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New guy - just found Forum
#1
New guy - just found Forum
Hello to all.  Just found the forum.  Been searching for information about masks, figured this would be a great place to learn from.  First tested for APNEA almost 10 years ago (AHI 20).  Till last month I used a Respironics System One CPAP set at a constant pressure of 6cm, with humidifier and ResMed Mirage SoftGel mask.  Was tested again and AHI was much worse (53.9).  Dr. prescribed a Respironics DreamStation S/T BIPAP with an N20 mask. Machine setup is EPAP - 10cm, IPAP - 15cm, BPM - 12, and TI -1.  I'm very satisfied with the new machine but not overly impressed with the mask - no matter what I do, I can't seem to get a good fit.  It's best when on my back but once I move the fit goes away.  So here I am.  I'll be reading what's here on masks and welcome your comments and suggestions.
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#2
RE: New guy - just found Forum
Welcome to the forum, cobradoc. You can always go back to your old mask if you were happy with it. Also, your equipment supplier should allow you to swap out the new mask for one that fits you.

I strongly urge you to download the free OSCAR software so you can find out what's going on with your therapy. Do you happen to know the breakdown of your 53.9 AHI? In other words, were most of the events obstructive apneas, central apneas, or hypopneas. Software can answer these questions and steer you towards more appropriate machine settings.

At the very least, you'll know how effective the new machine is at treating your sleep apnea.
Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#3
RE: New guy - just found Forum
Welcome to the Apnea Board cobradoc. I probably would have said something similar to Sleepster. If the mask you’ve had works for you, why not keep using it. With that new machine of course.

I’d suggest getting a copy of that test you had recently. This needs to be the full report not just a summary. This enables you to post this here and you’ll need that report as future proof of medical necessity later, especially if you cannot retrieve them from this doc later.
Dave

I'm not a doctor in real or fictional life. My posts include opinions based upon user experience regarding CPAP therapy and should not be considered medically professional direction or advice.


Wiki Info for Beginners
OSCAR Chart Organization
Mask Primer
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#4
RE: New guy - just found Forum
While the therapy delivered via the mask must perhaps change, it doesn't render the mask itself as outdated or unusable.  So, I agree with the others; use what you can, what is handy, what is paid for, and what you know and works well for you.

On the other hand, quite a few people find it useful to swap out different masks from time-to-time. I won't say it's entirely like alternating footwear, as podiatrists urge us all to do, but maybe there's something to that with different mask types as well.
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#5
RE: New guy - just found Forum
Sleepster, thanks for your response.  Haven't contacted the supplier yet, but that's a good idea.  Don't know how cooperative they will be as there was a "strong" discussion concerning the first mask (full facial) mask that they insisted that I take.  Not sure what OSCAR software is - I'm and old man and not too computer literate. I plan on trying to us my old mask tonight and for the weekend to see if it is any better.  As for the breakdown of my AHI, the script lists the diagnosis as: "Group 5 Obstructive Sleep Apnea".
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#6
RE: New guy - just found Forum
(06-28-2019, 04:01 PM)mesenteria Wrote: While the therapy delivered via the mask must perhaps change, it doesn't render the mask itself as outdated or unusable.  So, I agree with the others; use what you can, what is handy, what is paid for, and what you know and works well for you.

On the other hand, quite a few people find it useful to swap out different masks from time-to-time. I won't say it's entirely like alternating footwear, as podiatrists urge us all to do, but maybe there's something to that with different mask types as well.

I've only used two different masks in my life, so I consider myself a novice when it comes to masks.  It could get a little expensive in the process.  Plus, and I hope I'm wrong, what I've read about purchasing new masks, in the U.S. I have to have a dr.'s prescription to purchase a new mask.  Is this correct?
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#7
RE: New guy - just found Forum
(06-28-2019, 04:02 PM)cobradoc Wrote: I'm and old man and not too computer literate.

Do you have a family member, friend, or neighbor who can help you install OSCAR? It should take them only a few minutes. After that you can learn to use it without too much trouble. You just take the SD card out of your CPAP machine, put it into your computer, and launch OSCAR. It's pretty user-friendly after that.
Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#8
RE: New guy - just found Forum
(06-28-2019, 04:36 PM)Sleepster Wrote:
(06-28-2019, 04:02 PM)cobradoc Wrote: I'm and old man and not too computer literate.

Do you have a family member, friend, or neighbor who can help you install OSCAR? It should take them only a few minutes. After that you can learn to use it without too much trouble. You just take the SD card out of your CPAP machine, put it into your computer, and launch OSCAR. It's pretty user-friendly after that.

Not trying to be a smart arse, but what can I do with all the data on the chip?  I can already read lots of information off the screen of the machine.  I get today, 7 day average and 30 day average on hours slept per day, AHI, mask fit, and several other pieces of information that I have no idea what it's about.
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#9
RE: New guy - just found Forum
The reason behind using OSCAR to gather and allow posting of the data is to get this info onto the post. On top of this, OSCAR has far more reporting capability than the machine screen can ever display. That applies whether you're looking at it yourself or posting it here for others to comment on. Without this info, there's little help that members can offer to assist you in making the therapy better, nor can we help much if there's questions about the therapy.
Dave

I'm not a doctor in real or fictional life. My posts include opinions based upon user experience regarding CPAP therapy and should not be considered medically professional direction or advice.


Wiki Info for Beginners
OSCAR Chart Organization
Mask Primer
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#10
RE: New guy - just found Forum
the long and short of it is that if you are feeling well, happy with your cpap experience and your provider support, there's no need to dig deeper. if the opposite, the breadth and depth of data sleepyhead and oscar report from the data your machine is already generating, is required to understand how to better optimize settings, comfort and efficacy of your treatment. since you're here you probably have and can operate a computer. there's a steep leaning curve with respect to understanding the data but knowledgeable folks here will do that for you. oscar itself isn't very hard. just ask a grandchild or a neighbor kid to help you get set up! :-)
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