I'm hoping I can get some help figuring out what is going on with my setup. First, let me say that I'm an old fart so excuse the typos, grammar and overall messy posts. I hope I can make sense.
I have a ResMed VPAP S with H5i humidifier that I've been using for several years. I am 8 ltrs oxygen 24/7 and bipap dependent, which means (for those who don't know) that the bipap is being used as life-support.
A little background. I was never formally given a sleep test of any kind. I came home from the hospital with a script for a bipap. Things were great to begin with as I only needed it at night, and I slept fairly well. Then doc said to use it during the day, as needed, if it helped me breathe better. Well, of course it did. Why struggle if I didn't need to.
I soon found myself unable to breathe without the bipap machine. My lungs became weaker and weaker and now I'm depended on the machine to push the oxygen, so I can breathe.
Breathing still doesn't come easy. I hold the mask to my face, day and night, and take it away from my face to talk, eat and drink. I do not use the headgear as it interferes with the Chiari at the base of my neck and I end up with excruciating headaches. Life is tough, and I'm not sleeping but a couple hours a night, but I enjoy being alive. If my sleep was better, my days could be optimal.
My issue is that my machine is about to die. (Seems like it's been throwing error messages since I first received it. Humidifier, leaks etc.) The current error says that the motor has exceeded it's lifetime, and to call tech. So I did. A rep came out with two identical machines, programmed with the same settings as mine. BUT.. neither one blew air hard enough so that I could breathe.
Each time I put the mask to my face, with the new machines and tried to inhale, the air went 'flat'..almost like the machines were operating in reverse. Going flat when they were suppose to be blowing.
We tried everything, from checking the ramp to other obvious issues, and both machines continued to go 'flat'. Pressures were set the same on all machines. Mine would blow hard enough to puff out my cheeks, but the other machines air pressure seemed to 'die' when I put the mask on my face.
I am desperate. If my machine goes down, at any time, I will (die) not be able to breathe at all.
I need to know how to make the machines blow hard (17/10) when I put the mask on my face and inhale, instead of discontinuing to blow (go flat) when I try to take a breath. The machine shows the bar moving up to the 17 but there is little if any air coming out of the mask.. hardly any pressure.
At the very least I need help on how to fix whatever is messing up before my machine completely dies on me and I end up intubated in ICU. I'm terrified.
Any suggestions, Ideas, or help would be deeply appreciated. Thank you!