When I started this thread, I was intent on not being guilty of information-overload, so I tried to be as concise as reasonably possible. It is now clear that, based on the comments about cost and perceived value, the information I provided so far is woefully inadequate. So, I will give it another shot, even though it may not make any difference.
This oral appliance (OA) device is for both upper and lower teeth. Either piece can be used separately or connected together. When in the latter state, it is adjustable so that it can also be used as an oral orthotic (OO). The OO can be used stand-alone or in conjunction with CPAP therapy. As an OO, it will work with almost any CPAP mask and of course it has an attachment that allows it to be used with the custom mask (which makes it unique). Anyone who has bought an OO knows it can easily cost over $2000 (and that is without the mask attachment). I also went through a Neuromuscular Bite Registration to establish my optimal bite position. This is the same procedure used to treat TMD (another condition I also have).
Forming a mask to a unique shape is not a simple (or, cheap) procedure. Anyone remotely familiar with “Economies Of Scale” understands the difference between making one item vs thousands. For example, a prototype car may cost $1,000,000+ vs $30,000 from the assembly line.
When I posted my previous thread last October expressing my intent to pursue this procedure, a few folks expressed genuine interest in knowing the results. That is what I have done here. I have been attempting to find an effective and comfortable treatment for my sleep apnea for 11 years. I have tried virtually everything short of Tracheotomy. I could probably write a book on just those efforts. I have boxes of contraptions that I have designed and built on my own (being an engineer helps). I am at the upper scales of severe sleep apnea. I know a few who have it even worse than I and I can empathize with them. Anyone who requires a high CPAP pressure understands the challenges and frustrations of getting a mask to work. I also have to sleep propped up because even though I have had seven sleep studies, no one has been able to determine my CPAP pressure requirement while lying flat. Even if they made a machine that could produce a high enough pressure, I doubt I could tolerate it anyway.
To be perfectly honest, I did not know in advance that my insurance would cover this. I was fully prepared to pay the entire bill from my HSA.
You know, one person with a missing leg may spend $50,000 for a Prosthetic leg (with no guarantee of success), while another may decide to use crutches and spend that money on a car (or whatever, or nothing). It’s a personal choice. If I had known four months ago what I know now, would I pursue this procedure? No, but it is what it is now, and I’m going to make the best of it that I can. Would you pursue this procedure if you knew for sure it would work? I bet for many the answer would be “in a heartbeat”. You want me to say “I’m stupid?” Okay fine, I’m stupid. I made a choice; I took a chance and I’m sharing the results. My motivation was from being serious about my personal health and dedicated to solving a problem with severe consequences. This was the next thing to try. There are no other cheaper or more feasible options that I have not tried.
I will now address the specific questions and comments previously posted in this thread:
As already indicated, the $99 TapPap will not work with a FULL FACE MASK! In fact, I bought one two years ago (although at that time, I paid $179 for the CPAP Pro, which is essentially the same thing). I have tried everything possible to make a nasal mask work. My ONLY solution is a FFM.
Also as already indicated, the name of company (Airway Management) is found at this link:
I think the reference to “Sleepzzz” was intended to indicate “RemZzz”. I have used these and they are essentially the same as those from Quietus except the latter type has a tacking agent on one side that holds the liner in place. I use Quietus liners with my traditional FFM.
I am not working for this company and have no financial stake in its success. If I were, I’m sure I would be fired by now for being brutally honest. After five nights of attempting to use this mask, I am a bit skeptical that I will be able to get it to work for me although I have tried some more personal modifications and have a couple of ideas for some other options. I know others have benefitted. Of course, there is no one solution that will work for everyone. I have received useful information from the Apnea Board forum, so I am merely attempting to give back.
To take a comment out of context (e.g. about drilling a hole) and extrapolating it into something truly bazaar seems rather pointless, so I don’t know how that is helpful.
What good are 20 to 40 masks if none of them work?! I’ve already tried a least 20 (and did a free trial test on many more at my DME supplier).
And finally, the following items (even if they are in the same cost range as this custom mask assembly) will not treat sleep apnea:
A house purchased decades ago
"his and hers" outhouses (even with a running creek)