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New CPAP User ready to quit - Central Apnea, ASV
#51
RE: New CPAP User ready to quit - Central Apnea, ASV
Really appreciate all the input. The equipment provider is telling me to give it a couple weeks to “see if you’ll get used to it.”  Been on CPAP for a couple months. I understood BIPAP was supposed to be easier to tolerate. Can’t see that waiting would help. Any thoughts?
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#52
RE: New CPAP User ready to quit - Central Apnea, ASV
Insurance requires that a user try and fail CPAP before moving to BiPAP, and that you demonstrate intolerance to BiPAP before being provided BiPAP with backup or ASV. It's an awful system designed to cause patients that don't know the game to quit from frustration and discomfort. I have seen forum members provided ASV nearly immediately on the basis of failing BiPAP in titration, to some that suffered through this for several months. The best way to move the process forward is to use the equipment and routinely call and report your discomfort and lack of efficacy, with a request for an ASV titration. Phone calls and something called a Fax are the best ways to get attention. The widespread use of fax machines proves how backwards the medical profession really is. Smile The advantage of a fax is the office almost always adds it to your record.
Sleeprider
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#53
RE: New CPAP User ready to quit - Central Apnea, ASV
There's nothing "getting used to it" with regards to you and centrals and miraculously getting treatment by a machine not designed to treat centrals. Unless they are treatment induced, but I kind of doubt that.

My numbers were similarly bad with centrals on the same machine you are on and that pushed them toward the ResMed ASV. You should get a titration study done on an ASV.

I agree with Dave too. Show them your OSCAR data. Then they will realize that they are talking to a guy who knows more than the average client that just fell off the walnut truck. And you should be two weeks closer to resolving your centrals.
RayBee

My personal journey:
1/14/18 - Sleep Study, 40 AHI, Mixed Apnea (Oh joy).
Next 7 months in the circus - 6 studies, 4 xPAP machines, 8 masks, loads of poor help and misinformation.
8/20/18 - Prescription finally in-hand.
9/4/18 - I purchased  my ResMed ASV machine & F20 Mask from Supplier #2.
9/12/18 - Received my equipment... And another Hose-Head was hatched.
10/27/18 - Discovered an oasis here at the Apnea Board (You guys and dolls rock).

Seek professional help and advice from your sleep doctors. And if you get tired of the bureaucratic BS and fleecing of your hard-earned cash, exit the Twilight Zone. You have found sanctuary here at the ApneaBoard…
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#54
RE: New CPAP User ready to quit - Central Apnea, ASV
FWIW here's an excerpt of my post on my own newbie trip from BPAP to ASV. Just showing the sketch conversation. It's still a ridiculous circus to get the ASV, but I'll help you get there if I can.

From post dated 4/11/17 & I think I didn't get my ASV until August.

http://www.apneaboard.com/forums/Thread-...#pid199973

"...Then says I, "I am a patient that likes to research and be informed of what I'm dealing with. My research of the high apnea count, especially my central apnea, does this indicate we are headed towards an ASV device?" Doc "It looks that way from what I'm seeing."
Dave

I'm not a doctor in real or fictional life. My posts include opinions based upon user experience regarding CPAP therapy and should not be considered medically professional direction or advice.


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#55
RE: New CPAP User ready to quit - Central Apnea, ASV
You must speak to the Dr there is nothing the DME will do for you as any machine change requires a prescription change
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