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New Pilairo
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JJJ Offline

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Posts: 751
Joined: Apr 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: Most recent: Wisp, Pilairo, Mirage Vista
Humidifier: ResMed S9 Autoset
CPAP Pressure: 17-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: USA 97217

Post: #31
RE: New Pilairo
My last post in this thread was some time ago. Since then I have additional experience with the Pilairo.

Initially I found that I could use it for three or four to as many as six or seven nights in a row, then I would develop lesions inside my nostrils, at about the 10:30 and 1:30 position. Occasionally I would even find a tiny amount of blood. At that point I would go back to my Mirage Vista for a few nights until the lesions cleared up. As soon as possible I would return to the Pilairo, because it is so comfortable compared to anything else.

Later I had a discussion with my respiratory therapist. He uses a *PAP also, and reported to me that he had started using the Pilairo as well. And he had exactly the same problem as I did. He said that he can avoid the lesions if he washes the mask religiously at least every other day.

I considered his solution, but I found that if I use a tiny amount of Lansinoh cream before I go to bed I eliminate the lesions completely. I've been doing that for about four weeks now, and not a single lesion since I started.

I cannot figure out how the Pilairo could possibly be causing lesions. The silicone is so thin and wispy that it amazes me that it could damage skin. Yet it does for some people. You can find other reports like this on the net. If this is a problem for you, I hope one of the solutions I mentioned will eliminate it.
01-11-2013 08:26 PM
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TheWerkz Offline

Preferred Members-2

Posts: 261
Joined: Oct 2012

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: H5i & ClimateLine Hose
CPAP Pressure: Auto-CPAP 11 - 20
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Dallas, TX - USA - Planet Earth

Post: #32
RE: New Pilairo
(01-11-2013 08:06 PM)Janet82 Wrote:  I wondered if the saline had irritated my nose.

Hi Janet! Welcome

If you're using either store-bought saline solution or mixing the Neil-Med saline packets with distilled water, then neither one of them "should" cause irritation inside your nose.

If you're making your own saline with salt, sodium bicarbonate and distilled water, then your mixture ratio may be slightly off and that could irritate your sinuses.

Good luck, finding the perfect mask that works perfectly on YOUR face is the hardest part of CPAP therapy, you just have to keep trying to get the perfect mask style and then the fit for you.

Sleep-well

Ren
01-11-2013 08:36 PM
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TheWerkz Offline

Preferred Members-2

Posts: 261
Joined: Oct 2012

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: H5i & ClimateLine Hose
CPAP Pressure: Auto-CPAP 11 - 20
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Dallas, TX - USA - Planet Earth

Post: #33
RE: New Pilairo
(01-11-2013 08:26 PM)JJJ Wrote:  I cannot figure out how the Pilairo could possibly be causing lesions. The silicone is so thin and wispy that it amazes me that it could damage skin.

JJJ, is it possible that maybe the airflow coming-out of the Pilaro's opening's is aimed in such a way that it's kind of like a venturi effect with the airflow being directed towards the two positions you indicated inside the nostrils, and it's simply causing a drying effect (and bleeding) to the two places you've indicated?

Not exactly the same but very similar; if you were to take an air compressor with a blower nozzle and direct the compressed air onto one place on your skin, after a while (maybe a few hours) the airflow would cause your skin to bleed.

Is this theory plausible?

Ren
01-11-2013 08:54 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,068
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #34
RE: New Pilairo
I had a mask that did that. Can't remember which one it was. But it was aimed nearly straight up and I kept getting a sore in both nostrils.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
01-11-2013 09:36 PM
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JJJ Offline

Advisory Members

Posts: 751
Joined: Apr 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: Most recent: Wisp, Pilairo, Mirage Vista
Humidifier: ResMed S9 Autoset
CPAP Pressure: 17-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: USA 97217

Post: #35
RE: New Pilairo
(01-11-2013 08:54 PM)TheWerkz Wrote:  
(01-11-2013 08:26 PM)JJJ Wrote:  I cannot figure out how the Pilairo could possibly be causing lesions. The silicone is so thin and wispy that it amazes me that it could damage skin.

JJJ, is it possible that maybe the airflow coming-out of the Pilaro's opening's is aimed in such a way that it's kind of like a venturi effect with the airflow being directed towards the two positions you indicated inside the nostrils, and it's simply causing a drying effect (and bleeding) to the two places you've indicated?

Not exactly the same but very similar; if you were to take an air compressor with a blower nozzle and direct the compressed air onto one place on your skin, after a while (maybe a few hours) the airflow would cause your skin to bleed. Is this theory plausible?

Yes, it's a plausible theory. But it's also possible that it is just the silicone rubbing against the skin. I have no idea. And it's just about impossible to figure it out on my own because you can't see what the pillow is doing inside your nostril. Even if I had someone watching me as I sleep they would have a hard time seeing what is going on.

