Post Reply 
New here... And a very short poll...
Author Message
Whitjr Offline

Members

Posts: 8
Joined: Apr 2015

Machine: Respironics System One BIPAP
Mask Type: Hybrid
Mask Make & Model: Mirage Quattro
Humidifier: Not in use
CPAP Pressure: 9 cmH20
CPAP Software: ResScan

Other Comments: Retired Respiratory Therapist - 35 years of clinical was long enough

Sex: Male
Location: Rural NC

Post: #1
New here... And a very short poll...
Hello to the group. This is my first post... On this forum.

I was wondering what is the average "get used to it " time for folks?

So far, I'm working on 5 weeks of daily nighttime use, and I'm still not used to the thing yet. It's getting better, three nights this week without snatching the mask off in the middle of the night. I am getting more rest, can feel this, however am still removing the mask in the middle of the night in my sleep. I am pretty much unaware that I'm doing it when I do it...

When I do that, I Just wake up and place the mask back on. Somehow in my sleepy state I "know" that I need this thing... Don't find myself thinking about putting it back on at all.

My sleep-less study [what we used to call them in the Pulmonary Lab I worked in] indicated I had Severe OSA. Near as I can figure, I haven't had a good night's sleep for the last 10 years.

I'm going on and on here... Will stop for now. I would be interested in hearing from others how long it took to get used to sleeping with this thing!

Thanks
04-24-2015 08:11 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
TheDuke Offline

Preferred Members

Posts: 44
Joined: Mar 2012

Machine: DeVilbiss Intellipap BiLevel DV-55D
Mask Type: Nasal mask
Mask Make & Model: ResMed Activa
Humidifier: DeVilbiss IntelliPap
CPAP Pressure: CPAP Mode 9.0 cm.
CPAP Software: Other Software

Other Comments:

Sex: Male
Location: Western Kentucky USA

Post: #2
RE: New here... And a very short poll...
I had relief from symptoms from the very first night I used CPAP. However I had a very difficult time with masks, actually for several years. I have always had nasal masks, and the earlier ones irritated my nose, and the straps made red marks on my face and were uncomfortable. For almost 10 years now I have used the ResMed Mirage Activa mask, and for me it is the best I have tried. I realize that masks are an individual fit thing, but for me the inflating bellows action of the Activa has been ideal. There are a lot of masks and different people respond better or worse to some masks.

through the many years I have had CPAP and BiLevel I have actually liked every machine I have used-Masks and straps were my issues. I would urge you to be patient and not giveup on treatment.

TheDuke
04-24-2015 08:25 PM
Find all posts by this user Post Reply Quote this message in a reply
trish6hundred Offline

Advisory Members

Posts: 6,446
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #3
RE: New here... And a very short poll...
Hi Whitjr,
WELCOME! to the forum.!
Sometimes it takes quite a while to get used to CPAP therapy.
Just hang in there with it, it gets better.
Hang around for more responses to your post and much success to you with your CPAP therapy.

trish6hundred
04-24-2015 09:02 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
AshSF Offline

Advisory Members

Posts: 356
Joined: Oct 2014

Machine: PRS1 D560TS
Mask Type: Nasal pillows
Mask Make & Model: ResMed P10, Bkup: Airfit F10 & Quattro Air
Humidifier: PRS1 60 series with Heated Tube
CPAP Pressure: 8 - 8 w/ Aflex 3
CPAP Software: SleepyHead

Other Comments: Using APAP mode with fixed pressure

Sex: Male
Location:

Post: #4
RE: New here... And a very short poll...
It's a process. My days are listed below
1) first you will get used to inhaling and exhaling with/against pressure. Day1
2) Get over mask claustrophobia: Day1
3) wear mask for whole night: Day1
4) get mask leaks under control: Day7
5) get AHI down below 5 or even below 1. : Day7
6) sleep thru the night without waking up. : Day 30
7) tweak pressure settings and trial new masks until you Feel 'really' rested. :Day 140
8) stop obsessing about data every morning. :Day 170
9) CPAP becomes a part of your life. : Day 180

The feeling really rested is also dependent on how quickly your body readjusts your hormones.

