My Sleep Studies This Year
I have been on CPAP therapy since 2011. To make a long story short, my sleep was fragmented and I woke up a lot. Mask issues persisted. In the first sleep study, I was put on a Quattro FX size Medium. CPAP therapy was not working well even though I NEVER slept without the machine. So, the DME switched me to a Quattro FX Large and things got worse from there. Then, over time, the new DME got me a small headgear and small cushion. There was some improvement but not enough. Fragmented sleep, daytime sleepiness and other things continued to plague me.
In October 2013, my primary doc ordered a consultation and another sleep study. Went for the consultation and the doc told me that if I got to pressure 14 that he was going to have the lab try me on BIPAP. Well, went to the sleep lab and had a hard time going to sleep. I slept a total of 2.9 hours that night. When I reached pressure level of 14, the tech kept raising the level rather than switching me to BIPAP and I was only at the "optimal pressure" for 29.5 minutes and they determined that I should be a pressure level 16. Went back to the doc for results. He was NOT one to listen and even the info from my 2 visits were not correct and I am in the process of getting it corrected. The office manager said that he types into an IPAD during the visit but I can say, the doc never did this while I was in the exam room. At any rate, the sleep lab blamed the doc for not switching me to BIPAP and the doc said blamed me. I fired him.
Fragmented sleep, daytime sleepiness, etc. continued to plague me so I found another doc (a pulmonologist and certified sleep doc) and crapola, he listened to me! He said that he wanted another sleep study done on BIPAP only because he felt like I might be having trouble with handling higher pressure. I was also concerned because my pressure was at the upper end of what the machine could provide.
So, met with the lab manager 2 weeks prior to find a good mask so I had time to adjust to it before the sleep study. I chose the wisp nasal mask (the first time I had ever used anything but a FFM). I needed a chin strap which the sleep lab manager provided for me. So, I was pretty comfortable with the mask and chin strap and had found the fittings for the head gear and chin strap where they were not too tight and the results were good. Pressure was lower, leaks were lower, fragmented sleep and daytime sleepiness was still there but rather than 6 or more times per night, it might be 3 times. And, I felt like part of the issues had been addressed.
So, off to the sleep lab last night for the BIPAP study. I thought I had a lot of leads, etc. during my other 2 sleep studies but not like I had last night! I had things on my throat, all over my face, eyes, etc. in my scalp......just everywhere. I was happy that they were monitoring everything that they could and felt confident this was going to be better than the other 2 studies (and this was after finding a dead roach in the bathroom and thinking they might be in the sleeping area too and hoping that I didn't have nightmares about that roach lol). The lab tech had to really work hard to get the chin strap and head gear on over the leads on my scalp and I couldn't do much to help because I was already laying in the bed. Then he turned the BIPAP on. It was a really strange feeling at first but I must have adjusted to it okay. I have not ever slept well during any of my sleep studies.
So, he said to sleep in whatever position I wanted to but if I started out in any position other than on my back, he would come in and have me lay on my back. I tried to sleep on my side but couldn't go to sleep. Flipped to my back and the next thing I know, I was out like a light. The tech said that he hooked up his next patient and came to check on my and I was on my back and out. Lights out were about 10:45 PM. I kept waking up during the night but went right back to sleep. The next thing I remember is that I woke up and couldn't go back to sleep. I looked at the time and it was 4 AM!! I couldn't go back to sleep so I asked the tech if he had enough info for me to be able to get unhooked and go home (they wake people up at 5 AM there). He said yes.
We started out at 14/8. He said that he only had to raise me 1 point during the night and that for 2 1/2 hours at that pressure, I had NO events and that my O2 was perfect. He said at one time, he detected a small mouth leak so I definitely need the chin strap. He said that he felt as though the new wisp nasal mask and chin strap and the BIPAP worked very well for me. I cannot remember ever sleeping that long without becoming fully awake and sometimes getting out of bed at home. I did cough several times during the night. I did wake up with a headache and noticed that my fingers were puffy. I also had a little bleeding on my scalp where I presume a lead was. BUT, I slept straight through. I am very happy!! Sorry this is so long. Hope I didn't bore you all.
Those that use a BIPAP, just wondering if you ever, at the beginning of using BIPAP, woke up with a headache and puffy fingers.