Post Reply 
New CPAP user feel like crap
Author Message
Paptillian Offline

Preferred Members-2

Posts: 474
Joined: Jun 2013

Machine: S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i
CPAP Pressure: 4 - 10, EPR x2
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Pennsylvania, USA

Post: #11
RE: New CPAP user feel like crap
(07-22-2013 09:26 PM)DreamDiver Wrote:  When you start at a pressure of four, but spend most of your time at 7, you spend the first hour or more starving for air until the machine finally gets up to therapeutic levels.

I haven't found that to be the case for me. My machine seems to ramp up quickly when it senses flow limitation, so I'm not sure that's necessarily true. I can't comment on the F&P Ikon.

I find it easier to breathe against a starting pressure of 5 or 6 personally (4 seems to require a little bit of work), but I had tried that for a few nights and saw an increase in AHI. I backed it down to 4 and AHI went down. Weird.
(This post was last modified: 07-22-2013 09:39 PM by Paptillian.)
07-22-2013 09:39 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
DreamDiver Offline

Preferred Members-2

Posts: 77
Joined: Jul 2013

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Quattro FX Full Face
Humidifier: ResMed S9 H5i
CPAP Pressure: 10.4 | 11.8
CPAP Software: ResScan SleepyHead EncoreBasic EncorePro

Other Comments:

Sex: Male
Location: Georgia

Post: #12
RE: New CPAP user feel like crap
(07-22-2013 09:39 PM)Paptillian Wrote:  
(07-22-2013 09:26 PM)DreamDiver Wrote:  When you start at a pressure of four, but spend most of your time at 7, you spend the first hour or more starving for air until the machine finally gets up to therapeutic levels.

I haven't found that to be the case for me. My machine seems to ramp up quickly when it senses flow limitation, so I'm not sure that's necessarily true. I can't comment on the F&P Ikon.

I find it easier to breathe against a starting pressure of 5 or 6 personally (4 seems to require a little bit of work), but I had tried that for a few nights and saw an increase in AHI. I backed it down to 4 and AHI went down. Weird.
For those of us with little or no flow limitation, it takes obstructive apneas to get the machine to raise the pressure. To my mind, any time spent in apnea when it's not necessary, is time wasted in hypoxia. For myself, I'd rather start at a therapeutic level. Perhaps you are one of those for whom 4 is actually therapeutic. What's your "Last 30 Days" 95% Pressure on SleepyHead Statistics Tab?

dreamdiver.org
07-22-2013 10:00 PM
Find all posts by this user Post Reply Quote this message in a reply
Paptillian Offline

Preferred Members-2

Posts: 474
Joined: Jun 2013

Machine: S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i
CPAP Pressure: 4 - 10, EPR x2
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Pennsylvania, USA

Post: #13
RE: New CPAP user feel like crap
(07-22-2013 10:00 PM)DreamDiver Wrote:  What's your "Last 30 Days" 95% Pressure on SleepyHead Statistics Tab?

8.6
07-22-2013 10:12 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
DreamDiver Offline

Preferred Members-2

Posts: 77
Joined: Jul 2013

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Quattro FX Full Face
Humidifier: ResMed S9 H5i
CPAP Pressure: 10.4 | 11.8
CPAP Software: ResScan SleepyHead EncoreBasic EncorePro

Other Comments:

Sex: Male
Location: Georgia

Post: #14
RE: New CPAP user feel like crap
(07-22-2013 10:12 PM)Paptillian Wrote:  
(07-22-2013 10:00 PM)DreamDiver Wrote:  What's your "Last 30 Days" 95% Pressure on SleepyHead Statistics Tab?
8.6
Assuming you've had these settings for a while, I'd like to learn a little bit about what works for people with noticeable flow limitation from you.

If it's okay to ask, in ResScan, statistics tab on the review pane, when you choose "30 days" in the range, what's your AHI breakdown?
Obstructive Apnea: ?
Central Apnea: ?
Unknown Apnea: ?
Hypopnea: ?
AHI: ?
Leak 95th Percentile: ?
Pressure Median: ?
Pressure 95th Percentile: ?

Going to sleep now. Will return tomorrow.

Sleep well!

dreamdiver.org
07-22-2013 10:32 PM
Find all posts by this user Post Reply Quote this message in a reply
Paptillian Offline

Preferred Members-2

Posts: 474
Joined: Jun 2013

Machine: S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i
CPAP Pressure: 4 - 10, EPR x2
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Pennsylvania, USA

Post: #15
RE: New CPAP user feel like crap
In the name of science!

[Image: Res_Scan_30.png]


Disclaimers:
  • SleepyHead generally gives higher numbers than ResScan
  • A few of the nights were at different settings, but the min pressure never exceeded 6 and the max never exceeded 11. I experimented with EPR during those nights. In total it was only 3 nights that I deviated from my prescription. If you count EPR modifications, then it's 6 nights.
07-22-2013 11:05 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
DreamDiver Offline

Preferred Members-2

Posts: 77
Joined: Jul 2013

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Quattro FX Full Face
Humidifier: ResMed S9 H5i
CPAP Pressure: 10.4 | 11.8
CPAP Software: ResScan SleepyHead EncoreBasic EncorePro

Other Comments:

Sex: Male
Location: Georgia

Post: #16
RE: New CPAP user feel like crap
(07-22-2013 11:05 PM)Paptillian Wrote:  In the name of science! ...