Started APAP 4-20, Closed range to 7.5-14, then straight 8.0 w/ Aflex 3
RDI always below 1. But sleep much much better at straight pressure.
Started on F10, Tried Quattro Air successfully. Finally settled on P10.
(This post was last modified: 04-24-2015 09:21 PM by AshSF.)
04-24-2015 09:19 PM
Find all posts by this user Post Reply Quote this message in a reply
AirSign Offline

Preferred Members

Posts: 85
Joined: Mar 2015

Machine: ResMed Airsense A10 for her
Mask Type: Nasal pillows
Mask Make & Model: Nuance / Airfit P10
Humidifier: Airsense A10
CPAP Pressure: 9-16, average under 14
CPAP Software: SleepyHead

Other Comments: Seasons here: Wintah, Mud, Road Repair, Wintah

Sex: Female
Location: Road Repair Season, New England

Post: #5
RE: New here... And a very short poll...
I was in my 60s before I was diagnosed, and it did take me a long time to get used to the CPAP therapy. For at least a few months, I only wore the mask the minimum for compliance, i.e. 4 hours per night. I don't remember how long it was before I learned I needed a chin strap to keep my mouth closed. Since those days CPAP machines didn't have reports I could read with software myself, I had no idea about results that could be verified. I could only go by how I felt.
My brother, who now uses BiPAP, was the person who encouraged me to stay with it. So much else was going on in my life the first 3 years of my CPAP therapy that it's hard to remember many details.
There was really no support from medical people until after I underwent AVR heart surgery. A technician came to the physical rehab center where I stayed for over 3 weeks after leaving hospital, and adjusted the machine for me. At that time, I was confined to sleeping on my back, so he probably had to increase the pressure, which is not something I knew about then.

All I can say is, be kind to yourself, and understand that xPAP is first and foremost, a therapy. Which you need.

One of the things I believe would make it a lot easier for people to comply is if a way to measure blood oxygen saturation was built into the home therapy system. That's the bottom line for me -- if the cells of my body, brain cells, organ cells, skin cells, muscle cells, nerve cells, eye cells, stomach cells, are not getting enough oxygen, I'm dying faster than I need to. What sleep apnea does, besides make you sleepy during the day, is decrease the efficiency of getting oxygen into your body where it's needed.

It's a nuisance to get used to, perhaps, but I think it beats having to wheel around an oxygen tank with you everywhere you go. Just my personal opinion. The systems are improving all the time. And yes, you can get acclimated to the system and improve your energy and your longevity.

And you'll look forward every night to . . .

Sleep-on-pillow
04-24-2015 10:09 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #6
RE: New here... And a very short poll...
Whit, it really depends on what is going on with you. I see you're running on a fixed pressure of 9. That might be doing the job, or maybe not. You need to download and install the Sleepyhead software then begin reviewing your nightly results. How many OA's? CA's? Hypops? etc..... What is your leak percentages?

Reviewing all this might lead you to determine you need to raise your pressure some. That might result in you getting comfortable enough that the mask quits coming off in the middle of the night.

Anyhow, come back with statistics and we can help you make sense out of all this.

So, how long will it take you to adjust? Only as long as it takes for you to find your own personal sweet spot.
04-24-2015 11:22 PM
Find all posts by this user Post Reply Quote this message in a reply
SleepingInRlyeh Offline

Members

Posts: 6
Joined: Apr 2015

Machine: ResMed AirSense 10 AutoSet
Mask Type: Full face mask
Mask Make & Model: ResMed AirFit F10
Humidifier: Built-in
CPAP Pressure: 5-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: WA

Post: #7
RE: New here... And a very short poll...
Hi Whit! I'm a newbie to CPAP as well, have had it just over a week. I'll give a mini-list like AshSF did about my experience so far.

1) Day 1 - leaks galore, side sleeper but couldn't sleep on my side with the FFM because the pillow pushing made it leak, so I tried to sleep on my back and woke up gagging with the CPAP going full blast trying to clear my airway while leaking into my eyes. Thought I was being waterboarded. ;-) AHI over 5.

2) Day 2 - crank down the mask trying to avoid leaks, which worked, but as I found out a few days later, I had it cranked down too much. Started sleeping in weird positions so the mask wouldn't get pushed off my face by the pillow. This resulted in neck pain and headaches.

3) By Day 7 - finally get the mask adjusted just right, got new pillows, and sleep without waking up with neck and shoulder pain. AHI < 2 most days now.

Last night was the first night I took the mask off during my sleep. I vaguely remember waking up coughing (I think I'm starting to get a cold) and pulled the mask off to get the coughing out (it's amazingly hard to cough with a FFM on), but fell back asleep without getting the mask back on. Woke up feeling horrible, and felt horrible the whole day on and off. Looking forward to a night of sleep tonight with the mask on.