The Pilairo also has a whistle on exhale that is hard to eliminate. When I go to bed I have to fiddle with it over and over until I get the pillows positioned inside my nostril just right to eliminate the whistle. The sound is caused by air turbulence as it passes out through the pillows.

I am hoping that Fisher & Paykel will come out with an improved version after considering all the user feedback. For people who can handle a nasal pillow mask, the Pilairo is hands down the most comfortable mask out there, bar none. A slight tweaking of the design would make it the perfect nasal pillow mask. Even as it is, my hat is off to Fisher & Paykel for having created an amazing product.
01-11-2013 09:43 PM
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Sleepster Offline
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Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #36
RE: New Pilairo
I was going to say that once those sores heal you might want to try using a salve such as Lanisoh lanolin cream, but I see you've already done that. You can buy it the baby care aisle, it's sold as a salve for nursing mothers. It's a bit greasy so if you don't like it there are other products you can try such as Aryl nasal gel or a cream made for CPAP users available from Supplier #1. Avoid other products as they may react with the silicone rubber of the nasal pillow mask.

My theory is that the silicone material moves back and forth as you breathe, rubbing against the skin and irritating it. Lubrication solves the problem.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
(This post was last modified: 01-12-2013 01:00 PM by Sleepster.)
01-12-2013 12:54 PM
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TheWerkz Offline

Preferred Members-2

Posts: 261
Joined: Oct 2012

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: H5i & ClimateLine Hose
CPAP Pressure: Auto-CPAP 11 - 20
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Dallas, TX - USA - Planet Earth

Post: #37
RE: New Pilairo
(01-12-2013 12:54 PM)Sleepster Wrote:  Lubrication solves the problem.

Wouldn't some good 'ol axle grease help then? Dielaughing
01-12-2013 01:26 PM
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oldteddybear Offline

Preferred Members-2

Posts: 88
Joined: Feb 2012

Machine: Resmed Elite S9
Mask Type: Nasal mask
Mask Make & Model: Pilairo (for now)
Humidifier: S9 H5i
CPAP Pressure: 14
CPAP Software: ResScan SleepyHead

Other Comments: Hosehead since Jan 2012

Sex: Male
Location: Ontario, Canada

Post: #38
RE: New Pilairo
From my experience with the Pilairo I would speculate that the silicone being so thin (acting like a file or knife) is pressing slightly on the skin inside your nose and is rubbing it to the point of actually causing surface abrasion. The movement will be a combination of your breathing, body movement, and airflow. I get the sensation of a sharp edge sometimes but I am able to correct it by moving the mask.
I would be tempted to suggest that you try shortening the part that goes in the nose when you get to the point of replacing the pillow (just in case it makes it worse since using scissors will generate a sharp edge rather than a rounded one).
I am able to get a new mask again so I will be looking to see if any of the other manufacturers have anything that is better. (I am a little fed up with waking up looking like a rabbit, A square on the tip of my nose from the alignment block on the pillows, which doesn’t go away, and whiskers from the pillow that thankfully do.
01-14-2013 09:11 PM
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Moriarty Offline

Advisory Members

Posts: 270
Joined: Jul 2012

Machine: Respironics REMStar 50 Series Auto
Mask Type: Nasal pillows
Mask Make & Model: Fisher & Pakel Pilairo Q
Humidifier: Respironics System One
CPAP Pressure: 8.5-20 (average 9.4)
CPAP Software: SleepyHead

Other Comments: Image above is my CPAP machine...

Sex: Male
Location: Toowoomba - Qld - Australia

Post: #39
RE: New Pilairo
(01-14-2013 09:11 PM)oldteddybear Wrote:  .... A square on the tip of my nose from the alignment block on the pillows, which doesn’t go away, and whiskers from the pillow that thankfully do.

It is really surprising how much different peoples' experiences vary. I guess that why there are so many different types of masks...

I find the harder bits of the plastic and rubber don't touch my nose - the mask sort of floats on the really soft pillows. It isn't mean to be a tight mask.

I did a couple of weeks of comparison between the Pilairo and the Swift FX. The FX gave a little bit better AHI - but the Pilairo was much more comfortable for me.

Cheers

David
(This post was last modified: 01-15-2013 03:41 AM by Moriarty.)
01-15-2013 03:40 AM
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oldteddybear Offline

Preferred Members-2

Posts: 88
Joined: Feb 2012

Machine: Resmed Elite S9
Mask Type: Nasal mask
Mask Make & Model: Pilairo (for now)
Humidifier: S9 H5i
CPAP Pressure: 14
CPAP Software: ResScan SleepyHead

Other Comments: Hosehead since Jan 2012

Sex: Male
Location: Ontario, Canada

Post: #40
RE: New Pilairo
Ah the problems of having a big head.
01-15-2013 10:43 AM
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