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New and confused. feeling worse with treatment
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Rob S Offline

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Posts: 44
Joined: May 2015

Machine: ResMed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: ResMed AirFit F10
Humidifier: ResMed H5i
CPAP Pressure: min EPAP 6, 90% IPAP16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: New England. USA

Post: #1
New and confused. feeling worse with treatment
5 days in to my treatment and i feel far worse than i ever have before.
i feel exhausted and fatigued, wake up with a mild but persistent headache, eyes are heavy and hurt. i'm so afraid of falling asleep driving i havn't left my house.


i've been reading posts here for 2 days now and you are all so helpful. Thanks

looks like my problems are not uncommon and should improve with time and maybe some changes to my equipments settings.

i just installed sleepyhead and don't fully understand what i'm looking at.
i havn't had any events in the last 3 sessions but there 2 hours or less each.

i know someone is going to ask for some settings or statistics but not sure what or where to find them or how to get there here. going to go read the posts on that stuff now and hope to have it sorted out soon.

::EDIT::

think this would be usefull info to start
Machine Settings

ModeCPAP Mode ASV
EPAPExpiratory Pressure 7 cmH2O
Max IPAPHigher Inspiratory Pressure 22 cmH2O
PS MinPressure Support Minimum 6 cmH2O
PS MaxPressure Support Maximum 15 cmH2O
(This post was last modified: 05-25-2015 04:29 PM by Rob S.)
05-25-2015 04:24 PM
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Seabird Offline

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Posts: 39
Joined: Jan 2015

Machine: ResMed Airsense 10
Mask Type: Nasal pillows
Mask Make & Model: P10
Humidifier: ResMed
CPAP Pressure: 7
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #2
RE: New and confused. feeling worse with treatment
I can take quite a while before you start to feel better. I felt worse for 2-3 months when I started.
05-25-2015 05:02 PM
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2PAPs Offline

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Posts: 58
Joined: May 2015

Machine: PR System One 750p
Mask Type: Full face mask
Mask Make & Model: ResMed Ultra Mirage
Humidifier: PR System ONe
CPAP Pressure: 8-20
CPAP Software: Not using software

Other Comments:

Sex: Undisclosed
Location: California

Post: #3
RE: New and confused. feeling worse with treatment
CPAP treatment isn't like spectacles where they are put on and everything is clear. CPAP is a medical treatment that requires time and making a lot of adjustments. I was not used to having a pressurized air blowing up my nose with an appurtenance strapped to my face all night long. It was very uncomfortable in the beginning. Before my humidified unit came, the unhumidified test/loaner unit was burning my nose. When I got used to the machine, my sleep was tormented for several weeks. Then, everything became smoother sailing.

I had to adjust to not sleeping prone. I had to adjust to not abusing my mask and learn to handle it gently. It was getting costly buying new masks and parts.
05-25-2015 05:45 PM
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retired_guy Offline

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Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #4
RE: New and confused. feeling worse with treatment
Well Rob, we really need to think about this a little...

What brought you to the cpap plate? Was it a sleep test? What were the results.

The things I am most interested in seeing are how many events you are experiencing, and what is the makeup of those events. How many OA vs CA and such. Then I look at the pressure settings, then some other stuff.

In your case what I notice right off the bat is "no events," but also not much usage. Two hour sessions won't really help you much especially if you happen to have your machines "ramp" function enabled which can take a pretty good chunk out of those two hours before the machine would be trying to do anything with apnea events.

Usually it's comfort issues that keep us from using the machine all night every night the way we should. I suspect your mask. Re-evaluate how comfortable it is, and whether or not it is leaking too much. If it isn't making you a happy camper, then you might consider swapping it for another type of mask.

Then to the settings: The default on the Resmed devices is to have ramp on, for an extended period of time, and beginning at a quite low (4) pressure. That's a recipe for defeat. Go into your settings and turn ramp off. ..........I just noticed you're using an ASV, so the settings (other than ramp) I was going to recommend won't really apply. Hang tight for one of our ASV geniuses to chime in.

Check into these ideas an let us know what you discover and how you come out.
(This post was last modified: 05-25-2015 05:54 PM by retired_guy.)
05-25-2015 05:51 PM
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trish6hundred Offline

Advisory Members

Posts: 6,451
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: New and confused. feeling worse with treatment
Hi Rob S,
WELCOME! to the forum.!
CPAP therapy can take some getting used to but just stick with it, it does get better.
Hang in there for more answers to your questions about your settings and much success to you as you continue your CPAP journey.

trish6hundred
05-25-2015 05:55 PM
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Rob S Offline

Preferred Members

Posts: 44
Joined: May 2015

Machine: ResMed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: ResMed AirFit F10
Humidifier: ResMed H5i
CPAP Pressure: min EPAP 6, 90% IPAP16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: New England. USA

Post: #6
RE: New and confused. feeling worse with treatment
(05-25-2015 05:51 PM)retired_guy Wrote:  Well Rob, we really need to think about this a little...

