MyAir from Resmed

[sherryl10]

ResMed has a program where they collect your CPAP data using a cellular device each morning and add up readings. They give you points for each reading.  Does any reading other then the number of events per hour and how long you slept really matter?

For example they take points off if you remove your mask more than 2 times.  Also they take off points if you do not have a perfect seal.

Isn't your AHI and the number of hours you slept the only things that are important?  I have occasionally had a poor mask seal but an AHI of .6.  That's point six.

My sleep specialist said that he would not prescribe a CPAP unit if your AHI is 5 or less and your pulse ox is normal.

[Sleeprider]

How you feel is really important. Many people have restrictive sleep disordered breathing that does not result in any apena, but have continuous flow limitation (UARS) and hypopnea. In general, insurance will not pay for CPAP unless you fit the diagnosis of at least mild or moderate sleep apnea. If you have an untreated AHI of 5 or less and normal pulse-ox then that is indeed considered withing normal parameters. If you feel you would benefit from CPAP therapy at that point, you would probably have to self-finance.

The MyAir program is a complete waste of time. Get #Sleepyhead and you will see what is going on.

[srlevine1]

ResMed has a program where they collect your CPAP data using a cellular device each morning and add up readings. They give you points for each reading.  Does any reading other then the number of events per hour and how long you slept really matter?

For example they take points off if you remove your mask more than 2 times.  Also they take off points if you do not have a perfect seal.

Isn't your AHI and the number of hours you slept the only things that are important?  I have occasionally had a poor mask seal but an AHI of .6.  That's point six.

My sleep specialist said that he would not prescribe a CPAP unit if your AHI is 5 or less and your pulse ox is normal.

MyAir was designed to "gamify" data and to serve as a user engagement device to promote a more consistent use of your device.  Bearing in mind that a sleep study is only a snapshot in time, there are other medical reasons that might necessitate a CPAP even with so-called normal readings -- including heart failure, pulmonary hypertension, polycythemia, etc. Unless you sleep doctor has experience with cardiac, pulmonary, and neurological issues -- what he will or not prescribe should be dictated by your condition -- not the compliance requirements necessary to obtain insurance reimbursement. 

As for some conditions, they are often symptomless or mimic other conditions in the early stages. 

ResMed does use the data for medical studies, but I am unaware of any physician following the details as closely as an informed patient. Thank heavens for this forum. 

The goal is to get a good night's sleep for a better tomorrow.

[PaulaO2]

Isn't your AHI and the number of hours you slept the only things that are important?  I have occasionally had a poor mask seal but an AHI of .6.  That's point six.

My sleep specialist said that he would not prescribe a CPAP unit if your AHI is 5 or less and your pulse ox is normal.

.6 is your treated AHI. That's good. What's your AHI without the machine? Have you had a sleep study done?

[LarryRapp]

I certainly don't know if this means anything, but there is a completely different version of MyAir for DME's and maybe sleep docs.  I understand that the DME version has the ability to track different problems.  The reason I know this is because I got a call from my DME worrying about my results.  Apparently they get daily readings - I guess by cell phone.

[mesenteria]

The unit has its own 3/4G telemetry link, as your phone switches to when you are out of wifi range.  So, if your unit can get a satellite link with 3/4G, it will upload your stats for the previous night's sleep shortly after you shut off the unit. That's why, like your phone has, the units have their own SD card and a slot in which the card is kept active.  You need to use that card to upload to SleepyHead software, as the gurus here urge, and you get to see the much more definitive results in graph form using SleepyHead. 

Google that name and download the app...make a profile for yourself (be sure to verify your entries for accuracy before you save, but you can go back and alter the information later if you must), and then insert your SD card into a card reader, maybe located on your computer's front/side face.  Or purchase a card reader.  Open the app, click on your profile name, and then direct the app to upload your data directly from the SD card, probably the leftmost option in the list of three tasks that will pop up for you.  Then go to 'daily' at upper left banner and see all your graphs.

[SaldusMiegas]

Heads up ... MyAir has changed their Terms of Service (read on for details) ... 

I have used MyAir even alongside SleepyHead and ResScan back when I was evaluating which tool to use.   

My take:

• MyAir prior to this week was all about getting new users engaged and cheer leading to encourage good habits.  It's a feel good system that provides positive feedback as you develop good CPAP habits.  That's why you get points in MyAir for number of hours slept, number of times mask removed, and avoiding massive leaks. The scored factors encourage good habits that will enhance your therapy and results (at least my experience coincides with good habits = better sleep = feel better).
  
• Sleepyhead on the other hand is your Dutch Uncle (at least the summary comment).  When you get a smiley face from SleepyHead it's a real achievement.  And SleepyHead provides the detailed feedback you need to understand and make tweaks to your therapy to improve its effectiveness.  
  
• ResScan provides similar level of detail as SleepyHead but with a more sterile and clinical user interface (suggesting that this is a tool used by medical practices, although in my experience the doc seems to use some other more comprehensive clinical software that also supports clinical sleep study data). 
  

I used to log in to MyAir every so often as a quick high level look at the past week, or when I needed a morale boost.  For a long time I loaded both SleepyHead and ResScan religiously and kept both tools up to date.  At one point I had an issue with ResScan (don't even recall what it was) and from that point forward I only keep SleepyHead up to date with my SD card data.

