(08-28-2012, 07:50 AM)dakota Wrote: Slug, the hardest patients to get a pressure for in my lab are patients with CSR. An ASV machine is a wonderful help for people who suffer from it, but it tends to be hard to get used to. Our physician who runs the lab tells our patients that it can take a couple months to feel a difference. Whatever you do, keep using it! Don't give up! If you give it a few months, and you still don't feel a difference, talk to the doctor.
I hope the addition of supplemental oxigen will help.
Also, hopefully you can ask your sleep doctor to review the data recorded by your S9 Adapt ASV machine, in case the machine needs any tweeks made to its operating parameters. (I bet some doctors would be doing this without needing to be asked, and if your sleep doctor doesn't see it is neccessary for him to make the time to do this, hopefully you can find a new sleep doctor to work with.)
In any case, I think you will need to download the ResScan software, install it on your home computer, and start familiarizing yourself with the detailed data recorded by your machine.
It may take a while before you understand the terms and start to understand what the data is saying, but if we make a start and keep going, eventually we get to our desired destination. It can take some time in the beginning to come up to speed, but eventually it becomes quick and easy to review the data and see what is happening.
I think you will need to make the time to review your data daily or at least weekly. I think your machine's SD card only holds one week of detailed data, so it is important to read the data at least weekly into your computer, so that the detailed data is saved for future reference.
And you can print out reports and discuss with your doctor anything you find regarding how well your machine is handling the CSR.
On another subject: Also, maybe having a new ASV titration study would help.
I suppose a sleep lab must have done an ASV titration study while you were hooked up to a machine working in ASV mode, but was the machine used during your ASV titration study a ResMed machine running the exact same ASV algorithm as the S9 Adapt ASV machine you are now using? Or, instead, was it a Respironics unit using a slightly different ASV algorithm than the one the ResMed machine uses? I suppose it could affect the accuracy of the ASV titration results.
If the sleep lab used a Respironics unit during your ASV titration study, perhaps it would help to get the new ASV titration study done while you are connected to a ResMed machine using the exact same ASV software algorithm as your S9 Adapt ASV machine uses.
You may need to change the sleep study facility you use, in order to get this all arranged beforehand for any new ASV titration study.
Also, be sure to bring the mask you are having success with at home (and with a fairly fresh mask cushion) to use during any new titration study. Mask cushions should be replaced every couple months, I think, and the complete mask and headgear replaced every 6 months.
Take care of yourself.