Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

New CPAP User ready to quit - Central Apnea, ASV
#31
RE: New CPAP User ready to quit - Central Apnea, ASV
As an experiment, I tried the soft cervical collar last night.  Used the machine for 2.5 hours in CPAP mode at 6 and 1.5 hours in APAP at 8-12.  Here is the screenshot.  I have an appointment today with a pulmonologist.  As you all predicted, my doctor wouldn't prescribe the ASV until I went to a specialist.  I'll let you know the outcome of that meeting. In the meantime, I got a call from Apria Healtcare yesterday stating their data showed that I am not using the unit at all.  I explained that I had been using the unit most nights and asked her to check again.  After finding some of the information she said, "That's strange.  We show data from your sleep on December 9th, 2019."  Another good reason for boards like this and OSCAR.


Attached Files Thumbnail(s)
   
Post Reply Post Reply






Donate to Apnea Board  
#32
RE: New CPAP User ready to quit - Central Apnea, ASV
I don't see where either mode will be great, but of these two, standard CPAP is better. That was the first session correct? Saying one session is better though is kinda like saying one forest has less trees than the other. No matter what without ASV, you're dealing with a lot of events. However you get to the ASV, obviously the sooner the better for you.
Dave

OSCAR
Standard OSCAR Chart Order
Mask Primer
Dealing With A DME
Soft Cervical Collar Wiki
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
#33
RE: New CPAP User ready to quit - Central Apnea, ASV
Hi tntfrahm,
One thing that I don't think has been mentioned is that Complex Apnea(Central Emergent Apnea) resolves itself in the majority of cases within 3 months of CPAP treatment.
I was in your situation about 3 years ago. My OSA was basically resolved with my APAP, but I ended up with a more severe case of Central Apnea. With some of us, the interaction of the increased pressure results in the emergence of Central Apnea. I was advised to stay the course with the APAP for a period to see whether my body would get used to the increased pressure.
Within a month my Complex Apnea had resolved itself.
Post Reply Post Reply
#34
RE: New CPAP User ready to quit - Central Apnea, ASV
Good to hear that.  Congratulations!
Post Reply Post Reply






Donate to Apnea Board  
#35
RE: New CPAP User ready to quit - Central Apnea, ASV
(10-29-2019, 11:56 AM)Mogy Wrote: Hi tntfrahm,
One thing that I don't think has been mentioned is that Complex Apnea(Central Emergent Apnea) resolves itself in the majority of cases within 3 months of CPAP treatment.
I was in your situation about 3 years ago. My OSA was basically resolved with my APAP, but I ended up with a more severe case of Central Apnea. With some of us, the interaction of the increased pressure results in the emergence of Central Apnea. I was advised to stay the course with the APAP for a period to see whether my body would get used to the increased pressure.
Within a month my Complex Apnea had resolved itself.

Mogy, do you have any graphic data of your early CPAP experience?  I have seen treatment emergent CSA resolve in some cases, however rarely when the AHI is this high and persistent, regardless of using low pressure and turning off EPR or Flex.  I think it is appropriate for ttfrahm to pursue this with a specialist now, and if it auto-resolves, all the better, but if that does not happen, then he will have a head start on getting a more appropriate therapy.  It is true tntfrahm is at an early stage of treatment at about 3-weeks, but usually we see much lower AHI and more mixed events.  The last chart was wih a fixed pressure of 6.0 with brief sessions at 8.0 and another at 8-12 cm.  That is a lot of setting changes in a single night, and at a glance, the best results appear to have been with the lower fixed pressure.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files
Mask Primer
How To Deal With Equipment Supplier


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
#36
RE: New CPAP User ready to quit - Central Apnea, ASV
Hi Sleeprider,
I have posted some of my early experience with APAP on another thread. Posting it here may sidetrack tntfrahm's thread.
Some studies say that it is up to 90% of Treatment Emergent Sleep Apnea resolves itself.
https://www.google.com/url?sa=t&source=w...XxIob52dhq

In my opinion, the more information that tntfrahm has to make his decisions, the better for him.
He has more options than ASV.

I agree with limiting the changes. Setting the machine to CPAP with a low pressure for a couple of weeks might help his body adjust.
Post Reply Post Reply
#37
RE: New CPAP User ready to quit - Central Apnea, ASV
(10-29-2019, 05:14 PM)Mogy Wrote: Hi Sleeprider,
I have posted some of my early experience with APAP on another thread. Posting it here may sidetrack tntfrahm's thread.
Some studies say that it is up to 90% of Treatment Emergent Sleep Apnea resolves itself.
https://www.google.com/url?sa=t&source=w...XxIob52dhq

In my opinion, the more information that tntfrahm has to make his decisions, the better for him.
He has more options than ASV.

I agree with limiting the changes. Setting the machine to CPAP with a low pressure for a couple of weeks might help his body adjust.

