Hi, We contacted them to find out the results of the heart test and where told she would be fine for ASV her result was 70% and I think min is 45% for ASV
I was thinking great at her next appointment they would arrange for a sleep test where they would test her on that machine.
They asked me to not touch any settings in the meantime as they wanted an overall picture and that continued use of her machine the centrals would likely come down. I was specifically told under no circumstances was I to contact them about setting adjustments.
I tried to do as they asked but eventually I had enough of the crap results with zero consistency after he changed her max pressure up to 12 it has got worse and worse. The technician said she would contact the doctor about lowering the pressure back down to 11 where she had the most success (if u can call it success).
Today we just got a call to state the doctor will not adjust the settings, they are happy with these results until she thinks he will book her into a sleep test to test which CPAP range works best for her. No mention of ASV testing at all.
I will show last 7 days results now
https://imgur.com/a/Zl7eG
https://imgur.com/x8Rcr7n
https://imgur.com/WTWQNKZ
https://imgur.com/NJGKutU
https://imgur.com/4zk7jbG
https://imgur.com/B6w4coo
https://imgur.com/WFC8iGs
The technician told my mother today the best she thinks they can hope for is an AHI of 15 and she should be happy considering where she came from being her sleep test was AHI 80+. The clusters she says is just different stages of sleep and overall even though a few days she had 90+ Centrals in an hr that is fine they look at over the whole night not at cluster events.
Her next appointment to see the sleep doctor is on the 10th October would people here stick with these setting until then? Would you demand trial of ASV? How do I convince my mother to do the changes suggested here. She is worried about getting the doctors offside and offending them and they won't help anymore. IMO they are not helping much anyway so what do we have to lose.
I have booked an appointment to see her GP and will be printing off these results for him to see. I am thinking we may need to find another sleep clinic if they are happy with these results.
Thanks