PM
Find all posts by this user Post Reply Quote this message in a reply
bwexler Offline

Advisory Members

Posts: 563
Joined: Mar 2012

Machine: PRS 1 BiPAP autoSV Advanced, with Heated Tube humidifier
Mask Type: Nasal mask
Mask Make & Model: Sleepweaver √Član
Humidifier: Resperonics Heated Tube humidifier
CPAP Pressure: Max pressure 25.0 cm H20, Max
CPAP Software: SleepyHead EncorePro

Other Comments: CMS 50i with Software for SpO2

Sex: Male
Location: San Marcos, CA, USA

Post: #3
RE: More than sleep apnea
Both of you are still new to PAP.
You forgot to read all the posts that suggest to need to go through a dozen or more masks to find the right one.
Keep PAPing and trying new masks and one day your body will have healed to the point where to forget to take your afternoon nap.
08-07-2014 12:42 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #4
RE: More than sleep apnea
Well guys, you are not doing or expressing anything that has not been said by many or most of us in the past.

What I would tell you is it is time to step back and see what's going on that's right, and what's going on that needs to be better.

To help you with that we need statistics. We need to know what your original ahi was, what it is now, and what pressures you are set on, and so forth.

So more info is helpful that we might help you.

What is not helpful is to get so discouraged that you want to "throw everything in the trash." Know that this therapy has worked for many many others, and it will work for you. But it requires your continued commitment to get that done.

So good job reporting your feelings, that's the first step. Now lets get to work.
08-07-2014 12:53 PM
Find all posts by this user Post Reply Quote this message in a reply
Terry Offline

Advisory Members

Posts: 553
Joined: May 2014

Machine: Philips Respironics RemStar Auto with A-Flex (560P)
Mask Type: Nasal pillows
Mask Make & Model: P/R Nuance & Pap Cap
Humidifier: Integrated
CPAP Pressure: Auto
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #5
RE: More than sleep apnea
(08-07-2014 12:42 PM)bwexler Wrote:  Both of you are still new to PAP.
You forgot to read all the posts that suggest to need to go through a dozen or more masks to find the right one.
Keep PAPing and trying new masks and one day your body will have healed to the point where to forget to take your afternoon nap.

Don't give up. I've been though maybe a dozen masks, including probably 4 that I bought over the Internet, not from my DME, because my DME only sells Phillips Respironics masks.

The one that woks perfectly is ugly and has a design that's probably 20 years old, and I love it.

Before I got my CPAP machine, I spent decades feeling like crap. Now I wake up and think "Hey, I feel pretty awesome!" and naps are something I might take on a weekend, as an infrequent treat, if I have time, not something I need every day to just deal with life.

Don't give up. Also don't settle. if things aren't working out, change stuff. Equipment, settings, DME providers, doctors, whatever is necessary.

Terry
08-07-2014 01:38 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #6
RE: More than sleep apnea
OK...I am on my 5th mask, this one seems mainly OK, low leaks, it stays on...

I am fine with dealing with the air pressure, the machine has stopped my waking up gasping for air, no bathroom breaks anymore...

then the nasty stuff.

I am on a fixed pressure of 10, I was on 9 until they changed it to 10 for Wednesday night, did not inform me, had a rough night..

Major sleepiness, this morning just felt like going back to bed. Looking at my data I can see the OSs are way down, still getting a few CAs, these I am beginning to feel are Sleep/Wake/Junk as I don't have any of the criteria for brain damage, well mostly, lol...

I have one query, I notice that I have a few Periodic Breathing episodes, and I have noticed that I tend to stop breathing when I am out and about, have to remind myself to take a breath...Can't seem to get the sleep tech attention with that one, should I be concerned??

I have attached a table of some data for the last week if anyone has the time to take a look, that would be great...

going for a nap...

all the best,

S
(This post was last modified: 08-10-2014 03:32 PM by storywizard.)
08-10-2014 02:37 PM
Find all posts by this user Post Reply Quote this message in a reply
surferdude2 Offline

Advisory Members

Posts: 1,077
Joined: Jul 2014

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro & Optilife
Humidifier: ResMed H5i @ #3 if nose breathing & #5 if mouth breathing
CPAP Pressure: 12 ~ 20 & 11 ~12 if nasal mask
CPAP Software: ResScan SleepyHead

Other Comments: Late stage 2 emphysema

Sex: Male
Location: Mousetown, Southern Illinois

Post: #7
RE: More than sleep apnea
I'm looking but see no table?
08-10-2014 03:00 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #8
RE: More than sleep apnea
(08-10-2014 03:00 PM)surferdude2 Wrote:  I'm looking but see no table?

the board software does not like RTF files, so I made a Wod doc, its there now...:-)

S
08-10-2014 03:31 PM
Find all posts by this user Post Reply Quote this message in a reply
Galactus Offline

Advisory Members

Posts: 1,388
Joined: Jan 2014

Machine: Phillips Respironics System One PRS1 DS760P Auto BiPAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed Airfit P10 Nasal Pillow
Humidifier: System One Heated Humidifier + Climate Line
CPAP Pressure: E/I 13/20 PS 4/7 BiFlex 3
CPAP Software: SleepyHead EncoreBasic

Other Comments: Sleep can be a good thing.

Sex: Male
Location: USA

Post: #9
RE: More than sleep apnea
You didn't get this way in a few weeks, and you are not going to get better in a few weeks. It does take some time for the vast majority, and in the interim you have to focus on the positives, even if they are small positives, one small step a step at a time and sooner or later you feel much better and don't even realize it. hang in there because throwing it all in the trash will just insure you're not getting better.

If everyone thinks alike, then someone isn't thinking.
Everyone knows something, together we could know everything.
08-10-2014 05:08 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #10
RE: More than sleep apnea
(08-10-2014 05:08 PM)Galactus Wrote:  You didn't get this way in a few weeks, and you are not going to get better in a few weeks. It does take some time for the vast majority, and in the interim you have to focus on the positives, even if they are small positives, one small step a step at a time and sooner or later you feel much better and don't even realize it. hang in there because throwing it all in the trash will just insure you're not getting better.

throwing it all in the trash was not me...:-) That was Bill P...

I understand about the gradual thing, I am 64, been this way half my life...its going to be a long haul I understand that...I am trying a few different therapies that complement CPAP...one day at a time...

thanks for the support..

Story
08-10-2014 05:16 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
Angry [News] DANGER OF UNDIAGNOSED SLEEP APNEA srlevine1 7 564 11-21-2016 03:26 PM
Last Post: srlevine1
  Central Sleep Apnea? wayne99 8 786 11-20-2016 06:39 AM
Last Post: wayne99
  Sleep Apnea Alphabet Soup ladytimes 2 220 11-13-2016 02:16 PM
Last Post: ladytimes
  [News] Vitamin D - possible help for sleep apnea patients? ApneaNews 46 14,043 10-28-2016 05:01 PM
Last Post: scotty
  Sleep Apnea Surgery zeeser 5 599 10-26-2016 02:42 PM
Last Post: Kadenz
  Ordered a Auto CPAP / Was diagnosed with Sleep Apnea jakthebomb 15 821 10-18-2016 08:00 AM
Last Post: southerndoc
Sad [Diagnosis] Negative for Sleep Apnea? jakthebomb 19 1,299 10-13-2016 03:28 PM
Last Post: jakthebomb

Forum Jump:

Who's Online (Complete List)