What brought you to the cpap plate? Was it a sleep test? What were the results.

The things I am most interested in seeing are how many events you are experiencing, and what is the makeup of those events. How many OA vs CA and such. Then I look at the pressure settings, then some other stuff.

In your case what I notice right off the bat is "no events," but also not much usage. Two hour sessions won't really help you much especially if you happen to have your machines "ramp" function enabled which can take a pretty good chunk out of those two hours before the machine would be trying to do anything with apnea events.

Usually it's comfort issues that keep us from using the machine all night every night the way we should. I suspect your mask. Re-evaluate how comfortable it is, and whether or not it is leaking too much. If it isn't making you a happy camper, then you might consider swapping it for another type of mask.

Then to the settings: The default on the Resmed devices is to have ramp on, for an extended period of time, and beginning at a quite low (4) pressure. That's a recipe for defeat. Go into your settings and turn ramp off. ..........I just noticed you're using an ASV, so the settings (other than ramp) I was going to recommend won't really apply. Hang tight for one of our ASV geniuses to chime in.

Check into these ideas an let us know what you discover and how you come out.

at the time of my sleep test i didn't know i could ask for a copy of the results.
i'll be requesting a copy tomorrow.
i do know i was diagnosed with complex apnea at 70+ events per hour.
since getting the equipment 6 days ago i have used it 100% of the time but i have not slept more than 4 hours (in a 24 hour period) in 32 years other than a few surgeries under anesthesia.

the mask is comfortable enough but it does leak and it's extremely annoying when it does. it seems i can't move my head more than an inch in any direction without it leaking and at times the pressure is so high i think the straps might snap.

one of the first useful tidbits i found here was about my ramp. i did shorten it but with it disabled the constant pressure changes prevented me from falling asleep.

thanks for all the responses to far. how long or how many posts until i can post a screen shot?
05-25-2015 06:52 PM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #7
RE: New and confused. feeling worse with treatment
It does sound like the problem is with the too aggressive pressures.

We've had some good discussions about ASV pressures around here in last few days, so see if you can tap into those for some guidance.

If your pressures are so high that they are causing discomfort and messing with your mask seal, then by default they cannot be theraputic. So it would be much more desirable to dial them down and allow you to get successful treatment, even if it's not perfect. I'll look for those other threads too. They can't have gotten far.
05-25-2015 07:22 PM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #8
RE: New and confused. feeling worse with treatment
Rob, after snooping around a little, it looks to me that your setting of MaxPressure Support of 15 is too high. I think I would take a page out of Mr. Storywizard's songbook and set the Min pressure support to 3, and the Max pressure support to 10.

But hang on for awhile and lets see if one of the others comes in off the golf course soon.
05-25-2015 07:57 PM
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storywizard Offline

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Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #9
RE: New and confused. feeling worse with treatment
(05-25-2015 07:57 PM)retired_guy Wrote:  Rob, after snooping around a little, it looks to me that your setting of MaxPressure Support of 15 is too high. I think I would take a page out of Mr. Storywizard's songbook and set the Min pressure support to 3, and the Max pressure support to 10.

But hang on for awhile and lets see if one of the others comes in off the golf course soon.

Ha! no golf here....

I am surprised that those pressures are so high, but then I am an ASV newbie. I did find that reducing EPAP to 6 , and the PS min to 3, Max PS to 10 is helping me get real good sleep. See what that is like, get used to the machine, there will be more input from the ASV elders soon I am sure...

all the best to you Rob, you can do this...

Storywizard
05-25-2015 09:13 PM
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quiescence at last Offline

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Posts: 753
Joined: Nov 2014

Machine: REMstar System One with Autoflex
Mask Type: Full face mask
Mask Make & Model: Quattro AirFit F10
Humidifier: yes typical setting = 4
CPAP Pressure: 5-13 Autotritrating CPAP
CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

Sex: Male
Location: US

Post: #10
RE: New and confused. feeling worse with treatment
with a PS min of 3, you would likely not be upset having the ramp off. A shift of 3 cmH2O will seem like a dream after your PS=6 start.

Good luck.

QAL

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
05-25-2015 10:38 PM
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