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New Member - My Story and Questions
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Gunner Offline

Members

Posts: 6
Joined: Dec 2015

Machine: RemStar System One
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: RemStar
CPAP Pressure: 9.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: London, England

Post: #1
New Member - My Story and Questions
Hi guys, new member here and I thought I'd introduce myself and also ask some questions. I would like to become an active member and hopefully in the future, when I've had some experience and some knowledge, help newbies like myself with all the questions, tips and expertise that comes with experience. My username by the way comes from the fact I'm a big Arsenal fan, a football/soccer team from London thats nickname is 'The Gunners'.

My name is Michael, I'm 31 years old and I live in London, England. I was diagnosed with sleep apnea a few weeks ago although I suspect I've suffered with the condition for probably over a year. I've always snored quite loudly but my girlfriend noticed it getting significantly louder and also the pausing in breathing but, being a guy I guess and, despite constant tiredness, I just dismissed it as her over worrying and nothing important.

Well, I was given a sleep study by the NHS and the results showed I had very severe sleep apnea. I'm not sure what the AHI score was, as it's something I've only just discovered, but my consultant said over a 60 minute period I was having over 80 incidents of apnea (is that a score of 80?) so immediately put me on a CPAP machine.

The way my NHS trust treats apnea is they give you an automatic cpap machine for 7 days, take the results, then give you the same type of machine except that it's not automatic, and give you a 90% pressure fixed rate - this happens to be 9.0 for me. I have to say I had almost no problems at all adjusting to the machine - and from night one I felt much more refreshed and din't feel drowsy driving late at night, which was my biggest concern when I was untreated.

Now for some questions :

Has anyone gone from a CPAP to an APAP and experienced better results, e.g. a lower AHI score, better night's rest, feeling more refreshed? Like I say, the NHS have given me a REMstar 60 Pro, would there be any benefit in me buying an APAP, and has anyone had any experience in doing this? My consultant is also an important member of the NHS trust where I am being treated and completely denied there was any advantage in me having an APAP machine.

Now, masks. I have been given a nasal mask. I told my consultant I sleep through my mouth, but he again assured me that this isn't a problem as when you're asleep your body tends to automatically switch to nasal, but again I'm not sure about this - I have had success with the current setup and it is obviously working but would there be any benefit in switching to a full facial mask? Again, has anyone had any real life experience making a switch from a nasal mask to a full mask?

Thanks in advance guys, look forward to hearing from you and hearing your stories / getting to know you!
(This post was last modified: 12-16-2015 11:25 PM by Gunner.)
12-16-2015 11:22 PM
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PaytonA Offline
Wiki Editor
Monitors

Posts: 3,016
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #2
RE: New Member - My Story and Questions
As far as breathing through your mouth while asleep,if you are not getting dry mouth and your total leak rate is less than 60 you are probably not breathing or leaking through your mouth.

As far as APAP is concerned, the NHS in Britain seems pretty strict bout the requirements for an auto machine and some doctors do not believe them to be beneficial.Most people on the forum are in favor of APAP for a number of reasons as am I. The reasons are logical and reasonable but may not constitute medical necessity. The most important thing is that the machine is fully data capable.

Best Regards,

PaytonA
12-17-2015 01:56 AM
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Diane1048 Offline

Preferred Members

Posts: 50
Joined: Dec 2015

Machine: ResMed Airsense 10 for Her with Built-in Wireless Connectivity
Mask Type: Nasal pillows
Mask Make & Model: ResMed Airfit P10 for Her
Humidifier: HumidAir - inbuilt
CPAP Pressure: Auto-CPAP 4 - 12
CPAP Software: SleepyHead Other Software

Other Comments: Started CPAP therapy Dec 2015 as Sleep Apnea makes my Blood Pressure very High | possible Diabetic

Sex: Female
Location: Sunshine Coast, Australia

Post: #3
RE: New Member - My Story and Questions
Hi Gunner

I too have been diagnosed with Severe Sleep Apnea and I wish that I had discovered that at 31 years of age. It is great that you have taken hold of your health and accepted that you have a treatable health issue.

I have a weird jaw and limited opening to my airways that is genetic but not visible to me or other people - doesnt matter whether I am skinny or fat - sleep a lot or don't sleep much - my airways are compromised and will always collapse when I sleep and it can get worse as you get older BUMMER!!

I have been on CPAP for 14 nights - feel like a new women. I was hitting the wall at about 3pm in the afternoon at work where I am completely exhausted and not capable of any productive work.
12-17-2015 05:00 AM
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DeepBreathing Offline
Wiki Editor
Moderators

Posts: 2,296
Joined: Sep 2013

Machine: Resmed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Resmed H5i
CPAP Pressure: EPAP: 9 - 15 PS: 3 - 10
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Perth, Western Australia

Post: #4
RE: New Member - My Story and Questions
G'day Michael, welcome to Apnea Board.

Catching your apnea this early means that you may be spared some of the co-morbidities including high blood pressure, heart problems, diabetes etc. That's not to say you can just let yourself go, but the odds are now more firmly in your favour. It's also good news that you're adjusting well- sometimes it takes quite a while to get everything working well.

