Hi slug1956, First of all, WELCOME! to the forum.! Just keep trying with your CPAP therapy. For some people, it takec lots of TIME and PATIENCE. Keep checking back into this forum for more sugestions to help you. Best of luck to you and keep at it.
Your machine is an ASV machine. It's literally a lifesaver for some people with your condition. Some people get great improvements. Keep using it.
Some people only get partial relief, but it's still helpful.
Even without CSR, some people take a long time to feel better after CPAP even if everything is going right. Think of it like apnea/hypoxia/sleep deprivation/panic attacks/stress hormones being a "drug" like alcohol, nicotine, or cocaine. Your body has adjusted to apnea and your metabolism is out of whack until it readjusts.
You've got severe health problems so keep working with your doctor.
You can download the SleepyHead software and get some idea how your machine is handling your apnea. With your more severe medical conditions, be even more careful than usual about tinkering with the settings on your machine, but looking at the data with SleepyHead doesn't change anything on the machine.
Get the free SleepyHead software here
for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
I would like to thank you for your posts & support outstanding.
But i must say it looks like it could take quite awile for the machine to work.
At the moment it is 1.30pm here in Australia and i feel like i havnt slept at all. I just struggle every day ijust feel so worn out. I hope with persaverance maybe things will improve lets hope so
Thanks Heaps Ken
Slug, the hardest patients to get a pressure for in my lab are patients with CSR. An ASV machine is a wonderful help for people who suffer from it, but it tends to be hard to get used to. Our physician who runs the lab tells our patients that it can take a couple months to feel a difference. Whatever you do, keep using it! Don't give up! If you give it a few months, and you still don't feel a difference, talk to the doctor.
Hi all it has been about 4 weeks since i started on the machine and really it is taking so mutch to get used to i wake up every morning so tired short breath witch lasts the whole day,I have pain I in my chest and am so run down. What i forgot to mention is that along with CHF, Severe Sleep apnia, Central sleep Apnea, Pulinury Hypotension caused by chf which i am on the maxium tablets you can have. Which put i surpose blutley i have a very short life span because the tablets are not helping and Basicaly i feel like a living wreck and really dont know what to do.
I was put on this type machine to see if it would help whif people in my condition but as i said i am not so sure nothing seems to be working. I am sorry if you think i am going on but i really Concerned as it is really upsetting and making my family very worried as they know it is only a matter time.