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New Member (self-treating)
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GreyParrot Offline

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Posts: 53
Joined: Dec 2013

Machine: ResMed S9 Elite
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro
Humidifier: H5i-Unused
CPAP Pressure: 12.5
CPAP Software: ResScan

Other Comments:

Sex: Male
Location:

Post: #1
New Member (self-treating)
Hello Everyone,
I'm a new member here to learn as I am treating myself all on my
own. I started because I had all the classic signs of sleep apnea.
I could not afford to go to a sleep clinic so I've had to do this experiment by studying on my own. I borrowed a pulse ox as my
first step and found that I was not breathing many times per night
for as long as 40 seconds at a time. So I searched on craigslist and
purchased a ResMed Elite S9 with an H5i humidifier for a very good price, with a brand new mask. I downloaded the ResScan 3.11 software and started learning. My first night at 10 resulted in an AHI
of 41.3! Over time I have settled on 14 and have had 7 days now at
1.3. I will continue to experiment with settings until I get to the best
I can on my own. Odd thing I discovered was the majority of my
events are now "central". In the beginning at a lower pressure they
were mixed with "obstructive". Now I rarely see an obstructive event.
I have a pulse ox on the way, just to collect more info.
I feel SO much better on a daily basis. My blood pressure is now
normal. Thanks to everyone here I was able to learn what I needed
fairly quickly.
12-20-2013 06:17 PM
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cbramsey Offline

Advisory Members

Posts: 900
Joined: Mar 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: ResMed H5i with ClimateLine
CPAP Pressure: 6 - 12
CPAP Software: ResScan

Other Comments: Supreme Overlord of Web Darkness

Sex: Male
Location: NC, USA

Post: #2
RE: New Memeber
Welcome to the forum!!! We are glad you joined us!!! Welcome

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-20-2013 06:22 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #3
RE: New Memeber
(12-20-2013 06:17 PM)GreyParrot Wrote:  Odd thing I discovered was the majority of my events are now "central".
Pressure increase does not help with central apnea,an apnea is scored when there is reduction of breathing for at least 10 seconds or more
The machine does not know whether you,re asleep or awake at the time scoring the event, awake events are meaningless.
AHI is below 5 which is the benchmark for a working therapy

Whats leak rate and how did you come using full face mask.
Sleep study is preferable, this might be of some help http://www.apneaboard.com/adjust-cpap-pr...re-on-cpap
(This post was last modified: 12-20-2013 07:12 PM by zonk.)
12-20-2013 06:47 PM
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trish6hundred Offline

Advisory Members

Posts: 6,450
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: New Memeber
Hi GreyParrot,
WELCOME! to the forum.!
Don't make too many changes at one time. If you do make changes, wait a couple weeks between each of them because you are looking for trends.
Hang in there for more suggestions and best of luck to you with your CPAP therapy.

trish6hundred
12-20-2013 07:11 PM
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Airstream Offline

Advisory Members

Posts: 147
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed H51
CPAP Pressure: 10-20
CPAP Software: SleepyHead

Other Comments: White Noise Aficionado

Sex: Male
Location: Smoky Mountains, East Tennessee

Post: #5
RE: New Memeber
Gotta hand it to you, you suspected a problem and then educated yourself from the experts here on the forum (there are members here that know more than many professionals, IMHO) and took action.
I know that some people may not agree with your course of action, but you do what you have to do sometimes.
Sleep clinics and medical equipment suppliers don't like people like you, but I am impressed.
Welcome and good luck.

To err is human, but to really mess things up, you need a computer.
12-20-2013 07:36 PM
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xxl Offline

Preferred Members

Posts: 29
Joined: Sep 2013

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro
Humidifier: H5i
CPAP Pressure: 12 - 16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Spokane, Washington, USA

Post: #6
RE: New Memeber
I'm thinking that I like this idea of self diagnosis and treatment. Even though I have insurance that covered most of the costs, I could have saved well over $1500 and still come up with the same results. I would have needed to start reading and understanding months in advance of making the equipment and mask purchase through friends or craigslist. A data capable machine and SleepyHead is a wonderful combo!
12-20-2013 09:31 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #7
RE: New Memeber
If you made the changes too fast, as in you upped the pressure too fast or in too high increments, that's what's causing the central events. Give it some time and those should start dropping down. Or back down on the pressure (slowly!) until you see them drop below 5 AHI then stay there for a while (30 days or so) then slowly increase again.

There's another version of ResScan out, if you are still using that one. And there's another software called SleepyHead. Give that one a try.

ResScan 4.3 - http://www.apneaboard.com/forums/Thread-...hines-only

SleepyHead - http://www.apneaboard.com/forums/Thread-...e-software

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-20-2013 09:33 PM
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DeepBreathing Offline
Wiki Editor
Moderators

Posts: 2,296
Joined: Sep 2013

Machine: Resmed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Resmed H5i
CPAP Pressure: EPAP: 9 - 15 PS: 3 - 10
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Perth, Western Australia

Post: #8
RE: New Memeber
Hi GreyParrot, welcome to the club.

I really admire the way you've gone about this. While I'd never normally advocate going outside the medical system, sometimes it's a necessity. You seem to have done all your research and understood what was needed, unlike many apnea newbies (like myself) who are somewhat traumatised by the whole process.

As mentioned above, the centrals you're seeing are probably a result of your body adjusting to the higher pressure. Paula has given you some very good advice on handling these.

DeepBreathing
Apnea Board Moderator
www.ApneaBoard.com


Bed

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-20-2013 09:57 PM
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GreyParrot Offline

Preferred Members

Posts: 53
Joined: Dec 2013

Machine: ResMed S9 Elite
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro
Humidifier: H5i-Unused
CPAP Pressure: 12.5
CPAP Software: ResScan

Other Comments:

Sex: Male
Location:

Post: #9
Thanks for the support
Thanks for the kind words people. I don't advocate everyone trying
to self diagnose and treat. I just don't happen to have insurance or
the funds to do otherwise. Finding a solution was priority. I'm pretty
good at figuring things out if given enough time and thought if I were
careful, trying to solve the problem was less risk than doing nothing.
I read the boards everyday for a while before attempting anything.
My results have had more positive effects than I thought possible.
Paula02, I will stay at the settings for a while. I had another decent
night with a AHI of 1.2! I only woke up once. Thanks for the link
to Resscan 4, I'm using 3 at the moment. BTW if I ever get insurance
again, I will in fact get a real sleep study. One cannot ever have too
much information.
12-21-2013 11:35 AM
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me50 Offline

Advisory Members

Posts: 2,559
Joined: Aug 2013

Machine: resmed S9 VPAP Auto
Mask Type: Nasal mask
Mask Make & Model: Wisp and Silicone Head gear
Humidifier: resmed H5i
CPAP Pressure: 18/8
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location: USA

Post: #10
RE: New Memeber
if you are in the US, have you looked at the market place for Obama care plans?
12-21-2013 11:38 AM
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