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My First Thirty Days
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quiescence at last Offline

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Post: #11
RE: My First Thirty Days
@bluehorseshoe - I ran across the study #labrat refers to a couple weeks ago, or one similar. I will try to locate it.

UPDATE:

most likely it was Figure 3 of this publication, and use of CPAP less than one hour a day is a non-scientific approximation to non-treated.
this discusses a case study of moderate to severe diagnosed OSA patients of which 40% survived after 84 months (7 years) [if they did not use the CPAP treatement]

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2727690/

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
(This post was last modified: 12-29-2014 12:22 PM by quiescence at last.)
12-29-2014 11:27 AM
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lab rat Offline

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Post: #12
RE: My First Thirty Days
I was given those stats in Melbourne in 1998.
12-30-2014 09:15 AM
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lab rat Offline

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Post: #13
RE: My First Thirty Days
(12-29-2014 11:04 AM)denton Wrote:  
(12-28-2014 08:00 AM)lab rat Wrote:  And about 2 years later I went to a seminar run by the local Sleep Clinic where they told us the average life expectancy of somebody with Obstructive Sleep Apnea is 7 years if untreated. The build up of sleep and oxygen deprivation as well as stress on the heart and lungs to gasp for air and keep breathing leads to degeneration of both as well as a 100% chance of stroke and/or heart attack.

So yeah... lol

Thank you LabRat (and everyone) for your comments and helpful tips. Now if I can just fix the bridge of my nose.... lol.

I think I've probably gone ten years before getting treatment and I'm still here and except for the hypertension (which is now going down) I'm in pretty good shape. I've had two echocardiograms and three EKGs in the last year or so (cuz doctors get paid now by ordering tests.) Having said all that, I should have taken care of it a long time ago. But better late than never.


Thing is, the longer it goes untreated the more things start going wrong with your body. Some irreversible.
12-30-2014 09:19 AM
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quiescence at last Offline

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Post: #14
RE: My First Thirty Days
My sleep practitioner told me, based on surveys of new patients, it takes an average of approximately 8 years after first symptoms (mostly snoring) before a person seeks medical help. The previously quoted study says most of the diagnosed patients that do not use CPAP regularly die within 7 yrs. Combining the two, a good estimate of how long the OSA-->damage-->death cycle takes is 15 yrs.

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
12-30-2014 11:28 AM
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DariaVader Offline
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Post: #15
RE: My First Thirty Days
(12-30-2014 11:28 AM)quiescence at last Wrote:  My sleep practitioner told me, based on surveys of new patients, it takes an average of approximately 8 years after first symptoms (mostly snoring) before a person seeks medical help. The previously quoted study says most of the diagnosed patients that do not use CPAP regularly die within 7 yrs. Combining the two, a good estimate of how long the OSA-->damage-->death cycle takes is 15 yrs.

I am 56 and have had apnea my whole life - or at least since I can't prove that for lack of a study, some very compelling symptoms have existed my whole life. I finally got a sleep study last october and a cpap in november. How fast it kills you may have a considerable number of other variables Smile
12-30-2014 12:54 PM
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quiescence at last Offline

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Machine: REMstar System One with Autoflex
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CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

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Post: #16
RE: My First Thirty Days
yep. this forum is chock full of 1%'ers. We are all fortunate to be alive.

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
12-30-2014 04:43 PM
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Terry Offline

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Post: #17
RE: My First Thirty Days
(12-24-2014 06:16 PM)denton Wrote:  Thank you! I did download the sleepyhead software, and it doesn't read the data as far as I can tell. It's not a popular machine, it seems. But as I said, if I run up against the limits of what I can do, I'll sell it and get a better one.

Compared to living in NYC, a new APAP machine that Sleepyhead can read, is very inexpensive (generally ~$600-$700 online).

You'll probably be ahead of the game to just figure the cost of your first machine as a "test" (in reality, it was probably a lot less expensive than a sleep study).
12-31-2014 09:33 AM
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herbm Offline

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Post: #18
RE: My First Thirty Days
Another big difference in survival would be if the effects of the OSA were well-treated or not.

E.g., in my case, presuming the issue with AFIB and near heart failure was OSA related, I survived that [easily?] due to good treatment of THOSE issues.

A lot of these other issues, may or may not be caused by OSA, may or may not be exacerbated by OSA etc.

Also, what were the survival rates for a control group of similar age, etc. without OSA?

Sweet Dreams,

HerbM
Sleep study AHI: 49 RDI: 60 -- APAP 10-11 w/AHI: 1.5 avg for 7-days (up due likely to hip replacement recovery)

"We can all breathe together or we will all suffocate alone."
12-31-2014 09:59 AM
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BlueHorseshoe Offline

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Post: #19
RE: My First Thirty Days
(12-29-2014 11:27 AM)quiescence at last Wrote:  @bluehorseshoe - I ran across the study #labrat refers to a couple weeks ago, or one similar. I will try to locate it.

UPDATE:

most likely it was Figure 3 of this publication, and use of CPAP less than one hour a day is a non-scientific approximation to non-treated.
this discusses a case study of moderate to severe diagnosed OSA patients of which 40% survived after 84 months (7 years) [if they did not use the CPAP treatement]

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2727690/

Thank you so much for the article sitation, I will read it over the weekend for comprehension. Like many of us here, I believe I have had some form of sleep apnea for many years and have had most of the risk factors too. Happy New Year to all. Dan
12-31-2014 02:57 PM
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quiescence at last Offline

Advisory Members

Posts: 753
Joined: Nov 2014

Machine: REMstar System One with Autoflex
Mask Type: Full face mask
Mask Make & Model: Quattro AirFit F10
Humidifier: yes typical setting = 4
CPAP Pressure: 5-13 Autotritrating CPAP
CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

Sex: Male
Location: US

Post: #20
RE: My First Thirty Days
(12-31-2014 09:59 AM)herbm Wrote:  ... what were the survival rates for a control group of similar age, etc. without OSA?

The study does supply the results and compares against other pop groups. It is an awesome study for what it meant to accomplish. It does compare the OSA treated and untreated to non-OSA pop. It also describes some epidemiology and nice charts of progression.

Glad you got the treatment for those issues.

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
12-31-2014 09:32 PM
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