But, before the CPAP I had a TAP (oral appliance). I used to take that out in my sleep every night for the first two weeks. Then, occasionally, after that for a month or two. After about six months it was the opposite - I was so used to it that I couldn't fall asleep without it in my mouth.

So I'm betting your experience will be similar to my TAP experience. Just keep with it, and eventually you'll stop taking it off as often, then not at all.
04-25-2015 01:31 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #8
RE: New here... And a very short poll...
(04-24-2015 08:11 PM)Whitjr Wrote:  I would be interested in hearing from others how long it took to get used to sleeping with this thing!

Thanks
At least 6 months, wasn't plain sailing but as the saying goes ... a journey of a thousand miles begins with a single step

Things to remember, CPAP is not a miracle cure or can fix every other heath problem we might developed over the years of sleep and oxygen deprivation ... healing can take some time

It does help to keep a positive attitude and don't tackle everything at once but rather one small step at a time

Good luck

Time for a nice cup of tea on this special Anzac day
04-25-2015 01:42 AM
Find all posts by this user Post Reply Quote this message in a reply
Moriarty Offline

Advisory Members

Posts: 270
Joined: Jul 2012

Machine: Respironics REMStar 50 Series Auto
Mask Type: Nasal pillows
Mask Make & Model: Fisher & Pakel Pilairo Q
Humidifier: Respironics System One
CPAP Pressure: 8.5-20 (average 9.4)
CPAP Software: SleepyHead

Other Comments: Image above is my CPAP machine...

Sex: Male
Location: Toowoomba - Qld - Australia

Post: #9
RE: New here... And a very short poll...
(04-24-2015 08:11 PM)Whitjr Wrote:  I would be interested in hearing from others how long it took to get used to sleeping with this thing!

Thanks

Yours is a very good question...

I am one of the lucky ones... While some struggle it clicked for me straight up.

Night 1: After an hour or so to get the mask fit good enough I slept through the night for the first time in years... Nocturia gone. AHI 3.

Next 3 months: After starting with a Hybrid mask (sort of a full face but with Nasal pillows built in) I found that I had stopped mouth breathing so I tried a Nasal Pillows type mask. Much better - AHI dropped to around 1.

Next 2.5 years: Life is great and I am sleeping well.

I don't know everybody's story but for the few I do know, persistance and a positive approach to what will be a part of the rest of your (probably now somewhat longer) life goes a long way.

I hope your journey goes well.

Cheers

David

Disclaimer: The 'Advisory Member' title is a Forum thing that I cannot change. I am not a doctor and my comments are purely my opinion or quote my personal experience. Regardless of my experience other readers mileage may vary.
04-25-2015 03:50 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
truetopath Offline

Preferred Members-2

Posts: 421
Joined: Feb 2015

Machine: PR system one 560p auto with a flex
Mask Type: Full face mask
Mask Make & Model: Resumed F10
Humidifier: PR system one
CPAP Pressure: 11
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Lake View, NY

Post: #10
RE: New here... And a very short poll...
It took me about a week to get used to the machine, and now after a couple months I can sleep through the night. I guess I'm one of the lucky ones. Just remember this is a marathon and not a sprint.
04-25-2015 11:43 AM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
Question NOSE-HOLE POLL SuperSleeper 43 13,280 07-03-2016 10:11 AM
Last Post: WSHenry
  POLL - CPAP vs. all other PAPs OMyMyOHellYes 16 1,055 07-01-2016 09:50 AM
Last Post: justMongo
  Anlysis needed short night-data attached 0rangebear 2 353 02-24-2016 10:32 AM
Last Post: justMongo
  "Not for Resale" "Short Term Use Only"??? Terry 4 632 02-01-2016 09:54 PM
Last Post: PoolQ
  short article about truckers and sleep apnea cate1898 5 1,042 12-18-2015 10:16 AM
Last Post: Weird Tolkienish Figure
Question [Equipment] AirFit P10 Short Hose Cozy / Barrel Condensation nelamvr6 6 980 11-17-2015 08:22 PM
Last Post: nelamvr6
  seeking reason for short periods for sleep report bunter 2 710 09-21-2015 01:03 AM
Last Post: bunter

Forum Jump:

Who's Online (Complete List)