Median leak of zero... It's almost like your mask is glued on. Amazing. Smile I guess at that low a pressure, face farts and leakage in general are smaller. Your AHI is remarkably well-controlled at such a low pressure. If these were my numbers, I'd say I was on the right path. I wonder how that ties in with significant flow limitation.

Thank you so much for sharing!

dreamdiver.org
07-23-2013 06:58 AM
Find all posts by this user Post Reply Quote this message in a reply
Paptillian Offline

Preferred Members-2

Posts: 474
Joined: Jun 2013

Machine: S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i
CPAP Pressure: 4 - 10, EPR x2
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Pennsylvania, USA

Post: #17
RE: New CPAP user feel like crap
Thanks. Any day now I expect to wake up feeling like the Energizer Bunny. Dont-know

I don't know why the max pressure number is so low. I've seen it go well over 8.9 on a day to day basis. In some cases it's topped out at 10. When I raised my max pressure to 11 one night, it got up to about 10.4. That must be an average as opposed to a maximum over 30 days. They've been lower since I started side-sleeping, though.

Apologies to markrb. I made this thread about me. Pulling out now.
(This post was last modified: 07-23-2013 09:07 AM by Paptillian.)
07-23-2013 09:06 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sevensox Offline

Preferred Members

Posts: 55
Joined: Apr 2013

Machine: REMstar Auto A-Flex
Mask Type: Full face mask
Mask Make & Model: ResMed Ultra Mirage Full Face Mask LG STD 60604
Humidifier: System One Heated Humidifier
CPAP Pressure: 16.7
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Missouri

Post: #18
RE: New CPAP user feel like crap
Hi
I felt better the night of the sleep study! They started me on a nasal mask half way through the study and by morning I did not wish to leave without that mask! The best nights sleep
I had had in years. So if your therapy is not making you feel better, I would look for another sleep doc or study.
Lee
07-23-2013 09:35 AM
Find all posts by this user Post Reply Quote this message in a reply
markrb Offline

Members

Posts: 19
Joined: Jun 2013

Machine: F&P Icon Auto
Mask Type: Full face mask
Mask Make & Model: Unsure
Humidifier: Built in
CPAP Pressure: Auto 13-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: New Hampshire

Post: #19
RE: New CPAP user feel like crap
I just got the machine and my Doctor needs to do it this way, because I couldn't handle the machine they had at the study and I can't afford another study. My insurance will pay 80% of the machine, but not the 1st $1000 and I would have to pay 20% after that.
So she is helping me out.

I am staying in close contact with her and she viewed my data and wants to have the range tightened to 6-20. I told here I have the manual and can do it myself and she said go for it. I was sure she was going to say to go to the DME, but I guess she has confidence I can do it myself. I do like the increase as it felt like I had to work to breath in more than I should have in the beginning.

She also said there was a fair bit of leakage and I might want to change masks types, but is leaving this up to me for now. I think I will change from the wisp I have now to an in nose one.
I will also look into a mouth strap. If that doesn't work I will try a full face mask next.

I appreciate all the feedback.

Mark
07-25-2013 07:22 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
DreamDiver Offline

Preferred Members-2

Posts: 77
Joined: Jul 2013

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Quattro FX Full Face
Humidifier: ResMed S9 H5i
CPAP Pressure: 10.4 | 11.8
CPAP Software: ResScan SleepyHead EncoreBasic EncorePro

Other Comments:

Sex: Male
Location: Georgia

Post: #20
RE: New CPAP user feel like crap
(07-25-2013 07:22 PM)markrb Wrote:  I just got the machine and my Doctor needs to do it this way, because I couldn't handle the machine they had at the study and I can't afford another study. ...

I am staying in close contact with her and she viewed my data and wants to have the range tightened to 6-20. ...

She also said there was a fair bit of leakage and I might want to change masks types...
Okay, now I get it. You are basically self-titrating at home with the doctor's help because your sleep study was somewhat inconclusive. So you are probably in good hands, thank goodness! Like I said, sometimes that happens.

It's likely you're mouth leaking. When you are getting large leaks like this, it means you're not getting therapy. Chin straps definitely help, but for some of us, even with the chin strap and a nasal mask, we mouth leak. Some people tape their mouths. Blue painter's tape seems to be popular. Others of us elect to use a full face mask. I prefer a full face mask because tape doesn't work too well for me.

Looking forward to hearing what your AHI is averaging with your lower pressure set to 6 after a few days at the new setting. I hope you'll be able to figure out the leak thing in a way that works for you.

Hang in there.

dreamdiver.org
(This post was last modified: 07-25-2013 08:57 PM by DreamDiver.)
07-25-2013 08:56 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Long time CPAP user now with a problem PrkChps 5 183 12-07-2016 09:07 PM
Last Post: PrkChps
  New User Having Trouble Staying Asleep and more SnoreGalore 9 533 12-06-2016 08:00 PM
Last Post: SnoreGalore
  New User Problem with BiPAP AVAPS - Part 1 jmayer180 35 1,336 11-27-2016 09:50 AM
Last Post: jmayer180
  New User! SKClay 3 281 11-21-2016 08:52 PM
Last Post: trish6hundred
  new user wants advice Gazz 3 244 11-19-2016 11:06 AM
Last Post: trish6hundred
  Advice needed for struggling CPAP user Fubblin 35 1,993 11-18-2016 07:18 PM
Last Post: Sleeprider
  First time Bipap User, years of suffering SleepyMersim 18 669 11-16-2016 11:46 PM
Last Post: Galactus

Forum Jump:

Who's Online (Complete List)