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New Sleep Apnea Sufferer-Intro and questions
#11
I'm having a hard time having confidence in MD's anymore. My complaints of fatigue, frequent urination and night sweats along with my size to me now seem like a very clear indicator to suspect sleep apnea 1st. I forgot to mention high blood pressure which is improving as well. I also told my GP(former GP) that I had cut way back on pain medicines in an effort to see if that was causing fatigue and sleep issues. He went all teenage drama queen on me and.... I'll never go to him again. I was attempting to help him help me by eliminating possible causes of tiredeness/fatigue but he chose to lecture me. I'm 52 with 2 grandkids, I'm not toying around with anything especially pain medications- I want to heal which is what he's paid to do, I thought. the fatigue was worse than the pain and if it was one or the other, I'd honestly take pain. It wasn't until I saw a Nurse Practicioner at a wellness clinic who took me serious and sent me to cardiologist where help began.
Anyway, I could easily go on that rant for hours so I'll spare everyone. I'm glad to hear your wife is on the way to treatment Sleeprider, albeit it sounds completely back-a##-wards!!!
Here's my attempt at 3 pics. The 1st is my 19 nights of Dreamstation statistics. The next 2 are fairly representative snapshots of what happened during that therapy in that events are taking place but adjustments aren't? In fact, over the last several days of APAP my pressure rarely went above the 7's??
I plan to include some similar ASV data so let me know if you ned anything else.

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#12
(12-30-2016, 09:05 PM)richb Wrote: Generally speaking you are going to do better here at the Apnea Board when it comes to Complex or Central Apnea alone. It took me quite a while to find a competent Doctor when it came to Central Apnea. Many Doctors ignore Central Apnea because it is often associated with Congestive Heart Failure and or Opioid use. If you look at the scholarly literature on Central Apnea you will find most studies are related to Congestive Heart Failure. Yet there seem to be a wide range of people with some amount of disability in the nervous system/circulatory system feedback loop that controls respiration. This can be seen as an increase in Central Apnea type events when at high altitude or on a CPAP machine. Most cases can be dealt with in the fine tuning of settings process. Worst cases need ASV machines.



Yes, richb, I certainly see that Apnea Board is the place for information. And I am incredibly grateful such a place exists. Without it, myself and others would be counting on doctors and getting nowhere very fast.
I think I referred to it as "Chronic Heart Failure", my apologies as it is congestive. I don't have that either thank God! Anyway, I recently had MRI of neck and there's arthritis-a-plenty there and that's why I suspect my signal to breathe may be being interrupted. I certainly could be wrong, and maybe not have central apnea, but when one feels so bad he'll try anything that doesn't involve too much risk. That's what I've done in an effort to heal.
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#13
Here’s my summary statistics since beginning ASV and a couple snapshots of the night before last. The way I look at it, at least it appears the ASV is taking action. Whether it’s optimal yet or not is certainly up for debate!


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#14
That wasn't what I was expecting. You did pretty good on CPAP, with relatively low pressure and reasonable event rate. I can see on ASV where you now use a significantly higher pressure support of 4.8 minimum, and nearly all of your breathing is autonomous (not caused by pressure support backup). There was no evidence of CA during CPAP use, and certainly it is not present with ASV.

I'm glad you find the machine comfortable and that it give you very good sleep, but I think your could have done the same with an Aircurve 10 VAuto.
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#15
(12-30-2016, 10:05 PM)Sleeprider Wrote: That wasn't what I was expecting. You did pretty good on CPAP, with relatively low pressure and reasonable event rate. I can see on ASV where you now use a significantly higher pressure support of 4.8 minimum, and nearly all of your breathing is autonomous (not caused by pressure support backup). There was no evidence of CA during CPAP use, and certainly it is not present with ASV.

I'm glad you find the machine comfortable and that it give you very good sleep, but I think your could have done the same with an Aircurve 10 VAuto.



Thank you very much for your interpretation. It certainly crossed my mind to try a Bilevel machine, but my fear was that it wouldn't work. Then I'd have to purchase a 3rd machine and sell 2 at rather significant losses. I hope you can appreciate the thinking.
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#16
I know of others that use an ASV and have no significant central apnea. If you can swing it financially, more power to you. The great thing about the Aircurve 10 ASV is that it has the capability to assist when spontaneous breathing is not present, but if it is, then it takes a back seat and lets you do the driving. That appears to be the case with you.
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#17
(12-31-2016, 10:09 AM)Sleeprider Wrote: I know of others that use an ASV and have no significant central apnea. If you can swing it financially, more power to you. The great thing about the Aircurve 10 ASV is that it has the capability to assist when spontaneous breathing is not present, but if it is, then it takes a back seat and lets you do the driving. That appears to be the case with you.


If I get an opportunity to purchase a Resmed aircurve autoset at a reasonable price I would certainly entertain that. I purchased the ASV well below market price so it is possible I could get my money back for it.
In any event have a Happy New Year and thanks again for this wonderful site and all of your and others spot-on advice. I read other's stories a lot of the time and it is a wonderful way to gain insight into treatments.
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#18
Hi gman5200,
WELCOME! to the forum.!
It's good that you are doing well with your ASV machine.

Good luck to you as you continue your CPAP therapy.
trish6hundred
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