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My SDB Journey: Looking for Answers
#1
My SDB Journey: Looking for Answers
*I'm a new user from reddit /sleepapnea* where the links work, my apologies for making you run around--I can't do real links yet
**/r/SleepApnea/comments/tw6ei8/my_sdb_journey_looking_for_answers/**

I was hopeful after having septoplasty and turbinate reduction earlier this year I would eliminate my symptoms. Alas, the daily malaise continues. Unfortunately as well, my breathing remains to feel a bit strained, especially when my turbinates decide to swell up in the evenings.
After depleting other plausible health pathways and personal journeys: IBS/SIBO, chronic insomnia/CBT-I, every supplement and sleep medicine known to man, diet alterations/hacks–I am stuck here with symptoms only seemingly explainable as perhaps “Upper Airway Resistance Syndrome”--I know this diagnosis seems to be a curse word around this forum (originally posted this on Reddit /sleepapnea), but the fact remains, I am around average weight for my height/athletic build (5’ 9” 155 lbs) with limited evidence of typical OSA.

I finally managed to recently take a more comprehensive sleep test[url=https://76e1071e1.flowpaper.com/03092022AXGType2LaceReportRedactedv2/][/url] (results in link) (type-2) in-home where I could actually sleep some (I suck at in-lab testing). My (remote) sleep tech (axgsleepdiagnostics) found RERAs (followed by heart rate spikes, see bottom pg. 7 red highlight) that made me feel a little less crazy about all this.
Some extra background as well: in 2020 I took a WatchPAT test (results linked) via Lofta.com that said I had moderate apnea… I tried the Resmed 10 APAP for a couple weeks, but couldn’t remain asleep more than 3-4 hours and was more exhausted than ever, often waking to high pressures (full facemask f30i). Of course, this experience was all experimental and I did not have a qualified physician assisting me (despite my best attempts to understand OSCAR and play with pressures) I didn’t get far.. I still wasn't convinced I had sleep apnea (I assumed lofta.com was a bit biased, considering they sold the equipment!) so I took another home sleep test/(results in link) WatchPAT-ish-test, just to throw in more data for us. I resulted in “no significant evidence of sleep apnea”.

The type two test linked above (axg) was the first I managed to sleep through without using sleep medicine–in retrospect I now suspect my use of zaleplon/sonota on the WatchPAT tests only contributed to higher AHI

My symptoms:
  • Consistently wake unrefreshed (last 3 years or so)
  • Heavy daytime fatigue/cognitive impairment
  • Wake up out of breath sometimes, sometimes headache. Many nighttime awakenings
  • Notice some back of tongue/throatish resistance with breathing especially on back, like “breathing through a straw”
  • Nasal congestion especially PM, attempted septoplasty/turbinate seemingly unsuccessful in alleviating unrefreshing sleep
  • Often waking very early AM sometimes short of breath with noticeable racing heart, sometimes to a running dream. Very difficult to go back to sleep
  • Sleep meds seem to make matters worse overall. I theorize their relaxing effect on my palate etc. aren’t helping with breathing.
  • In the morning after a more particularly rough night I sometimes notice my face has two faint red blotchy lines–along my smile lines. It almost looks like my capillaries burst ever so slightly from straining to breath? They usually go away after a day. Very strange.

My sleep tech (axgsleepdiagnostics) recommended I trial the iNAP–so I have this coming in the mail now and will update here with it’s effectiveness. I know it's super new and controversial with it’s effectiveness… but I manage to have decent enough nasal breathing with allergy spray in the mornings and night time saline/breathing strips before bed– so I’m going to give it an experimental go. If that doesn’t work, I suppose it's back to the traditional PAP methods for another go?—maybe I call up ole Dr. Barry Krakow (I’ve read he’s a UARS advocate?) and ask him to prescribe an ASV machine!?

TLDR: I suspect my RERAs may be causing my super daytime malaise and would love some help looking through my sleep tests and theorizing what may be going on.

Love you all and thank you!
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#2
RE: My SDB Journey: Looking for Answers
Welcome to Apnea Board,

If you have CPAP sessions data on OSCAR, please post as a new attachment. Default detailed daily screenshot via F12 would work for a start. The format most likely necessary at first will be Events, Flow Rate, Pressure, Leaks, Flow Limits. OSCAR data has a story to tell about your therapy.
Dave

OSCAR
Standard OSCAR Chart Order
Mask Primer
Dealing With A DME
Soft Cervical Collar Wiki
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#3
RE: My SDB Journey: Looking for Answers
Thanks Sarcastic Dave, here is my Oscar data!

drive.
google.com
/file/d/1anuWUAe0Mm7g1PZ_x_d43bwODfjLqDYB/view?usp=sharing
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#4
RE: My SDB Journey: Looking for Answers
heytherefriend777 - While you are unable to post links currently, you can post images. Please take a look at the links in my signature on how to post an OSCAR screenshot here.
Crimson Nape
Apnea Board Moderator
www.ApneaBoard.com
___________________________________
Useful Links -or- When All Else Fails:
The Guide to Understanding OSCAR
OSCAR Chart Organization
Attaching Images and Files on Apnea Board
Apnea Helpful Tips

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#5
RE: My SDB Journey: Looking for Answers
@Crimson Nape thank you!

Here is a random screenshot (attached) from my limited time using PAP--I guess I'm more writing if anyone on here can look over my sleep tests and symptoms and think through UARS with me?



Sorry, attached here


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