The reason I was checking in with apnea board today was to see if there is any buzz about MyAir's new terms and conditions.  Just got an email yesterday that suggests ResMed is going to start aggressively marketing and sharing our data with it's partners and affiliates (yawn), sharing our personal non-health related data (hmm) and begin correlating our personal info with that which they find from other publicly available sources (WTF) under their updated terms and conditions. It does not provide any opt out, just informing users what they intend to start doing.

Some highlights (see complete MyAir TOS email text below): 

•  We may link your non-health-related, personal data in myAir to your data in our other ResMed platforms to provide a more unified experience. 
  
•  In the United States, we may now collect personal data from publicly available sources (such as demographics) to learn more about the sleep apnea population and give you better service.
  
• we may now link your personal data with information about you from third-party public databases. 
  
• In the United States, we may now engage third parties to market for us through other communication methods like social media.
  

I suspect the lines that begin with "In the United States" are a tacit acknowledgement that this policy would violate the privacy laws in other countries. 

We all kind of knew our ResMed machines were part of the Internet of Things before it was even a thing.  Now we are about to enter the dark side of the IOT to join all the other non-medical household devices that put your personal info on the internet for scavengers to feast upon and hackers to exploit. 

So I am probably not going to be using MyAir in the future.  I went to the site today and got blocked with a pop up requiring me to accept the new policies before logging in.  I simply closed the window and probably won't go back.  I don't know if that will prevent them using my info which is sent via the cell network by my machine but at least I am not explicitly agreeing to it.

Saldus Miegas


____
Dear myAir™ user,

On February 27, 2018, we updated myAir’s Terms of Use, Privacy Notice and Cookie Notice. They’re easier to read and include exciting changes to improve your experience. We encourage you to go to the myAir website to read through the updated terms and notices.

Changes to the Terms of Use take effect immediately. If you’re a new user, changes to the Privacy Notice take effect immediately. If you’re an existing user, changes to the Privacy Notice will be effective 30 days after we publish it to our website.

Here’s a summary of the changes:

Unified health experience: We may link your non-health-related, personal data in myAir to your data in our other ResMed platforms to provide a more unified experience. For example, this would allow us to provide you the contact details of your home medical equipment (HME) or healthcare provider (HCP). Subject to local laws, we may also inform your HME or HCP that your device is registered with myAir.
Personalized service: In the United States, we may now collect personal data from publicly available sources (such as demographics) to learn more about the sleep apnea population and give you better service. Your data is only collected if you have agreed it could be shared with third parties (like us) or allowed it to be public.
Better promotional communications: If you agree to promotional communication, we may now link your personal data with information about you from third-party public databases. In the United States, we may now engage third parties to market for us through other communication methods like social media.
We also provided clarification on the following items:

Use of mobile analytics: Our use of mobile analytics does not include your personal data.
Use of myAir: The content and coaching provided by ResMed is not medical advice. Your use of myAir is by choice and should not replace advice from a qualified medical professional.
Your consent: ResMed obtains therapy information from your healthcare or home medical equipment provider only if you consent. This information is used only with myAir.
We hope these changes enhance your experience. Thank you for using myAir.

The myAir Team

[sherryl10]

.6 is a best case scenario but it is never over 2.

I had a sleep study done about a year and a half ago.  

They had my new CPAP set up for 6!  That was  way too low.  It wasn't helping.  I reset it gradually until it was 8.  Much better now.

I was not too impressed with the center where I had my study done.  I changed doctors now.

I have been using a CPAP for at least 20 years and I am a dentist so I have done a lot of independent studying on sleep apnea.


I have a friend who is literally a "superman" dentist (the best I have known) but he reinvents himself every few years with some new fad.  The last one (which he has been doing for quite some time now) is "Sleep Dentistry".  He has even invented his own appliance.  This is where I am disappointed in him.  I think that (unless there is a physical-not an "I can't get used to wearing a mask" excuse) a CPAP is the gold standard.  

I don't care if the FDA approved the appliances, there is just know way, IMHO, that it can come close to the benefits of a CPAP.  He lectures about his appliance and sleep dentistry all over the world.  I think it's just a way for dentists to make money at the expense of what is in the best interest of their patient (I guess you can tell with that attitude I never got rich as a dentist).

Larry

[CB91710]

I certainly don't know if this means anything, but there is a completely different version of MyAir for DME's and maybe sleep docs.  I understand that the DME version has the ability to track different problems.  The reason I know this is because I got a call from my DME worrying about my results.  Apparently they get daily readings - I guess by cell phone.

That would be ResScan.  Some of us installed it on our PCs before discovering Sleepyhead.
Basically the same thing, but Sleepyhead has a more friendly interface.  I never really even used RS since I installed Sleepyhead a couple of days later.

I think your DME/Sleep Doc, for the most part, only monitors during the initial 90-120 day compliance period.   My wife went on a retreat with friends a couple of months after getting her machine, and she got a call from Kaiser on her way home concerned that she had not transmitted any data for 3 days.
But since then, we have both gone on trips where the machines were not able to upload and we've had no calls.

[Walla Walla]

The program that DME's use via wireless connection is called My View. It allows them access to your machine Data and allows them to change settings. Patients have no access to it.