Regarding the type of machine, most people on this forum would say it's better to have an APAP, for a number of reasons: a) Your sleep test is only for one night, in a strange environment. At best, it's a snapshot of your condition. However as they titrated you over 7 nights (presumably in the comfort of your own bed) you can have a lot more faith in the results. b) Some people require different pressures during the night, often depending on their sleep position. eg It's usually the case you need a lower pressure when sleeping on your side, as against sleeping on your back. c) As you get older your needs will change. The APAP can accommodate that, but a fixed pressure machine can't (without manual intervention).

The counter argument is that the changes in pressure can disturb you more than the apneas, which is obviously counter-productive. Some people have chosen to go onto a fixed pressure as they find it more comfortable.

The mask is usually the hardest part. If you can find one which is comfortable and doesn't leak, then you're sorted. I went through six different types to find one I could live with. It doesn't matter whether it's pillows, nasal or full face - so long as it fits, is comfortable and doesn't leak, that's the one for you.

DeepBreathing
Apnea Board Moderator
www.ApneaBoard.com


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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-17-2015 05:33 AM
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AshSF Online

Advisory Members

Posts: 356
Joined: Oct 2014

Machine: PRS1 D560TS
Mask Type: Nasal pillows
Mask Make & Model: ResMed P10, Bkup: Airfit F10 & Quattro Air
Humidifier: PRS1 60 series with Heated Tube
CPAP Pressure: 8 - 8 w/ Aflex 3
CPAP Software: SleepyHead

Other Comments: Using APAP mode with fixed pressure

Sex: Male
Location:

Post: #5
RE: New Member - My Story and Questions
I went from a wide open range APAP (4-20) to progressively narrowing the range down and then finally moving to a fixed pressure of 8. I find that I sleep much better on fixed pressure. In a paper on pubmed, 18% of study participants were bothered by changes in pressure. For those people, a fixed pressure is better. I am one of them.

In your case, if your titrated pressure is 9 and you tolerate it well, I see no compelling reason to move to an APAP.

With the remstar 460 Pro, you can put it in auto trial mode upto 3 times (30 days each time I think ) in its life. So if you really want to try APAP, you can use that mode. An alternate way to tinker may be to just move the fixed pressure up in 0.5cm increments. And play with aflex/Cflex+ settings.

Started APAP 4-20, Closed range to 7.5-14, then straight 8.0 w/ Aflex 3
RDI always below 1. But sleep much much better at straight pressure.
Started on F10, Tried Quattro Air successfully. Finally settled on P10.
12-17-2015 07:16 AM
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trish6hundred Offline

Advisory Members

Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: New Member - My Story and Questions
Hi Gunner,
WELCOME! to the forum.!
It’s great to hear that you adjusting to the CPAP machine well.
The mask is the most difficult part of this whole thing, so don’t be shy about asking to try as many different masks as you need to, ‘till you find the one that works for you.
Hang in there for more responses to your post and much success to you with your CPAP therapy.

trish6hundred
12-17-2015 07:26 PM
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Ghost1958 Offline

Advisory Members

Posts: 957
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #7
RE: New Member - My Story and Questions
My honest opinion.. Apap.
Set your pro on auto trial. Check the data.
12-17-2015 10:35 PM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,390
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #8
RE: New Member - My Story and Questions
Gunner, the good news is, your machine records detailed efficacy data that can help you learn a lot about your sleep disordered breathing, and how effective the CPAP pressure is in treating it. To fully use it, just download the free Sleepyhead software linked at the top of this page.

One of the things you machine records is leak data. That will tell you if your mask fit, or mouth breathing is a problem. Also, you will see if there are still obstructive or clear apenas, hypopnea, and snores which might indicate a need for pressure adjustment.

While I like auto machines, and bilevel even more, you have a good data capable machine that can be optimized to meet your needs. You will need to become an active participant in your treatment by learning how to read and interpret the data your machine provides. Good luck and welcome to the forum.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
12-17-2015 11:18 PM
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Canuck 2 Offline

Preferred Members

Posts: 23
Joined: Dec 2015

Machine: Resmed A10
Mask Type: Nasal pillows
Mask Make & Model: Resmed p-10 or swift FX
Humidifier: A10
CPAP Pressure: max 8.4- min 7.8 locked
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Canada

Post: #9
RE: New Member - My Story and Questions
The nice thing about Auto cpap you can go either Auto or just Cpap because the machine and software are designed to handle it.
Auto cpap gives you more options that can make it nicer tool to help with Apnea.
Buy the best you can afford because it is going to be your bed partner for a long time!
I also like Sleepyhead software because its easy to read.
12-17-2015 11:53 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,828
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #10
RE: New Member - My Story and Questions
Welcome

We do love our APAPs - well most of us. for myself, 90% pressure is around 11, with maxes up to 14 but I feel so much better if my starting pressure is 8! tried setting it up to 9 and left it for a month and had more trouble with puffyness in my face. There is a lot of difference in the pressure I need when in REM vs non-REM sleep, so I am the poster child for APAP. Nice thing about an APAP is that if you are one of the 18% who do better on straight pressure the APAP can do that, but the CPAP cannot auto adjust. In the US (dunno about UK, sorry), the price difference is small between a data capable CPAP and an APAP --- and you absolutely want data capable!

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
12-18-2015 02:05 AM
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