Thanks Mogy. Good post and reference there.  I have seen a couple cases on Apnea Board that I thought would require ASV, but self-resolved within a reasonable time.  I am a bit doubtful of the 90% statistic, but I have seen it happen more than once...thanks.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files
Mask Primer
How To Deal With Equipment Supplier


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply






Donate to Apnea Board  
#38
RE: New CPAP User ready to quit - Central Apnea, ASV
tntfrahm,
Thank you for posting your experience and struggles with CPAP. My journey parallels what you have gone through and the replies have been helpful for me. I am on week three with my new equipment and 3 nights into my mask upgrade to the AirFit F30. Like you, it has caused me more lost sleep than benefit. I did start using a cervical collar and it seems to help. I am training myself to breathe only through my nose. I noticed alot of air in my abdomen with the new mask. I am not sure how long can try to make this work. I should probably start my own thread to get some advice and support.  Thanks again, I will be following your progress.

pafarrell
Post Reply Post Reply
#39
RE: New CPAP User ready to quit - Central Apnea, ASV
I'm new here, but I started on CPAP in 2001. I actually came here to get a later version of Rescan to replace my old 4.1 and thought I would look around.

What you are describing with centrals, whether real or just machine interpreted, is pretty much what I have have gone through. I had a sleep study in 2014 that did not record any centrals, but I was getting crazy numbers off my S9 CPAP; and at times gasping for air which is never a good sign while on therapy. The doctor basically blew me off when I showed him the Rescan data and he stated that their equipment was the "gold" standard and they didn't find any centrals and my pressure could be at 5. The gasping for air part was a little more indicative that things were not going well.

I used to be somewhat involved on another CPAP forum, that seemed to be spiral down, but found out there about using cervical collar. Can't say why centrals would drop, but they did. I picked up an APAP machine and AHI went was just humming along at around 2.5. After 4 years, the centrals started to pop back up. On some nights they would hit double digits even with a cervical collar. Got things back down, but now the AHI was in the 3 to 4 range. Saw a different doctor and he had me do an ASV titration. Last night was my first night on ASV. ASV is a pain compared to APAP, at least to begin with, but my AHI was .3.

My only input is that I have no clue what is driving my brain to not want to breathe. I used that collar every night, but in the back of my mind, I knew there had to be a next step. So try the collar, maybe get an APAP for the time being, get software, but the goal is to find a good sleep doctor who can assess what is going on. As for driving the ship, actually you'll also be doing all the repairs too, but don't give up.

John
Post Reply Post Reply
#40
RE: New CPAP User ready to quit - Central Apnea, ASV
(10-31-2019, 05:09 PM)70sSanO Wrote: I'm new here, but I started on CPAP in 2001.  I actually came here to get a later version of Rescan to replace my old 4.1 and thought I would look around.

What you are describing with centrals, whether real or just machine interpreted, is pretty much what I have have gone through.  I had a sleep study in 2014 that did not record any centrals, but I was getting crazy numbers off my S9 CPAP; and at times gasping for air which is never a good sign while on therapy.  The doctor basically blew me off when I showed him the Rescan data and he stated that their equipment was the "gold" standard and they didn't find any centrals and my pressure could be at 5.  The gasping for air part was a little more indicative that things were not going well.

I used to be somewhat involved on another CPAP forum, that seemed to be spiral down, but found out there about using cervical collar.  Can't say why centrals would drop, but they did.  I picked up an APAP machine and AHI went was just humming along at around 2.5.  After 4 years, the centrals started to pop back up.  On some nights they would hit double digits even with a cervical collar.  Got things back down, but now the AHI was in the 3 to 4 range.  Saw a different doctor and he had me do an ASV titration.  Last night was my first night on ASV.  ASV is a pain compared to APAP, at least to begin with, but my AHI was .3.

My only input is that I have no clue what is driving my brain to not want to breathe.  I used that collar every night, but in the back of my mind, I knew there had to be a next step.  So try the collar, maybe get an APAP for the time being, get software, but the goal is to find a good sleep doctor who can assess what is going on.  As for driving the ship, actually you'll also be doing all the repairs too, but don't give up.

John

John, welcome to Apnea Board. You are among good company here with your ASV and previous work with APAP and the soft collar. I hope you will continue to participate as you learn more what your new machine can do, and you adapt to the therapy.  Good input here!
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files
Mask Primer
How To Deal With Equipment Supplier


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply






Donate to Apnea Board  


Possibly Related Threads...
Thread Author Replies Views Last Post
  Please help with dealing with central apnoeas due to CPAP chen30 36 789 2 hours ago
Last Post: chen30
  [Diagnosis] All central -- should I be concerned? boss 4 156 6 hours ago
Last Post: Sleeprider
Cool Brand new cpap user! Some questions regarding my first night xdestry 15 305 Yesterday, 09:08 AM
Last Post: Sleeprider
  I've tried and I've tried. (regarding cpap and masks). Any other way to help apnea? Tmansdc 4 173 11-25-2020, 11:34 PM
Last Post: mesenteria
  [Diagnosis] New User RMac 10 307 11-24-2020, 12:34 PM
Last Post: staceyburke
  New Board Member - Long time CPAP user - Issues mrindian 9 254 11-18-2020, 08:32 AM
Last Post: Sleeprider
  Central Apnea Onset Kazman 8 295 11-16-2020, 09:19 PM
Last Post: Sleeprider


New Posts   Today's Posts






About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.